Blood Cancers & Disorders Support Group

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Comments (1,895)

I'm a patient at mayo clinic and I get tested every 6 mos to monitor my...

https://connect.mayoclinic.org/comment/296794/

Discussion: Leukopenia ( low white blood count)

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2020

Hi Dazln, My MGUS was discovered in 2012. To date my M protein has remained low,...

https://connect.mayoclinic.org/comment/292606/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

I was thought to have POEMS and was advised to start chemotherapy. Having had a year...

https://connect.mayoclinic.org/comment/1198694/

Discussion: MGUS and Chemotherapy

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

Thank you, Patty. Up until now, I have had good luck in getting answers to my...

https://connect.mayoclinic.org/comment/1044098/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Hello, sorry about your diagnosis. I’ve found MGUS/ Smoldering Myeloma or Multiple Myeloma all affect people...

https://connect.mayoclinic.org/comment/1019136/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2024

Hi Ginger, That support is really helpful; thanks so much. He just had more CT scans...

https://connect.mayoclinic.org/comment/1249932/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 11:37pm

I am new on this. I have diagnosed with MGUS and iron deficiency and cud stage...

https://connect.mayoclinic.org/comment/856133/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2023

Hi, Thank you for your postings. I also have MGUS (M-spike protein 0.4) and neuropathy in...

https://connect.mayoclinic.org/comment/754086/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2022

Regardless of CT, how do you feel? Are Pft’s/oxygen good? MGUS May be incidental finding due...

https://connect.mayoclinic.org/comment/821060/

Discussion: MGUS + pulmonary sarcoidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I also have the woozines Ever day. It helps me to get out and walk. I...

https://connect.mayoclinic.org/comment/843086/

Discussion: Wooziness and MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

What became of your two conditions? I believe I might have PMR secondary to MGUS, or...

https://connect.mayoclinic.org/comment/1050476/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

I am so glad that you are being able to contribute to further studies. I am...

https://connect.mayoclinic.org/comment/959345/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hello everyone, I have found these scientific works published in 2021, on effects caused on the...

https://connect.mayoclinic.org/comment/823061/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2023

CRISPR : Gene Therapy (Experimental/Research Stage)**: - While not yet mainstream, gene therapies aim to correct...

https://connect.mayoclinic.org/comment/1163052/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

@ajbonett MGUS is often found while another health issue is being investigated. If we look at...

https://connect.mayoclinic.org/comment/930741/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2023

I also have MGUS diagnosed 12 years ago. Everything has been pretty good numbers increasing slowly...

https://connect.mayoclinic.org/comment/719801/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

@nick86 Exactly what @pmm said! MGUS is not a death sentence. I did not follow the...

https://connect.mayoclinic.org/comment/939597/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

Thank you . I’m not too sure on the associated cause of kidney failure (if it’s...

https://connect.mayoclinic.org/comment/915813/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2023

I have been diagnosed with mgus for a bit over a year. I also have lung...

https://connect.mayoclinic.org/comment/777875/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

@colleenyoung Thank you for tagging me in to this. My path to MGUS was a little...

https://connect.mayoclinic.org/comment/74595/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2020