Blood Cancers & Disorders: Discussions | Page 4

Hi @trillium, while many patients with polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF) have...

https://connect.mayoclinic.org/comment/336437/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 2, 2021

JAK2 Myelofibrosis I have been on Ojjarra for almost three months. It is a half dose...

https://connect.mayoclinic.org/comment/1210536/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 10:06am

I was diagnosed with Myelofibrosis almost 2 1/2 years ago. Lost 50 pounds, have tremendous fatigue,...

https://connect.mayoclinic.org/comment/1005596/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2024

I am on Original Medicare and have an excellent Medigap policy. At least for Myelofibrosis, a...

https://connect.mayoclinic.org/comment/1328486/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 16 2:00pm

I am new to this site and having some difficulty following threads, but my husband was...

https://connect.mayoclinic.org/comment/1243859/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 1:33pm

Thanks for catching that. Yes, I have primary myelofibrosis. I have an oncologist that is holding...

https://connect.mayoclinic.org/comment/1043713/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about...

https://connect.mayoclinic.org/comment/132600/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2017

Bad news last time at the doc office, the doctor told me that I suffer from...

https://connect.mayoclinic.org/comment/1044397/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if...

https://connect.mayoclinic.org/comment/1099168/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Myelofibrosis (Diagnosed by Mayo 7 years ago) is one of those conditions which many doctors know...

https://connect.mayoclinic.org/comment/714720/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

@luvs2dance Thank you for sharing. I'm sorry to hear that it has progressed to Myelofibrosis. How...

https://connect.mayoclinic.org/comment/1278844/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 10 5:09pm

I would recommend anyone on hydroxyurea to look into Besremi. It has been shown to significantly...

https://connect.mayoclinic.org/comment/1204661/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 2:12pm

Hi @pearly, Please note that the reply above was from @gael, who is also living with...

https://connect.mayoclinic.org/comment/50536/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2017

Sounds exactly like my story without the myelofibrosis. So many results from genetic and bone marrow...

https://connect.mayoclinic.org/comment/1203190/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3 12:53pm

Had the uncontrollable itching about 5 years ago. No specialist had any idea what the cause...

https://connect.mayoclinic.org/comment/802925/

Discussion: Myelofibrosis or long Covid?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

You will find on this site lot’s encouraging and people with words of wisdom on your...

https://connect.mayoclinic.org/comment/1312965/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 26 12:30am

Welcome to Connect, @tomatoes CAR-T (Chimeric Antigen Receptor T-cell) therapy is primarily used for certain types...

https://connect.mayoclinic.org/comment/1321477/

Discussion: Any information om using CAR-T cell techniques to treat myelofibrosis

Support Group: Blood Cancers & Disorders

Posted: Jun 6 10:00am

Sorry, but I find it difficult to know how to enter the discussion without just replying...

https://connect.mayoclinic.org/comment/1165808/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 31, 2024

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Sounds like your in good hands. Yes, the liposomal Glutathione form is out front. It's recommended...

https://connect.mayoclinic.org/comment/132661/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2020

Blood Cancers & Disorders Support Group