Blood Cancers & Disorders Support Group

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Comments (2,233)

Gabapentin interacts with a medicine that I am on, so I wouldn't be able to use...

https://connect.mayoclinic.org/comment/1051036/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

I also have leg and joint pain. The knees and hips. It’s not a bone on...

https://connect.mayoclinic.org/comment/970678/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2023

I'm not bothering for now...tried a few times. I could call again, but my labs are...

https://connect.mayoclinic.org/comment/1350423/

Discussion: No appointment scheduled for my labs at Mayo...??

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

We are here for you. I feel alone too. Are you saying that you’ve had MGUS...

https://connect.mayoclinic.org/comment/1160202/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2024

Hi Allstaedt57, I am so sorry about the death of your dear husband. I really appreciate...

https://connect.mayoclinic.org/comment/910854/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2023

Finally received the results of my BMB. Polycythemia Vera was confirmed. Additionally, my MGUS has progressed....

https://connect.mayoclinic.org/comment/714838/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Jun 6, 2022

I also have peripheral neuropathy from MGUS, worse on my left side, and I don’t know...

https://connect.mayoclinic.org/comment/1296608/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 4, 2025

@sharon55 Hi Sharon, I’m glad you found us too. I’m sorry about your back issues. It’s...

https://connect.mayoclinic.org/comment/817334/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2023

Question… when one crosses from MGUS to smoldering MM one is also immunocompromised, are we not?...

https://connect.mayoclinic.org/comment/747004/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2022

Hi @dazlin, you wrote elsewhere: "I have a low Mgus…yet my drs reports say, abdominal IGG...

https://connect.mayoclinic.org/comment/737069/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2022

No supplements specifically related to MGUS, I do regularly take Magnesium, B-Complex, C and D3 for...

https://connect.mayoclinic.org/comment/1156651/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

I discovered it while going over some blood work for my liver enzymes. They were elevated...

https://connect.mayoclinic.org/comment/1104120/

Discussion: MGUS FLC Ratio decreasing: Concerned

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2024

I was diagnosed with mgus April 2023, just diagnosed with lymphocytic colitis with colonoscopy biopsy. Starting...

https://connect.mayoclinic.org/comment/1035480/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

@suzye How are you doing? How is your MGUS and osteoporosis situations affecting your everyday life?...

https://connect.mayoclinic.org/comment/264602/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2019

@steiner ...I have messaged my care team again...last week. Just asking if my Dr no longer...

https://connect.mayoclinic.org/comment/1269625/

Discussion: No appointment scheduled for my labs at Mayo...??

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2025

Hi @andrew1955, you're right. @pmm knows what it is like to be diagnosed with MGUS and...

https://connect.mayoclinic.org/comment/1195514/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Kappa can be high and not have to be addressed but M spike means you may...

https://connect.mayoclinic.org/comment/1180469/

Discussion: Kappa light chain is elevated: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2024

Thank you so much for your reply. I'm sorry to hear that you've been through so...

https://connect.mayoclinic.org/comment/958139/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

Hello @dazlin. I'd like to invite @gingerw, @gmajudy, @stuckonu, @susangs, and @canderson12 (from this conversation, https://connect.mayoclinic.org/discussion/mgus-2d464e/)...

https://connect.mayoclinic.org/comment/292600/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

You should ask the doctor you trust with this question, or see an oncologist and ask....

https://connect.mayoclinic.org/comment/264604/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Sep 29, 2019