Blood Cancers & Disorders Support Group

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Comments (233)

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

@vgdmayo Thanks to @loribmt for tagging me in this conversation. OHSU, going to their website, gave...

https://connect.mayoclinic.org/comment/1042904/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

I too have Waldenstrom macrogrobulinemia. Six years ago they thought I had NHL, BUT, Now after...

https://connect.mayoclinic.org/comment/815765/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

I was diagnosed with Waldenstrom Syndrome in 2013 . I received 2 years of chemo ....

https://connect.mayoclinic.org/comment/672571/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

Welcome to Mayo Connect. I was diagnosed with WM in 2014. I am an IWMF (International...

https://connect.mayoclinic.org/comment/624405/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2021

@jproctor Welcome to Mayo Clinic Connect. Have you been diagnosed with Waldenstroms? There are several discussions...

https://connect.mayoclinic.org/comment/615496/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2021

Hi again. Thank you for the information. I called the mayo clinics, but not the finance...

https://connect.mayoclinic.org/comment/284521/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2019

Hi @teachpeace I have Waldenström's for 2 1/2 years getting regular infusions but my neuropathy kept...

https://connect.mayoclinic.org/comment/1149675/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

What are the units for your Free light chains? IgM is usually a different type of...

https://connect.mayoclinic.org/comment/1144428/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2024

Finally :-) :-( I have a diagnosis from a Mayo CLL doc. He said I have...

https://connect.mayoclinic.org/comment/1044933/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

My husband has recently been diagnosed with Waldenstrom macroglobulinemia. He has a hematologist/oncologist who currently has...

https://connect.mayoclinic.org/comment/1042337/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Hi Elaine, USNews ratings of cancer centers (https://health.usnews.com/best-hospitals/rankings/cancer). I didn't look for other lists. I recently...

https://connect.mayoclinic.org/comment/1012803/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

Welcome to Connect, @weissmntc. You’ve just been handed a new diagnosis of Waldenstrom Macroglobulinemia. I’m sure...

https://connect.mayoclinic.org/comment/981542/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hi Mike, I have IGM MGUS (high IGM and low IGA and IGG) diagnosed in 2021....

https://connect.mayoclinic.org/comment/923899/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hi Mike, I can appreciate your thoughts on whether the vaccinations had anything to do with...

https://connect.mayoclinic.org/comment/923509/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2023

Hey Rick, thanks for your service. I also served in Viet Nam ‘66-67. I’m currently dealing...

https://connect.mayoclinic.org/comment/912991/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello all. Thought I would jump in and be part of the discussion on Waldenstrom disease....

https://connect.mayoclinic.org/comment/912177/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Thanks for the input. I do have Medicare along with the Aetna Direct I signed up...

https://connect.mayoclinic.org/comment/911899/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Welcome, @bacord83. I moved your message to this discussion: - Waldenstrom macroglobulinemia: What to expect during...

https://connect.mayoclinic.org/comment/911714/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023