Blood Cancers & Disorders Support Group

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Comments (486)

Yes I have itching again too. Worse before PV diagnosed, then it subsided and disappeared (meds?...

https://connect.mayoclinic.org/comment/817347/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

I take Claratin every day, ovcasionally Benadryl if itching is bad. Not happy about it, but...

https://connect.mayoclinic.org/comment/1221044/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2025

10 mg twice a day. Thx, I’ll ask around. Itching was a real problem and it...

https://connect.mayoclinic.org/comment/1201440/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

I have MDS, diagnosed last summer. My ferratin levels are consistently 800-1000. By January of this...

https://connect.mayoclinic.org/comment/898261/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

My itching was a one time only thing so I never needed to take anything once...

https://connect.mayoclinic.org/comment/1002648/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2024

Itching was the worst. Fatigue and headaches later. It’s a challenge but, I have more good...

https://connect.mayoclinic.org/comment/872058/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

I had terrible itching for a while and the dermatologist prescribed Triamcinolone Acetonide cream USP 0.1%...

https://connect.mayoclinic.org/comment/827002/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2023

I was diagnosed with PCV 3 months ago, but had itching symptoms since 2019. I tested...

https://connect.mayoclinic.org/comment/729287/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

I use Hydroxyzine 25mg up to three times per day as needed. It's a great drug....

https://connect.mayoclinic.org/comment/1512334/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 22 6:56pm

@madhornet Yes, the itching script was: Hydrocortinsone cream USP 2.5% and the other for the yeast...

https://connect.mayoclinic.org/comment/1432133/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

I've seen lots of comments here about itchy, dry skin, and unfortunately I experience it too....

https://connect.mayoclinic.org/comment/1203450/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2025

I was diagnosed with PCV in May 2022 , but started the itching symptoms in 2019...

https://connect.mayoclinic.org/comment/737537/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

@loribmt Hi Lori, thank you for your message. I am sorry to hear about your hematology...

https://connect.mayoclinic.org/comment/1524022/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 1:20pm

@joaniech2004 Good to hear you are much better and itching is under control. Again, like you...

https://connect.mayoclinic.org/comment/1538879/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 1 day ago

Hi Jacklyn. If you’re already on antidepressants and clonazepam make sure your doctor is aware before...

https://connect.mayoclinic.org/comment/1336795/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 28, 2025

I have polycythemia and that causes itching. And I do mean ITCHING. Prior to starting treatment,...

https://connect.mayoclinic.org/comment/744017/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 31, 2022

Does the hydroxyurea help with itching ? Also, has anyone out there gone to Moffit in...

https://connect.mayoclinic.org/comment/790300/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2022

itching on arms and legs, usually only at night. A serious lack of energy or maybe...

https://connect.mayoclinic.org/comment/1189780/

Discussion: Myelodysplastic syndrome (MDS) and skin itching

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

@becky1024 I have been on low dose chemo since last August. The low dose is because...

https://connect.mayoclinic.org/comment/731696/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

I have had CMML/Myeloproliferative disease for ten years and have tried everything for itching. I currently...

https://connect.mayoclinic.org/comment/1246622/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025