Blood Cancers & Disorders Support Group

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Comments (2,234)

My 83 year-old husband has MGUS that was diagnosed over two years ago, and it is...

https://connect.mayoclinic.org/comment/1010487/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

I had a similar situation, and three years ago they discovered MGUS. Kappa light chains numbers...

https://connect.mayoclinic.org/comment/897897/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

Hello Ginger, I'm new here, my wife have MGUS for three years and several problems in...

https://connect.mayoclinic.org/comment/794969/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

I found some interesting research on GLP-1 meds and MGUS progression, at least for people that...

https://connect.mayoclinic.org/comment/1415930/

Discussion: MGUS and GLP-1’s

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2025

I have blood taken and see her in June. I think she’s a good doctor and...

https://connect.mayoclinic.org/comment/1243246/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2025

I have cysts and lesions all the way up and down my spine. Have had MGUS...

https://connect.mayoclinic.org/comment/1417178/

Discussion: MGUS and spinal lesions

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2025

Good Morning! I am a member of Mayo Clinic because I was diagnosed with MGUS last...

https://connect.mayoclinic.org/comment/1120540/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024

I was diagnosed few years ago with MGUS also. I go to a hematologist/oncologist for labs...

https://connect.mayoclinic.org/comment/905091/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2023

I am learning many new things, following niece diagnosis with multiple myeloma, me having MGUS and...

https://connect.mayoclinic.org/comment/1382695/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 30, 2025

If it helps, I have smoldering myeloma and only get labs drawn every six months plus...

https://connect.mayoclinic.org/comment/1353857/

Discussion: Long term MGUS: What changes have you had? Do's and Don'ts?

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2025

I have had MGUS also- 4 years now with minor fluctuations with low numbers and see...

https://connect.mayoclinic.org/comment/1351978/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2025

I have thyroid nodules..more every year...was told Hashimotos disease..no treatment...also take d2...no idea why! Wonder now...

https://connect.mayoclinic.org/comment/74611/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2020

I was diagnosed this summer and am swimming in data from FISH tests and bone marrow...

https://connect.mayoclinic.org/comment/1183728/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

@grrranny Have you asked his doctor about the schedule your husband is on for labwork? Monitoring...

https://connect.mayoclinic.org/comment/1128192/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2024

I've had it for a few years.... the blood tests vary. each time.. Thursday they went...

https://connect.mayoclinic.org/comment/973753/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

This sounds very frustrating for you. Have you gotten second opinions and thought about going to...

https://connect.mayoclinic.org/comment/882900/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2023

Connections between MGUS and Peripheral Neuropathy: Direct Antibody Activity**: The monoclonal protein (M protein) produced in...

https://connect.mayoclinic.org/comment/1163047/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

I have been diagnosed with MGUS this last month. I also have diabetes, heart failure, pulmonary...

https://connect.mayoclinic.org/comment/1010746/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

I was diagnosed with IgA kappa light chain MGUS 8 years ago (69 yo woman) and...

https://connect.mayoclinic.org/comment/1008159/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2024

@pcb Just as @pmm mentioned, tell your doctor you are anxious about your situation, that you...

https://connect.mayoclinic.org/comment/771755/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2022