Blood Cancers & Disorders Support Group

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Comments (896)

Hello, Dharma - I can relate to your worry and am glad you found this site...

https://connect.mayoclinic.org/comment/1161168/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2024

Thank you for this information about green tea. I was a little confused about how much...

https://connect.mayoclinic.org/comment/790603/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

Cindy, how are you? What is your status? My CLL has been in remission for 26...

https://connect.mayoclinic.org/comment/165757/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2018

In my first bmb in 2019 in AZ just had local, felt pressure, doc stopped and...

https://connect.mayoclinic.org/comment/837460/

Discussion: Scheduled for bone biopsy what was your experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 4, 2023

Hi @sveta25. My hematologist oncologist called the Mayo Clinic-Rochester to discuss my case with a transplant...

https://connect.mayoclinic.org/comment/1461987/

Discussion: To continue or stop Venclexta treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2025

Even if you are very determined and have strong will power, there are time you may...

https://connect.mayoclinic.org/comment/850751/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

Hi eoconnor, good for you being proactive and seeking an answer to a health issue that...

https://connect.mayoclinic.org/comment/298972/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2020

Hi @valeriewiegand. I moved your question about the potential positive effects of green tea on CLL...

https://connect.mayoclinic.org/comment/777623/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2022

I was diagnosed about a month ago. I was reviewing the blood tests from a hospitalization...

https://connect.mayoclinic.org/comment/1319653/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

To help us understand this disease better could other's share the level of their WBC and...

https://connect.mayoclinic.org/comment/1284502/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2025

It's hard to distract yourself waiting for your diagnosis after a bone marrow biopsy and it...

https://connect.mayoclinic.org/comment/1364138/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2025

Hi Sonia, I can completely understand how all of this uncertainty is messing with your appetite....

https://connect.mayoclinic.org/comment/750792/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2022

I was diagnosed with CLL, stage 2 in May 2014, accompanied by very frequent infections requiring...

https://connect.mayoclinic.org/comment/113593/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2017

Just to let you know I've had Cll for about seven years now and have been...

https://connect.mayoclinic.org/comment/770424/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Hi Ron, it’s great to hear from you! I was wondering how you’ve been feeling. Previously...

https://connect.mayoclinic.org/comment/594587/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2021

I was diagnosed with CLL, then had a bad reaction to dental work and developed cancer...

https://connect.mayoclinic.org/comment/1435296/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2025

I was diagnosed with CLL 2011. Started decaffeinated mega green tea extract 725mg (std to 98%...

https://connect.mayoclinic.org/comment/1251185/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Hi Phyllis, I'm sorry I found your post here so late (and sorry that you have...

https://connect.mayoclinic.org/comment/612615/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2021

Hi Lori and everyone. It has been a while since I checked in and thought I...

https://connect.mayoclinic.org/comment/864101/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

@lila1 Hi Lila, I have SMZL (and WM and CLL) and just started treatment (after being...

https://connect.mayoclinic.org/comment/1099116/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024