Blood Cancers & Disorders Support Group

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Comments (2,270)

I have had ET for 12 years with no problems but started HU one month ago...

https://connect.mayoclinic.org/comment/1270040/

Discussion: ET progression if all blood cells are increasing?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2025

Every doctor has a different approach but you may want to raise the bone marrow biopsy...

https://connect.mayoclinic.org/comment/994226/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I'm on 1000mg HU every other day and 1500mg on opposite days along with 325mg aspirin...

https://connect.mayoclinic.org/comment/971585/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2023

1. Thank you for your service. I, too, was in the Navy a long time ago!...

https://connect.mayoclinic.org/comment/890649/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

@cec2 You've conveyed so much useful information! That's especially helpful because most of us had ever...

https://connect.mayoclinic.org/comment/1417110/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

I am so sorry to hear about this change in your wife’s health. Are you seeing...

https://connect.mayoclinic.org/comment/1519998/

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 6:52am

From Google AI: Preparing for surgery with Essential Thrombocythemia (ET) taking Hydroxyurea (HU) requires strict collaboration...

https://connect.mayoclinic.org/comment/1559019/

Discussion: Having an operation: What does the surgeon need to know about MPN?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Sounds like Essential Thrombocythemia (ET) which is one of the MPN diseases. I was originally diagnosed...

https://connect.mayoclinic.org/comment/328553/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020

@1995victoria Thank you for that info. I just did a brief search and found several articles...

https://connect.mayoclinic.org/comment/1421243/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

Neither my GP or hematologists mentioned ET was a very rare blood cancer. Only found this...

https://connect.mayoclinic.org/comment/1227966/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2025

@JustinMcClanahan I just got my report today from my bone marrow biopsy and to the doctor's...

https://connect.mayoclinic.org/comment/240722/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2019

I have been taking hydrea for ET for 12 years and have never heard of supplements...

https://connect.mayoclinic.org/comment/1011307/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

Most of us are in our "golden" years when we're diagnosed with ET. Maybe normal aging...

https://connect.mayoclinic.org/comment/1279173/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

I was diagnosed with this mutation and ET last Fall, and started Hydroxyurea as my platelet...

https://connect.mayoclinic.org/comment/1184721/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2024

@gajokos hi~ I was diagnosed with sMF, in June 2025, but was a little out of...

https://connect.mayoclinic.org/comment/1504852/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 12:04pm

I found out I had ET last fall and in January had a severe case of...

https://connect.mayoclinic.org/comment/840860/

Discussion: Polycythemia and joint pain in big toe

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2023

diagnosed with ET 2020 age 88 immediately started hydroxyurea twice daily morning/night. Platelets reduced but only...

https://connect.mayoclinic.org/comment/1426728/

Discussion: Anyone taking Hydroxyurea for ET and Prolia for Osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

Hi- I've just been diagnosed with ET. I'm 60 years old, feel great and the journey...

https://connect.mayoclinic.org/comment/1099062/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

I had a bone marrow biopsy before I got my official diagnosis of ET JAK12 positive....

https://connect.mayoclinic.org/comment/1269443/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

I was told i had Central Vestibular Vertigo by the best ENT in South Carolina, I...

https://connect.mayoclinic.org/comment/194346/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019