Blood Cancers & Disorders: Discussions | Page 4

I suffer from a mild myelofibrosis. From time to time, I am experiencing night sweats. Has...

https://connect.mayoclinic.org/comment/1193740/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2024

stimme, thank you for your contribution and I hope the acupuncture has helped. I came across...

https://connect.mayoclinic.org/comment/132617/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2020

I am not an expert, but I would think a BM bx would allow the practitioner...

https://connect.mayoclinic.org/comment/877587/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

There is a lot of information but the final comment was: The patient’s positive CALR mutation...

https://connect.mayoclinic.org/comment/1256039/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 7:59am

Hello @ksyren, yes, it is really nice to be able to chat with people who are...

https://connect.mayoclinic.org/comment/1205478/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 4:38pm

I get bulletins from Patient Power about drug therapies, and am bookmarking this one that lays...

https://connect.mayoclinic.org/comment/1329826/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 18 10:52am

I have a different diagnosis than you so you can look at my list and substitute...

https://connect.mayoclinic.org/comment/1308354/

Discussion: Diagnosed with MGUS. What questions should I ask the hematologist?

Support Group: Blood Cancers & Disorders

Posted: May 20 8:35am

I was diagnosed with Myelofibrosis almost 2 1/2 years ago. Lost 50 pounds, have tremendous fatigue,...

https://connect.mayoclinic.org/comment/1005596/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

Has anyone heard of new approved treatments for dry bone marrow or myelofibrosis - not stem...

https://connect.mayoclinic.org/comment/1049344/

Discussion: Propofol for bone marrow biopsy

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2024

JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...

https://connect.mayoclinic.org/comment/1210536/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:06am

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

Hello, @lmkmom I’ve been reading through a couple of your previous posts to see that you’ve...

https://connect.mayoclinic.org/comment/1320465/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 4 6:50pm

Thanks for catching that. Yes, I have primary myelofibrosis. I have an oncologist that is holding...

https://connect.mayoclinic.org/comment/1043713/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

Hello Connection Community - for those that have Myelofibrosis - my particular type is primarily anemia-...

https://connect.mayoclinic.org/comment/1348019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 14 11:30am

I am new to this site and having some difficulty following threads, but my husband was...

https://connect.mayoclinic.org/comment/1243859/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 1:33pm

Hi @mumblipeg , Thanks for sharing your store and great to hear you just have pre-myelofibrosis...

https://connect.mayoclinic.org/comment/1349772/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 16 3:36pm

So I turn 70 next year. Transplant has never been mentioned, I hope there is some...

https://connect.mayoclinic.org/comment/1351764/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 19 1:40pm

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about...

https://connect.mayoclinic.org/comment/132600/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Hi again @davi0937, You have company as I was diagnosed with that also, but in February...

https://connect.mayoclinic.org/comment/1349931/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 16 8:49pm

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...

https://connect.mayoclinic.org/comment/1099168/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Blood Cancers & Disorders Support Group