Blood Cancers & Disorders Support Group

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Comments (2,234)

Also... I dont understand why s.s. deducts hundreds of dollars each month for Medicare, then my...

https://connect.mayoclinic.org/comment/233250/

Discussion: Tests for blood cancer ...the bills!!

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2018

I am having my second test done also and an xray for bone imaging and also...

https://connect.mayoclinic.org/comment/830619/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

Please tell me what NETs are. I also have had CLL and MGUS for several years...

https://connect.mayoclinic.org/comment/908564/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

### **Risk Stratification in MGUS: Low, Intermediate, and High Risk** MGUS (Monoclonal Gammopathy of Undetermined Significance)...

https://connect.mayoclinic.org/comment/1179995/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

I was diagnosed with Mgus about 20 years ago and told there was a small chance...

https://connect.mayoclinic.org/comment/884432/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Like me, you had a parent with MM, making us more high risk. (My dad was...

https://connect.mayoclinic.org/comment/1147939/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2024

@amyboylan1 Hello and welcome to the blood cancers discussion. MGUS is not cancer. That’s the good...

https://connect.mayoclinic.org/comment/1112179/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

@4kleo Welcome to the Mayo Clinic Connect blood disorders group. I was diagnosed, like most are,...

https://connect.mayoclinic.org/comment/1245322/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2025

@angiew Welcome to the Mayo Clinic Connect. You’ve had a lot to deal with health-wise. It’s...

https://connect.mayoclinic.org/comment/1053687/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

@stevonmfl, I noticed that you wanted to add a URL to a video. You will be...

https://connect.mayoclinic.org/comment/676712/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2022

I would like (and am going to get) a baseline via bmb as well. Also a...

https://connect.mayoclinic.org/comment/1295692/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 3, 2025

@franciscomacias Hello! there are several discussion threads on diet and MGUS. Here is one. https://connect.mayoclinic.org/discussion/plant-based-eating-to-lower-the-chance-of-mgus-progressing-to-myeloma/ I...

https://connect.mayoclinic.org/comment/1248304/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

My IgA kappa MGUS was diagnosed 8 years ago. Still asymptomatic although the kappa is now...

https://connect.mayoclinic.org/comment/1184185/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024

@bojean, the reason my MGUS was found was because my Hb was low. My PCP stated...

https://connect.mayoclinic.org/comment/1158162/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Oct 16, 2024

@lasfarolas Welcome to Mayo Clinic Connect. Your experience with MGUS seems to follow what many people...

https://connect.mayoclinic.org/comment/781571/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

I was diagnosed with MGUS a year ago. I had insisted on a new nephrologist due...

https://connect.mayoclinic.org/comment/74579/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2018

Hello @dazlin. Welcome to Mayo Clinic Connect! You will notice that I merged your question into...

https://connect.mayoclinic.org/comment/106665/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2018

Glad to hear you’ve had MGUS 23 years! I’m going on 4 years myself. Can you...

https://connect.mayoclinic.org/comment/1340652/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2025

Your ratio is normal and with no abnormal protein I don’t think you have MGUS or...

https://connect.mayoclinic.org/comment/1318535/

Discussion: Should I Be Concerned? Blood test suggestive of MGUS

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

Also there has been some research out of Memorial Sloan Kettering that indicates plant based diets...

https://connect.mayoclinic.org/comment/1392876/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2025