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Comments (924)

So you had these tests JAK2V617F,JAK2Exon12, BCR ABL-MPL-CALR?which one was positive? I don’t know the medical...

https://connect.mayoclinic.org/comment/1022951/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26 9:58am

I have been diagnosed with PV Jak 2 mutation, 2 years ago this month, started off...

https://connect.mayoclinic.org/comment/900824/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

It is hard to understand I was told I have Essential Thrombocytosis with a JAK 2...

https://connect.mayoclinic.org/comment/980116/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2023

I am JAK 2 positive with PV and also take the hydroxyurea and one baby aspirin....

https://connect.mayoclinic.org/comment/1086544/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 14 6:33am

I have polycythemia vera also a jak 2. If this is your diagnosis there is no...

https://connect.mayoclinic.org/comment/1087160/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15 7:18am

@pumpkin1 I was diagnosed a year and a half ago with ET, Jak 2 positive, and...

https://connect.mayoclinic.org/comment/929117/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

No I haven’t had PV. I started in 2016 with ET JAK 2 and was controlled...

https://connect.mayoclinic.org/comment/908930/

Discussion: Anyone dealt with degenerative disk disease with PV diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023

I have had ET for 10 years and avoided a bone marrow biopsy completely. The fact...

https://connect.mayoclinic.org/comment/1088943/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18 7:07am

Yes, I have been on Peg since Nov 2022 and started at 45mcg/ wk and moved...

https://connect.mayoclinic.org/comment/1106156/

Discussion: Hydroxyurea vs peginterferon side effect impact

Support Group: Blood Cancers & Disorders

Posted: Jul 15 3:27pm

I was diagnosed with ET JAK 2 about 15 years ago - no symptoms but found...

https://connect.mayoclinic.org/comment/1140166/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 12 3:09am

The only patients I've whose docs allowed them to run platelet levels up to 1,000 were...

https://connect.mayoclinic.org/comment/1010586/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 6 9:31am

Hi, I just read your post and am sorry that you are having a tough time...

https://connect.mayoclinic.org/comment/820895/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2023

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Hi, Karen here. I was diagnosed about a month ago with Essential Thrombocytosemia, the rate type....

https://connect.mayoclinic.org/comment/783499/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2022

My platlets were at over a million and pain in my feet was unbearable. I had...

https://connect.mayoclinic.org/comment/599861/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

hEHello out there. My name is Nancy Bush (shortshot80,net) I arrived on the Mayo Clinic site...

https://connect.mayoclinic.org/comment/132610/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: Apr 27, 2017

Hello, About a year ago I was diagnosed with antiphospholipid antibody syndrome and JAK 2 Mutation...

https://connect.mayoclinic.org/comment/194326/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2019

Hi Justin, I have been thinking that maybe I should get another opinion at Mayo because...

https://connect.mayoclinic.org/comment/188873/

Discussion: Is Idiopathic Erythrocytosis (Polycythemia) cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2018

I'm five mos in from the discovery of JAK 2, started at 680, now hovering above...

https://connect.mayoclinic.org/comment/194365/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2020

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019