Blood Cancers & Disorders: Discussions | Page 4

The MPN Foundation is the one researching ET extensively. It's free to belong and they have...

https://connect.mayoclinic.org/comment/1014997/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 13 10:25am

@becky57, In addition to Ethan's welcome, I'd like to also invite @lisadej1, @akiannejad123, and @mjpm2406 who...

https://connect.mayoclinic.org/comment/278674/

Discussion: New dx of Post ET-MF

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2019

I have low iron but not anemic. Iron supplements are helping my low RBC. I take...

https://connect.mayoclinic.org/comment/1000612/

Discussion: Anyone take an iron supplement for low red blood cell count?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 11:20am

I was on hydroxyurea (Hydrea) for 7 years for Essential Thrombocythemia (aka way too many platelets)...

https://connect.mayoclinic.org/comment/1119537/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 7 12:23pm

Recently diagnosed with essential thrombocythemia and primary myelofibrosis with MPL mutation. Blood transfusions and iron infusions...

https://connect.mayoclinic.org/comment/764111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2022

Welcome to Mayo Connect, @rachelpabs. With your history of essential thrombocythemia, it’s important to have regular...

https://connect.mayoclinic.org/comment/960764/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2023

Well, this was a brand new question, so I thought I would start at VAERS -...

https://connect.mayoclinic.org/comment/723515/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2022

Hi @kapow I am 79 and was diagnosed a year ago with Essential Thrombocythemia and JAK2...

https://connect.mayoclinic.org/comment/887366/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Since there is no cure for Essential Thrombocythemia, and it is a progressive disease, why are...

https://connect.mayoclinic.org/comment/57937/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2012

Welcome to Connect, @livingwithet. Thank you for sharing your ET diagnosis and experience with @tessa and...

https://connect.mayoclinic.org/comment/1149070/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Sep 29 8:29am

I'm a very active 83 year old female JAK2 positive, essential thrombocythemia, on Hydrea 500 mg,...

https://connect.mayoclinic.org/comment/859943/

Discussion: JAK2 positive, high platelets and also PAH (diagnosed)

Support Group: Blood Cancers & Disorders

Posted: May 14, 2023

Hi @cshew, Rapamycin (Sirolimus) is a medication primarily used as an anti-rejection meditation for patients having...

https://connect.mayoclinic.org/comment/1153019/

Discussion: Reducing platelets with Rapamycin?

Support Group: Blood Cancers & Disorders

Posted: Oct 6 2:38pm

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Sep 22 2:54pm

Hi @esperanzam The other medications used in the treatment of Essential Thrombocythemia are Anagrelide and Alpha...

https://connect.mayoclinic.org/comment/792359/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Welcome to Mayo Connect @docoltun. Thank you for sharing your experience with ET and what’s been...

https://connect.mayoclinic.org/comment/898227/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2023

A high platelet count suggests Essential Thrombocythemia, but you need to confirm if that is the...

https://connect.mayoclinic.org/comment/252017/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2019

Hi @jola13, there are several members living with essential thrombocythemia (ET) here like @shenriq @jbgeorge @jackt00...

https://connect.mayoclinic.org/comment/876115/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023

I have gotten my platelets down to 388,000 but it has take a long time and...

https://connect.mayoclinic.org/comment/792897/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

After a diagnosis of Essential Thrombocythemia just before the Covid outbreak, (with Hydro treatment and fluctuating...

https://connect.mayoclinic.org/comment/781995/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

The standard of care by World Health Organization for essential thrombocythemia is a bone marrow biopsy...

https://connect.mayoclinic.org/comment/845709/

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

Blood Cancers & Disorders Support Group