Blood Cancers & Disorders Support Group

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Comments (511)

Thank you @1pearl It seems like of the blood disorders with Myelofibrosis there are different versions....

https://connect.mayoclinic.org/comment/1348784/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

I was diagnosed with myelofibrosis a year ago, along with B-cell lymphoma. I’m taking Hydroxyurea with...

https://connect.mayoclinic.org/comment/1264930/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

Check out this article: https://us.gsk.com/en-us/media/press-releases/ojjaara-momelotinib-approved-in-the-us-as-the-first-and-only-treatment-indicated-for-myelofibrosis-patients-with-anemia/

https://connect.mayoclinic.org/comment/1101000/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

Welcome to Connect @rhollis I think a good place to begin this morning is with a...

https://connect.mayoclinic.org/comment/1201587/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

Hello friends!! I have confirmed MYELOFIBROSIS! Just started taking OJJAARA ABOUT TEN DAYS AGO ! This...

https://connect.mayoclinic.org/comment/1411968/

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2025

Hi @toste, and welcome to Mayo Clinic Connect! This is a new one on me. I...

https://connect.mayoclinic.org/comment/1369923/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

They gave me nausea medication that I took initially. Obviously did not help. Diagnosis is myelodysplasia...

https://connect.mayoclinic.org/comment/1275078/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2025

I have been diagnosed with primary myelofibrosis for 6 yrs, after having elevated platelets, and after...

https://connect.mayoclinic.org/comment/1171967/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2024

Hello and I am new to this. My brother just got his JAK2 V617F back and...

https://connect.mayoclinic.org/comment/834314/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

There is a Facebook group called Myelofibrosis Support Group with almost 2000 members. If you don’t...

https://connect.mayoclinic.org/comment/1244466/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2025

@mirakrye Sorry to hear your diagnosis- I was also diagnosed with Myelofibrosis in 2025 but primary....

https://connect.mayoclinic.org/comment/1479767/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 2:07pm

Hello @derikburger and welcome to Mayo Clinic Connect. It sounds like you may have been diagnosed...

https://connect.mayoclinic.org/comment/674287/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2022

Hello @wellness3070, Connect members @jfinlay, @djr, @bijou have discussed Jakafi in the past as well; you...

https://connect.mayoclinic.org/comment/132602/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2017

Hello @susanvij, Teresa, @hopeful33250 has provided some great information, and I would also encourage you to...

https://connect.mayoclinic.org/comment/50515/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2017

Hi, in this video, it is not clear what new drug or treatment this Doctor is...

https://connect.mayoclinic.org/comment/1256699/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2025

My husband was diagnosed with myelofibrosis a month ago. He has had 6 platelet transfusions. His...

https://connect.mayoclinic.org/comment/1250056/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2025

Hi @raglus, I'm tagging @scottmatteo to make sure he sees your question about dietary changes. Have...

https://connect.mayoclinic.org/comment/859309/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: May 13, 2023

Welcome @iis. Are you asking whether the Jak2 mutation is hereditary? Here's more information that you...

https://connect.mayoclinic.org/comment/811076/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 13, 2023

I am on Besremi for Pre Fibrotic Primary Myelofibrosis. It is in second phase clinical trials...

https://connect.mayoclinic.org/comment/1573108/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

Welcome @create. I'm tagging a few members who may be familiar with your unique combination of...

https://connect.mayoclinic.org/comment/761571/

Discussion: Myeloproliferative neoplasm Anyone else have a similar diagnoses?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2022

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