Blood Cancers & Disorders: Discussions | Page 4

I started Jakafi about two weeks ago and so far so good. Medicare now as a...

https://connect.mayoclinic.org/comment/1011282/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

I am about to start the drug Jakafi. Has anyone taken it and what were the...

https://connect.mayoclinic.org/comment/1269462/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 29 2:16pm

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27 7:38am

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

I had read in one article that Jakafi raises platelet levels which would increase clotting chances.

https://connect.mayoclinic.org/comment/751331/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

I have PV and have burning in my feet and calves. I’m taking Jakafi and low...

https://connect.mayoclinic.org/comment/856373/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

I have the very same side effects however I feel so much better then before Jakafi.

https://connect.mayoclinic.org/comment/914535/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

Hello, I heard the Jakafi is really expensive. I am happy that you are able to...

https://connect.mayoclinic.org/comment/1010332/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

I have been on Jakafi for four years. It has been very effective for my skin...

https://connect.mayoclinic.org/comment/1434972/

Discussion: JAKAFI anyone! I've been on it for 5 years

Support Group: Blood Cancers & Disorders

Posted: Nov 10 6:22am

Greetings, @papa6275 I have Polycythemia vera. After a couple of years, I no longer tolerated Hydroxyurea....

https://connect.mayoclinic.org/comment/914653/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

Just switched to Jakafi this past week. So far no improvement but I will give it...

https://connect.mayoclinic.org/comment/1279893/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 8:47am

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

Hello friends! I have been on JAKAFI for longer than a year I get terrible leg...

https://connect.mayoclinic.org/comment/1379113/

Discussion: Doe anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Aug 25 2:27pm

I hav never been told blood pressure medication makes Jakafi less effective. Did your doctor say...

https://connect.mayoclinic.org/comment/870450/

Discussion: Does Jardiance have serious interactions with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Yes I got a itchy rash on my ankles. Also ran a high fever. Doctor had...

https://connect.mayoclinic.org/comment/1350996/

Discussion: Developed Rash on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Jul 18 12:01pm

Our first experience with Jakafi was 3 years ago, my mom has ET (Jak2) her journey...

https://connect.mayoclinic.org/comment/1299993/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 8 4:28pm

Yes ! I have been diagnosed with MF , taking JAKAFI my lipid levels skyrocketed Low...

https://connect.mayoclinic.org/comment/1251867/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 6 1:29pm

I was diagnosed with ET in 1992. I was 46. It was found on a routine...

https://connect.mayoclinic.org/comment/1419750/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Oct 20 5:41pm

Hi again! If you read other comments about help with itching/burning , patients are taking JAKAFI...

https://connect.mayoclinic.org/comment/1363700/

Discussion: Severe itching with PV

Support Group: Blood Cancers & Disorders

Posted: Aug 4 3:05pm

@lynnevb and everyone, you may also be interested in these existing related discussions: - New to...

https://connect.mayoclinic.org/comment/1009560/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Blood Cancers & Disorders Support Group