Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

91 total results

Comments (84)

Hello, I have been diagnosed in 2016 with MBL and after a Lymph nodes biopsy in...

https://connect.mayoclinic.org/comment/113638/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2020

Even if you are very determined and have strong will power, there are time you may...

https://connect.mayoclinic.org/comment/850751/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

Hi @mmpopovich, Welcome to Mayo Clinic Connect. I’m happy to see you’ve reached out to members...

https://connect.mayoclinic.org/comment/739167/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

I was diagnosed with CLL/SLL in 2014. No treatment till June of 2021. Very good response...

https://connect.mayoclinic.org/comment/744205/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

My diagnosis is CLL/SLL , Hashimoto and Hypogammaglobulinemia. Having frequent infections. I don’t have any treatment...

https://connect.mayoclinic.org/comment/164147/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2020

lancaster1963: A few suggestions: 1. Don’t be in a hurry to get treatment. Seek a second...

https://connect.mayoclinic.org/comment/1080851/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

@zephyr, welcome. You mention the Mayo Clinic study conducted for CLL. You may be interested in...

https://connect.mayoclinic.org/comment/708538/

Discussion: Diagnosed with small lymphocytic lymphoma (SLL)

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

I am getting night sweats on and off, have a few mouth sores, including an emerging...

https://connect.mayoclinic.org/comment/113597/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2017

@dani349. I’m a firm believer that knowledge is power. The article I recommended is a good...

https://connect.mayoclinic.org/comment/1043133/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2024

Hello @mena2020. Colleen shared some links with you with more information on CAR-T cell therapy. FDA...

https://connect.mayoclinic.org/comment/164154/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 22, 2020

So very sorry to hear what you are going through. I went through something similar. Suffered...

https://connect.mayoclinic.org/comment/1222351/

Discussion: I am a medical mystery

Support Group: Blood Cancers & Disorders

Posted: Jan 26 2:19pm

Hi @tatayababa, I can feel your anxiety growing so I hope I can help you out...

https://connect.mayoclinic.org/comment/816552/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I too had CLL/SLL since 2013. Had Merkel cell in 2017, had surgery, chemo and radiation....

https://connect.mayoclinic.org/comment/895239/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Lori: My reply was somewhat in jest, but not entirely. But, yes, for several years I...

https://connect.mayoclinic.org/comment/1081863/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Oh golly, you and your family are working through a lot of uncertainties right now. I’m...

https://connect.mayoclinic.org/comment/814276/

Discussion: Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2023

Barbara - Correct. I asked my P.A. the last visit if I could go on Venetoclax...

https://connect.mayoclinic.org/comment/211082/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2019

Hi Carol, I can feel your anxiety growing…so I hope you don’t mind but I’m going...

https://connect.mayoclinic.org/comment/1098627/

Discussion: Anybody on Treatment for CLL?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2024

I was diagnosed in 2021 and my hematologist/oncologist guessed I had probably had it for at...

https://connect.mayoclinic.org/comment/965569/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2023