Blood Cancers & Disorders Support Group

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Comments (254)

Thank you for the information. It is so nice to be able to ask a question...

https://connect.mayoclinic.org/comment/1042644/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

My husband has recently been diagnosed with Waldenstrom macroglobulinemia. He has a hematologist/oncologist who currently has...

https://connect.mayoclinic.org/comment/1042337/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024

Hi Elaine, USNews ratings of cancer centers (https://health.usnews.com/best-hospitals/rankings/cancer). I didn't look for other lists. I recently...

https://connect.mayoclinic.org/comment/1012803/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2024

Welcome to Connect, @weissmntc. You’ve just been handed a new diagnosis of Waldenstrom Macroglobulinemia. I’m sure...

https://connect.mayoclinic.org/comment/981542/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Hi Mike, I have IGM MGUS (high IGM and low IGA and IGG) diagnosed in 2021....

https://connect.mayoclinic.org/comment/923899/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hi Mike, I can appreciate your thoughts on whether the vaccinations had anything to do with...

https://connect.mayoclinic.org/comment/923509/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2023

Hey Rick, thanks for your service. I also served in Viet Nam ‘66-67. I’m currently dealing...

https://connect.mayoclinic.org/comment/912991/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hello all. Thought I would jump in and be part of the discussion on Waldenstrom disease....

https://connect.mayoclinic.org/comment/912177/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Thanks for the input. I do have Medicare along with the Aetna Direct I signed up...

https://connect.mayoclinic.org/comment/911899/

Discussion: Anyone Else with Waldenstrom's and COPD?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

Welcome, @bacord83. I moved your message to this discussion: - Waldenstrom macroglobulinemia: What to expect during...

https://connect.mayoclinic.org/comment/911714/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

@vasu11, you may also be interested in these related discussions: - Is anyone taking Ibrutinib (Imbruvica)?...

https://connect.mayoclinic.org/comment/909770/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2023

Don't fixate too much on this at this point. I went to neurologist for tingling toes....

https://connect.mayoclinic.org/comment/898502/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

Hi @nandita9009 The best way to initiate an appointment request would be to go directly to...

https://connect.mayoclinic.org/comment/891236/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I was diagnosed and treated for Waldenstrom in Jun2018. Do you or anyone else know at...

https://connect.mayoclinic.org/comment/866061/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I’m not sure if you’ve been to this site or not but there’s some good information...

https://connect.mayoclinic.org/comment/863823/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

Brukinsa is also known as Zanubrutinib. There are few members in the forum who have experience...

https://connect.mayoclinic.org/comment/845063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hello @marymoreau1948, Welcome to Mayo Connect. There are several other members in our support group who...

https://connect.mayoclinic.org/comment/844573/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 17, 2023

Thank you for reaching out for help. No doubt you are overwhelmed right now. Mayo Clinic...

https://connect.mayoclinic.org/comment/828678/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

I too have Waldenstrom macrogrobulinemia. Six years ago they thought I had NHL, BUT, Now after...

https://connect.mayoclinic.org/comment/815765/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Hi @mrperezy50 Welcome to Mayo Clinic Connect. It’s easy to feel alone when you’ve been diagnosed...

https://connect.mayoclinic.org/comment/787456/

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022