Blood Cancers & Disorders: Discussions | Page 1

Today diagnosed with ET/JAK 2 mutation. Hello ~ I have been reading other posts and recognize...

https://connect.mayoclinic.org/comment/782169/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

I was diagnosed with ET and I do have the Jak 2 mutation. Leading up to...

https://connect.mayoclinic.org/comment/776350/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

A "safe" platelet count usually takes into consideration age, driver mutation, and clot history. Somebody in...

https://connect.mayoclinic.org/comment/1025894/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

I was diagnosed with ET in November after my platelet count had been rising slowly for...

https://connect.mayoclinic.org/comment/1039616/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

If you decide to take HU, try it a couple of times per week for a...

https://connect.mayoclinic.org/comment/1022375/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

I am 73 year old, widow. No family near my location. Two years ago I had...

https://connect.mayoclinic.org/comment/985499/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back...

https://connect.mayoclinic.org/comment/978074/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Welcome to Mayo Connect, @ausableriver I’m happy you found us and decided to bypass Dr Google....

https://connect.mayoclinic.org/comment/875590/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

Good morning, @csgreetings and welcome to Mayo Connect. So many of us in this support group...

https://connect.mayoclinic.org/comment/836599/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Good morning, @serenity55 I love your @name of Serenity. It’s a word in my morning affirmations…and...

https://connect.mayoclinic.org/comment/828909/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I have ET, spleen is normal, but it is a side effect of ET. Serms like...

https://connect.mayoclinic.org/comment/815617/

Discussion: Elevated platelets and enlarged spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

I was diagnosed with JAK2 positive in 12/21. My platelets rose to high 700's and I...

https://connect.mayoclinic.org/comment/798458/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

66 year old male, diagnosed ET with JAK2, June 2024. Last week my haematologist gave me...

https://connect.mayoclinic.org/comment/1211108/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 14 8:10am

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

Hi. I have been on HU for 2 years since 2023. My biggest issue is dry...

https://connect.mayoclinic.org/comment/1221373/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 11:53am

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 12:00pm

Welcome @ontheverge I am 79 and was diagnosed last year with ET JAK2 by labs and...

https://connect.mayoclinic.org/comment/869114/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Well this is my gang, here. I was just diagnosed (age 64, now one day away...

https://connect.mayoclinic.org/comment/778788/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Blood Cancers & Disorders Support Group