Blood Cancers & Disorders Support Group

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Comments (88)

@trixie1, recently (Jan 2023) the FDA approved zanubrutinib (Brukinsa) for the treament of chronic lymphocytic leukemia...

https://connect.mayoclinic.org/comment/912886/

Discussion: Any new treatments for SMZL? What do you take for maintenance?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hi @elainejarrett, If you could help me narrow down your diagnosis a little more it will...

https://connect.mayoclinic.org/comment/809132/

Discussion: Lymphoproliferative Disorder: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2023

Hi @sonia85 From the doctor’s comment it looks like your mother has Chronic Lymphocytic Leukemia. (CLL)...

https://connect.mayoclinic.org/comment/751780/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2022

Hello, I have been diagnosed in 2016 with MBL and after a Lymph nodes biopsy in...

https://connect.mayoclinic.org/comment/113638/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2020

Even if you are very determined and have strong will power, there are time you may...

https://connect.mayoclinic.org/comment/850751/

Discussion: New to CLL-no treatment-what to eat?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023

Hi @mmpopovich, Welcome to Mayo Clinic Connect. I’m happy to see you’ve reached out to members...

https://connect.mayoclinic.org/comment/739167/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2022

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13 2:31pm

I was diagnosed with CLL/SLL in 2014. No treatment till June of 2021. Very good response...

https://connect.mayoclinic.org/comment/744205/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Sep 1, 2022

Thank you Lori. I have been receiving IVIG, or Privigen infusions every 4-6 weeks since 2010....

https://connect.mayoclinic.org/comment/1076581/

Discussion: What is the prognosis of living with CLL beyond 20 years?

Support Group: Blood Cancers & Disorders

Posted: May 28, 2024

My diagnosis is CLL/SLL , Hashimoto and Hypogammaglobulinemia. Having frequent infections. I don’t have any treatment...

https://connect.mayoclinic.org/comment/164147/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 17, 2020

@zephyr, welcome. You mention the Mayo Clinic study conducted for CLL. You may be interested in...

https://connect.mayoclinic.org/comment/708538/

Discussion: Diagnosed with small lymphocytic lymphoma (SLL)

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

lancaster1963: A few suggestions: 1. Don’t be in a hurry to get treatment. Seek a second...

https://connect.mayoclinic.org/comment/1080851/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

@dani349. I’m a firm believer that knowledge is power. The article I recommended is a good...

https://connect.mayoclinic.org/comment/1043133/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2024

I am getting night sweats on and off, have a few mouth sores, including an emerging...

https://connect.mayoclinic.org/comment/113597/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2017

Hello @mena2020. Colleen shared some links with you with more information on CAR-T cell therapy. FDA...

https://connect.mayoclinic.org/comment/164154/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 22, 2020

Hi @tatayababa, I can feel your anxiety growing so I hope I can help you out...

https://connect.mayoclinic.org/comment/816552/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

Hi @arooney33. I’m still in shock over reading you have internal Poison Ivy that affected your...

https://connect.mayoclinic.org/comment/1317038/

Discussion: Newly Diagonised CLL in March

Support Group: Blood Cancers & Disorders

Posted: May 31 8:20am

So very sorry to hear what you are going through. I went through something similar. Suffered...

https://connect.mayoclinic.org/comment/1222351/

Discussion: I am a medical mystery

Support Group: Blood Cancers & Disorders

Posted: Jan 26 2:19pm

I too had CLL/SLL since 2013. Had Merkel cell in 2017, had surgery, chemo and radiation....

https://connect.mayoclinic.org/comment/895239/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Lori: My reply was somewhat in jest, but not entirely. But, yes, for several years I...

https://connect.mayoclinic.org/comment/1081863/

Discussion: Why doesn't a Mayo Wellness Checkup Include a Blood Test?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2024