Blood Cancers & Disorders Support Group

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Comments (2,233)

Hi Deryl, welcome to Mayo Clinic Connect. You'll notice that I moved your question to the...

https://connect.mayoclinic.org/comment/639410/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2021

I have had MGUS for 3 years. I have developed low Iron and anemia. Is this...

https://connect.mayoclinic.org/comment/796046/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

Hi Paulita, I can suggest that you keep researching all there is to this MGUS disease....

https://connect.mayoclinic.org/comment/1295570/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 3, 2025

https://connect.mayoclinic.org/comment/1361640/

Discussion: MGUS and pain

Support Group: Blood Cancers & Disorders

Posted: Aug 1, 2025

I changed my diet with MGUS IGG and another IGM and my numbers have dropped! I...

https://connect.mayoclinic.org/comment/1535699/

Discussion: To Stop Getting Sick Consider Adding Immunology to your CLL Team

Support Group: Blood Cancers & Disorders

Posted: Mar 26 9:27am

MGUS is a waiting game. I have IgA kappa light chain MGUS (8 years) and my...

https://connect.mayoclinic.org/comment/1029076/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

@debscullum62 Welcome to Mayo Clinic Connect. How did you find us? Here is information about MGUS...

https://connect.mayoclinic.org/comment/913774/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023

@4kleo Here is a link to the page that speaks about MGUS, from myeloma.org: https://www.myeloma.org/what-are-mgus-smm-mm As...

https://connect.mayoclinic.org/comment/1246905/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

Welcome @kaurashima, I moved your post to this related discussion: - MGUS Symptoms: What symptoms did...

https://connect.mayoclinic.org/comment/1043945/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

Hi @sstillwell, welcome. Let me bring some fellow MGUS members into this conversation like @kandc317 @iain49...

https://connect.mayoclinic.org/comment/626083/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

My IgA kappa MGUS was diagnosed when my kappa was less than 30 (normal is 3.30...

https://connect.mayoclinic.org/comment/1221958/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

@anneschanck https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362 That will give you a bit of information about MGUS. Typically, if you are...

https://connect.mayoclinic.org/comment/1198661/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

@dmdinapoli81 Initially diagnosed 1/24 with MGUS . IGG Lambda. Lambda flc 118.76 and Kappa flc 23.33....

https://connect.mayoclinic.org/comment/1548361/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Apr 12 5:30am

I too haver severe neuropathy and carpal tunnel. There are many people with MGUS with neuropathy...

https://connect.mayoclinic.org/comment/857515/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2023

@carlabaz Welcome to Mayo Clinic Connect. It often can be unsettling to hear a diagnosis, right?...

https://connect.mayoclinic.org/comment/1513813/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 5:04pm

There are definitely clinical trials, both ongoing and recruiting, concerning various aspects of MGUS. See https://clinicaltrials.gov/search?cond=MGUS...

https://connect.mayoclinic.org/comment/1234510/

Discussion: MGUS progression and excess weight

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

I've had both knees replaced and the MGUS didn't concern the surgeon. Everything went very well.

https://connect.mayoclinic.org/comment/1516985/

Discussion: Any concerns if you have MGUS and need joint replacement surgery?

Support Group: Blood Cancers & Disorders

Posted: Mar 1 8:08am

@theadosi The length you had MGUS to the time you converted to SMM. Sorry I wasn’t...

https://connect.mayoclinic.org/comment/1500022/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 8:36am

@rimord and @redvrm yes, although there are different classifications of MGUS with different risk stratification. Then...

https://connect.mayoclinic.org/comment/1475906/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Jan 6 1:23pm

Hi @116w72ndst, I'd like to add my welcome and to let you know that I moved...

https://connect.mayoclinic.org/comment/856534/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023