Blood Cancers & Disorders Support Group

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Comments (1,035)

First time post here. We live on the Sunshine Coast an hour north of Brisbane in...

https://connect.mayoclinic.org/comment/1265364/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

My husband will also receive a bone marrow transplant in Feb. for MDS. We are very...

https://connect.mayoclinic.org/comment/798478/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 18, 2023

My husband has been seen by an oncology since 2017 where they had been watching his...

https://connect.mayoclinic.org/comment/940926/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Hi @asarnesejr - yes, I have some thoughts: 1. Your low grade MDS with only germline...

https://connect.mayoclinic.org/comment/1531898/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 21 8:07am

Hi my name is Jacklyn and I have been diagnosed with AML progressing from CMMl. My...

https://connect.mayoclinic.org/comment/1337842/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

I've had a low platelet count for over a decade. I switched to an alkaline diet...

https://connect.mayoclinic.org/comment/1310233/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 22, 2025

My wife Nancy was diagnosed with MDS in June of 2023 at age 78. She was...

https://connect.mayoclinic.org/comment/1271616/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2025

thank you so much for your response, more than that, the inspiring message of how long...

https://connect.mayoclinic.org/comment/163811/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2017

It's hard to know whether you had MDS for a while with the gap in blood...

https://connect.mayoclinic.org/comment/1366246/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2025

Six months have passed since we became aware of Rytelo as a possibility. As expected, my...

https://connect.mayoclinic.org/comment/1337629/

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

I’m not sure about that, but I don’t get tired or have fatigue. I do work...

https://connect.mayoclinic.org/comment/1259061/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

@gg17 Here is an article from Mayo Clinic about cyclosporine and nephrotoxicity https://www.mayoclinic.org/drugs-supplements/cyclosporine-oral-route/description/drg-20075815 How long has...

https://connect.mayoclinic.org/comment/326820/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2020

@shoch1957 Normal Hgb for males is between 13 and 15 deciliter (g/dL). If your levels hover...

https://connect.mayoclinic.org/comment/1463584/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2025

It depends on a number of things on what comes next. In hindsight i may have...

https://connect.mayoclinic.org/comment/1249796/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2025

Hi Steve. You mentioned your mom already had a 2nd opinion at Mayo-Rochester and they were...

https://connect.mayoclinic.org/comment/1174801/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2024

Hello @rrivory Welcome to Mayo Clinic Connect. We’re an online community forum where members come together...

https://connect.mayoclinic.org/comment/621728/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2021

I am 75 and I have been wondering the same thing. 2 years ago in June...

https://connect.mayoclinic.org/comment/1368685/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 11, 2025

I had my 4th BMB done today. I requested the same PA- She ROCKS! 1% lidocaine...

https://connect.mayoclinic.org/comment/1151479/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

Hi @momz I wasn’t diagnosed with MDS prior having AML. I’d had a complete physical including...

https://connect.mayoclinic.org/comment/925974/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

I have been taking Hydroxyurea daily for nearly 10 months. I have Langerhans Cell Histiocytosis, skin...

https://connect.mayoclinic.org/comment/146313/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2020