Blood Cancers & Disorders: Discussions | Page 38

Good morning, @jps01 I think we’re getting to be old friends here…I’m always popping up with...

https://connect.mayoclinic.org/comment/929726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...

https://connect.mayoclinic.org/comment/146305/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2020

Hi & thank you for the links. It really helps to stay informed & read &...

https://connect.mayoclinic.org/comment/1229968/

Discussion: Low hemoglobin and enlarged liver and spleen

Support Group: Blood Cancers & Disorders

Posted: Feb 5 10:14am

Rhodys, when my husband was at his worst and was using a walker (which he had...

https://connect.mayoclinic.org/comment/1251226/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 5 4:27pm

Hi @drawlings0803. I’m so glad to hear you had such a great visit with your new...

https://connect.mayoclinic.org/comment/1264353/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 22 4:59pm

Mom is still feeling great…just had 88th birthday…. I find she’s a little pale some days...

https://connect.mayoclinic.org/comment/1314000/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: May 27 11:01am

deb13, Lori and all This page has been quiet!! I need to say once again that...

https://connect.mayoclinic.org/comment/1165813/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 31, 2024

Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased...

https://connect.mayoclinic.org/comment/1185598/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

I have been in hydroxy for 6 weeks now. I take 2(500mg) a day. I was...

https://connect.mayoclinic.org/comment/1119123/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

rayj- I had a TP53 gene mutation. It is amazing to learn about new drug therapies....

https://connect.mayoclinic.org/comment/1087389/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 15, 2024

Good morning, @marnix! I remember about 25? years ago, a close friend’s mother was diagnosed with...

https://connect.mayoclinic.org/comment/1072120/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Brenda, indeed I have (had) a very full life, and continue to be busy. But (there...

https://connect.mayoclinic.org/comment/963920/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2023

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Hi Howard, I’d been wondering how you’re doing on the chemo. You asked me in another...

https://connect.mayoclinic.org/comment/879927/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Hi Janet. I understand your desire for quality of life over quantity. There were days I...

https://connect.mayoclinic.org/comment/986383/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

Hi Mary, Boy do I ever have memories flooding my brain this morning. Those months before,...

https://connect.mayoclinic.org/comment/1072253/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 21, 2024

After sliding down the hill with MDS/MF for years, I finally reached a very critical point....

https://connect.mayoclinic.org/comment/1372423/

Discussion: My MDS does not respond to treatments. What's next?

Support Group: Blood Cancers & Disorders

Posted: Aug 17 7:54am

I am 66 years young and was diagnosed with MDS syndrome #5 , I am asymptomatic...

https://connect.mayoclinic.org/comment/1243996/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23 5:10pm

I will answer the bone marrow test. First let me say I had MDS, and I...

https://connect.mayoclinic.org/comment/1108465/

Discussion: should I do more testing?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

Brenda, you had asked me three questions a "while" back: 1- Could you explain what your...

https://connect.mayoclinic.org/comment/963237/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Blood Cancers & Disorders Support Group