Blood Cancers & Disorders Support Group

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Comments (2,270)

I have PV and though its not ET is one of three myloproliferative neoplasms..I take a...

https://connect.mayoclinic.org/comment/1091667/

Discussion: Any correlation between Essential Thrombocythemia & high B12?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health...

https://connect.mayoclinic.org/comment/1196339/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

We each experience ET and HU differently. But we all have one thing in common: When...

https://connect.mayoclinic.org/comment/1425847/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2025

Diagnosis is an awful shock -- please know your friends here are sending love and support....

https://connect.mayoclinic.org/comment/1088433/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

I also have ET JAK2 diagnosed in June 2023 at age 72. Platelets were higher than...

https://connect.mayoclinic.org/comment/1312680/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

At the risk of getting back negative feedback I am going to say the experts that...

https://connect.mayoclinic.org/comment/992267/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2024

@jak2mpnpositive I had ET MPN for many years and now have myelofibrosis due to the JAK2...

https://connect.mayoclinic.org/comment/1489467/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 12:36pm

Hi @arti4 I read over another discussion you started regarding Hydroxyurea for ET, and see that...

https://connect.mayoclinic.org/comment/728880/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

yes, I had hair thinning first year. My nails are still splintering and still on HU....

https://connect.mayoclinic.org/comment/816517/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2023

I am TN ET. I started HU in March my platelets were 460,000 by early July....

https://connect.mayoclinic.org/comment/1356712/

Discussion: What is the most effective way to take hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

I am 66. Years old and my dr is happy with numbers under 600. I started...

https://connect.mayoclinic.org/comment/1030067/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2024

ET CALR 3 yrs hydroxy, platelets have been like tennis balls, been over 1 mil a...

https://connect.mayoclinic.org/comment/892638/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2023

I am so sorry for what you're going through. After braving meeting the challenge of ET...

https://connect.mayoclinic.org/comment/1202835/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

https://www.nccn.org/patients/guidelines/content/PDF/mpn-patient.pdf Here is a wonderful resource. I have had ET since 2003. I am 70 yo...

https://connect.mayoclinic.org/comment/1187481/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2024

Yes, HU is classified as a chemo drug. It is widely used for sickle cell anemia,...

https://connect.mayoclinic.org/comment/1264740/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2025

THANK YOU! My hemotologist/oncologist says exactly the same thing!! She said it is a blood disorder....

https://connect.mayoclinic.org/comment/877796/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

My hair started "shedding" a few years before I went through The Change, likely before ET...

https://connect.mayoclinic.org/comment/852111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

sregiani, Was the reason your doctor your doctor told you not to get your heart rate...

https://connect.mayoclinic.org/comment/869759/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

@sarahgault Hi, I have ET and Jak2 and take 1000mg HU Monday Wednesday and Friday and...

https://connect.mayoclinic.org/comment/1555364/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: Apr 20 1:12pm