Blood Cancers & Disorders: Discussions | Page 42

Hi @robinll. With PV (Polycytmenia Vera) it is generally the red blood count that is elevated,...

https://connect.mayoclinic.org/comment/1144372/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

I have the JAK2 mutation and, like you, my high platelets were discovered by blood work...

https://connect.mayoclinic.org/comment/1076886/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: May 29, 2024

I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...

https://connect.mayoclinic.org/comment/910025/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Yes, I am CALR-ET for at least 15 years, and I'm sure I come off like...

https://connect.mayoclinic.org/comment/816179/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

Hello @kanaazpereira , The article you shared (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562533/ ) answers alot of my inquiry. Just wondering...

https://connect.mayoclinic.org/comment/194287/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Hi, this is my first time writing anything, but I’ve benefitted tremendously from reading the insights...

https://connect.mayoclinic.org/comment/1167543/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

There is a lot of amazing info in this group. Kudos to many of you have...

https://connect.mayoclinic.org/comment/657917/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...

https://connect.mayoclinic.org/comment/970297/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...

https://connect.mayoclinic.org/comment/784473/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Hi @learnandlive I recently learned that PV can be related to sleep apnea as well. My...

https://connect.mayoclinic.org/comment/783163/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...

https://connect.mayoclinic.org/comment/328555/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020

I take HU, 500 mg, 4x week, baby aspirin 2x day, and iron supplements 1x day....

https://connect.mayoclinic.org/comment/1210555/

Discussion: Does ET or HU affect liver functions?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:49am

I was recently diagnosed with this as well, at age 69. The chemo I'm taking is...

https://connect.mayoclinic.org/comment/983162/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

Hi, i was diagnosed with primary polycythaemia 2 weeks back, dr has said that my Jak2...

https://connect.mayoclinic.org/comment/822183/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2023

Regarding hair loss: I've been on HU for two months; first month was 500mg daily with...

https://connect.mayoclinic.org/comment/1324276/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 10 11:36am

Hi Sherry, hope all is well. I am currently only on Aspirin. My hemo diagnosed the...

https://connect.mayoclinic.org/comment/1293272/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 8:12am

A full blood test workup with the hematologist and an exam to determine the size of...

https://connect.mayoclinic.org/comment/1162672/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Hello Debbie, Great to hear from you. I made my original post almost a year ago,...

https://connect.mayoclinic.org/comment/998935/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Blood Cancers & Disorders Support Group