Blood Cancers & Disorders Support Group

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Comments (1,399)

My doctor says platelets should be between 140 - 450. I have heard different ranges but...

https://connect.mayoclinic.org/comment/1029002/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

I’m female, 63, with MPL mutation. My platelets were 1073 in February 2022, now 453. Pretty...

https://connect.mayoclinic.org/comment/1007243/

Discussion: Anyone else with ET have mutation in MPL gene?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2024

Hi as I’ve recently been diagnosed with PV and have the JAK2 mutation I’m reading all...

https://connect.mayoclinic.org/comment/1437594/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2025

They have differentiated treatment for CALR's slightly, and I'm hoping that all of us who were...

https://connect.mayoclinic.org/comment/1313362/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 26, 2025

About 6 months ago a blood test showed very high platelet counts. Next, I tested positive...

https://connect.mayoclinic.org/comment/1236870/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2025

Recent update: I was diagnosed 3 years ago/ Jak2 mutation. I had already had a small...

https://connect.mayoclinic.org/comment/982523/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

I was diagnosed with ET with JAK2 mutation a little over a year ago and even...

https://connect.mayoclinic.org/comment/1448598/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2025

I’m 56 and started in Nov with one pill a day. When I reached 842 that...

https://connect.mayoclinic.org/comment/1014323/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2024

My husband was just told by the hematologist he was referred to that he has Jak2...

https://connect.mayoclinic.org/comment/328590/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Cristinia, I also feel lucky that of all cancers I could I acquired PV. My husband...

https://connect.mayoclinic.org/comment/1278598/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

Good morning, @paisleyshakell. From my personal experience of having an aggressive form of leukemia with three...

https://connect.mayoclinic.org/comment/1122731/

Discussion: Thrombocythemia JAK2 - is it ok to have an MRI with dye?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

@misty45 Thank you so very much for sharing your ET experience. My daughter ( age 39)...

https://connect.mayoclinic.org/comment/194272/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2019

Good morning, @sudutoo. I hope you have your reading glasses on! You have a lot of...

https://connect.mayoclinic.org/comment/1050553/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

I don't live in a big city, but when I got my PV diagnosis I got...

https://connect.mayoclinic.org/comment/870438/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

My platelets have been increasing since 2018 and are currently at 610. My bloodwork confirmed the...

https://connect.mayoclinic.org/comment/829902/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Recently diagnosed in November with pv/et, jak2+. Originally on hydrox 1000 daily with phlebotomy x 3...

https://connect.mayoclinic.org/comment/821163/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023

I am ET JAK2+ and 79 years old. I too have experienced the sharp, sudden headaches....

https://connect.mayoclinic.org/comment/1286785/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2025

Hi, I found your post and was just wondering how you got to have bone marrow...

https://connect.mayoclinic.org/comment/1219760/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2025

Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...

https://connect.mayoclinic.org/comment/891068/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I'm also CALR. Started on 500 mg HU daily when platelets approached 800. Took a year...

https://connect.mayoclinic.org/comment/881192/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

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