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Blood Cancers & Disorders Support Group

Public Support Group
89 total results
Discussion
Diagnosed with small lymphocytic lymphoma (SLL)
I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...
Last active: Dec 11, 2023
Discussion
Can CLL change to SLL? Then what?
In 2010 I was diagnosed with CLL. since then I have been getting regular IVIG infusions. In the past year some lymph glands under my...
Last active: Aug 18, 2024
Discussion
Metformin and its impact on SLL/CLL treatment?
Is there any information about the drug Medformin and its impact on SLL/CLL treatment?
Last active: Jun 15, 2024
Discussion
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
Last active: Jan 1, 2024
Discussion
What is the prognosis of living with CLL beyond 20 years?
Most articles about CLL state the vast majority of CLL patients have survived 20 years but there doesn't seem to be any mention beyond 20...
Last active: Jun 5, 2024
Discussion
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Last active: Feb 5 4:16pm
Discussion
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Last active: Aug 9, 2023