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Comments (2,234)

This sounds very frustrating for you. Have you gotten second opinions and thought about going to...

https://connect.mayoclinic.org/comment/882900/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Sounds very frustrating for you. Seems every institution including Mayo has a “watch and wait” protocol...

https://connect.mayoclinic.org/comment/883525/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

@cousinvinney My Kappa FLC bloodwork level of 5 was ten years ago. IF you have MGUS,...

https://connect.mayoclinic.org/comment/1490467/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: Jan 25 3:28pm

lol..Had to double check I thought I had already answered this. Yes I was diagnosed with...

https://connect.mayoclinic.org/comment/1173204/

Discussion: Does plant-based eating lower chances of MGUS progressing to myeloma?

Support Group: Blood Cancers & Disorders

Posted: Nov 14, 2024

@barbarian1 That is the purpose of a baseline biopsy, to show the initial health of your...

https://connect.mayoclinic.org/comment/1433000/

Discussion: How high should my Kappa light chain continue to rise before I worry.?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Diagnosed with MGUS December 2022. I'm very low on the light chains and ratio between the...

https://connect.mayoclinic.org/comment/916408/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Thanks for the reply. I think MGUS is too complex a condition for a non specialist...

https://connect.mayoclinic.org/comment/895178/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

I have had MGUS for about 5 years which is low but slowly increasing. I have...

https://connect.mayoclinic.org/comment/859461/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Thanks! I was diagnosed with mgus last fall and I feel so much stress and depression...

https://connect.mayoclinic.org/comment/771246/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2022

I was diagnosed in 2013. They found I had almost no iron stores when anyone marrow...

https://connect.mayoclinic.org/comment/1492233/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 27 11:05pm

I am newly diagnosed as well by having a fluke appt. And my neurologist wanted to...

https://connect.mayoclinic.org/comment/904774/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2023

Thank you for replying back so quickly...no I wasn't given a type classification for my MGUS,...

https://connect.mayoclinic.org/comment/902869/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2023

@rimord Interesting you ask this question. The thing about the progression from MGUS to Smoldering MM...

https://connect.mayoclinic.org/comment/1455996/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

I take full spectrum curcumin with organic curcumin tea every morning. Full spectrum because it has...

https://connect.mayoclinic.org/comment/836203/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

@amyboylan1 If I have to cut out coffee I'm doomed. Seriously, I haven't seen any recommendation...

https://connect.mayoclinic.org/comment/1235361/

Discussion: Coffee and MGUS progression.

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2025

@amyboylan1 I was diagnosed with MGUS in 2017. In 2018 it advanced to Smoldering Myeloma, and...

https://connect.mayoclinic.org/comment/1141675/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

@jdm02 I've been at an MGUS stage for about 15 years now. My mother died from...

https://connect.mayoclinic.org/comment/1415472/

Discussion: Have MGUS and just caught Covid: Did Covid affect your numbers?

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2025

Hello.. I am brand new to MGUS... November... I am just making my six month appointment...

https://connect.mayoclinic.org/comment/1245233/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

Hi Mike, Glad to hear you are in remission- prayerfully things will remain in remission for...

https://connect.mayoclinic.org/comment/696840/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2022