Blood Cancers & Disorders Support Group

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Comments (893)

Welcome to Connect, @fonseca. You'll notice that I moved your message to this existing discussion so...

https://connect.mayoclinic.org/comment/113590/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2017

@panevills Having read the various comments here, my first question is to inquire if you are...

https://connect.mayoclinic.org/comment/1433560/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2025

To my knowledge CLL is not inherited

https://connect.mayoclinic.org/comment/1321733/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2025

Hi @arooney33. I’m still in shock over reading you have internal Poison Ivy that affected your...

https://connect.mayoclinic.org/comment/1317038/

Discussion: Newly diagnosed with chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: May 31, 2025

Welcome to Connect @licketysplit. Chronic Lymphatic Leukemia or CLL is generally a slowly developing blood condition...

https://connect.mayoclinic.org/comment/948176/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2023

160 mg 2x daily total of 320mg daily, CLL is getting better but this is 2nd...

https://connect.mayoclinic.org/comment/1477532/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 1:37pm

Welcome to Connect, @cal1960 Chronic lymphocytic leukemia (CLL) is a form of non Hodgkin’s lymphoma, generally...

https://connect.mayoclinic.org/comment/1269642/

Discussion: Up to date info

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Watch and Wait is likely appropriate, assuming you’ve had stable lymphocyte counts and other markers are...

https://connect.mayoclinic.org/comment/1451832/

Discussion: CLL diagnosis: Anyone on watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2025

Hi @eam32, I saw your message elsewhere about chronic lymphocytic leukemia (CLL). I'm tagging you in...

https://connect.mayoclinic.org/comment/677058/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Feb 2, 2022

CLL: Chronic Lymphocytic Leukemia

https://connect.mayoclinic.org/comment/273083/

Discussion: CLL and Managing an Enlarged Spleen

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2019

I was told they don't do chemo for CLL anymore. My WBC was 241 when I...

https://connect.mayoclinic.org/comment/1477569/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 2:42pm

Hello @mumzie, welcome to Connect. If you don't mind sharing a bit more, have you been...

https://connect.mayoclinic.org/comment/165761/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2018

Can you share your experience with CLL

https://connect.mayoclinic.org/comment/789168/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2022

Taking it for CLL for 10 weeks Working well

https://connect.mayoclinic.org/comment/1347292/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Mayo Clinic cannot recommend that EGCG be used by CLL patients. Green tea trials haven't been...

https://connect.mayoclinic.org/comment/799939/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Hi @dharma, You were recently diagnosed with CLL, which is a chronic and often slowly developing...

https://connect.mayoclinic.org/comment/1094382/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

NETs is the acronym for neuroendocrine tumor. See why we prefer not to have to spell...

https://connect.mayoclinic.org/comment/908767/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Welcome to Connect, @lusting! You made me chuckle with your, Yikes! I had one of those...

https://connect.mayoclinic.org/comment/1011689/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2024

@jimroscoe, welcome. I hope you've seen the helpful posts by fellow members @nana120 @normahorn @dringge. Here's...

https://connect.mayoclinic.org/comment/942549/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2023

Second opinion recommended by a CLL specialist

https://connect.mayoclinic.org/comment/908840/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2023