Blood Cancers & Disorders Support Group | Page 4

Hello I have PV Just over two years. I’m doing well so far on Hydroxyurea with...

https://connect.mayoclinic.org/comment/1236483/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Jakafi has helped me. I do have fatigue occasionally but not nearly as bad as before.

https://connect.mayoclinic.org/comment/729457/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jul 22, 2022

Jakafi has been a game changer for me. Really helped with side effects of PV.

https://connect.mayoclinic.org/comment/1010006/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Jakafi is $1600 a month I have subsistence otherwise my medicare would not cover it

https://connect.mayoclinic.org/comment/896376/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2023

I am about to start the drug Jakafi. Has anyone taken it and what were the...

https://connect.mayoclinic.org/comment/1269462/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

@mickie6 That is great news! I also have PMF - and have not heard of the...

https://connect.mayoclinic.org/comment/1552681/

Discussion: Has anyone had the Jakifi box test? My Blood % is 0!

Support Group: Blood Cancers & Disorders

Posted: Apr 17 9:43am

I started Jakafi about two weeks ago and so far so good. Medicare now as a...

https://connect.mayoclinic.org/comment/1011282/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Hi @pamdg, You’re wondering if Jakafi can cause irregular heartbeat. I’m looking at the Drugs.com website...

https://connect.mayoclinic.org/comment/699161/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2022

I was diagnosed with Myelofibrosis last summer. My platelets were high and I had funny looking...

https://connect.mayoclinic.org/comment/1503617/

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 11:28pm

I have PV and have burning in my feet and calves. I’m taking Jakafi and low...

https://connect.mayoclinic.org/comment/856373/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

I had read in one article that Jakafi raises platelet levels which would increase clotting chances.

https://connect.mayoclinic.org/comment/751331/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2022

Hello, I heard the Jakafi is really expensive. I am happy that you are able to...

https://connect.mayoclinic.org/comment/1010332/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

I have the very same side effects however I feel so much better then before Jakafi.

https://connect.mayoclinic.org/comment/914535/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

@colran When I was originally diagnosed with ET in 2005 at the age of 50, I...

https://connect.mayoclinic.org/comment/1527344/

Discussion: ET management, Is anyone here taking Jakafi or Pegasus?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 9:58am

Have you tried anagrelide? That's what I've been taking for years. I couldn't handle hydroxy at...

https://connect.mayoclinic.org/comment/1564858/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 2 12:11pm

Just switched to Jakafi this past week. So far no improvement but I will give it...

https://connect.mayoclinic.org/comment/1279893/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2025

Greetings, @papa6275 I have Polycythemia vera. After a couple of years, I no longer tolerated Hydroxyurea....

https://connect.mayoclinic.org/comment/914653/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2023

Myelofibrosis JAK2 I’m currently on Jakafi and just completed cycle one of vidaza. White cells keep...

https://connect.mayoclinic.org/comment/813524/

Discussion: Massive spleen and dangerous low platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2023

I hav never been told blood pressure medication makes Jakafi less effective. Did your doctor say...

https://connect.mayoclinic.org/comment/870450/

Discussion: Does Jardiance have serious interactions with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023