Blood Cancers & Disorders Support Group

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Comments (2,270)

Please do verify the effects of COVID (and flu) vax on ET with your hemo, and...

https://connect.mayoclinic.org/comment/1328943/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Hi @dale1k I am amazed at your high dose of HU since you say your RBC...

https://connect.mayoclinic.org/comment/1078783/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2024

Interesting. My platelets went up after the 6 covid shots and with the Shingrix. Docs say...

https://connect.mayoclinic.org/comment/1022384/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

I am have ET (JAK2+). I have been using bio identical hormones for 17 years with...

https://connect.mayoclinic.org/comment/1151761/

Discussion: Thoughts on bio identical hormones and ET?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2024

Yes, hemo scheduled JAK2 test. That was neg, but false negs happen, so she did the...

https://connect.mayoclinic.org/comment/1054719/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2024

Good morning @daelitesmom. Glad I had my cup of tea in hand to read through your...

https://connect.mayoclinic.org/comment/1456025/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

I do not have ET but I do have PV. Your ET is one of the...

https://connect.mayoclinic.org/comment/776954/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2022

I totally understand your angst. As a 76 year old female, I felt great before the...

https://connect.mayoclinic.org/comment/1520763/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 6 8:06am

@loribmt asked about changes in my husband's ET & MF of 25 years ago. There have...

https://connect.mayoclinic.org/comment/1258606/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2025

Welcome to Connect, @smyles73. You were diagnosed 3 years ago with ET and taking 1500 mg...

https://connect.mayoclinic.org/comment/1235048/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2025

I have gray/red hair and pale skin -- perfect skin cancer fodder. I have been on...

https://connect.mayoclinic.org/comment/1216150/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Welcome to Connect, @johngrudnowski. I’m a little envious to see you’re in Costa Rica…sunshine and warmth!...

https://connect.mayoclinic.org/comment/999949/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

@maine here's the procedure code that was on my EOB when I had the Jak 2...

https://connect.mayoclinic.org/comment/1530266/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 9:21pm

It's definitely a scary time when you first get diagnosed. I was diagnosed eight years ago...

https://connect.mayoclinic.org/comment/1010025/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Hi @brooks7987, welcome. I moved your question about HU (hydroxyurea) and interferon to this existing discussion:...

https://connect.mayoclinic.org/comment/794968/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Hello @sanjb, I have a similar story. I was diagnosed with ET in 2002 at age...

https://connect.mayoclinic.org/comment/1420190/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2025

Thank you everyone for the responses. I am in the waiting room as I am typing...

https://connect.mayoclinic.org/comment/1396089/

Discussion: My wife tested positive for jak2 and has high platelet count

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

I too had ET due to a JAK2 . Platelet count got to 800,000. I had...

https://connect.mayoclinic.org/comment/1195372/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Hi Steve, Becky is taking Hydroxyurea which can impact the immune system, possibly making her more...

https://connect.mayoclinic.org/comment/1150083/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2024