Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

894 total results

Comments (810)

My husband and I were also totally caught off guard by his diagnosis! We are both...

https://connect.mayoclinic.org/comment/799006/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

@zephyr, welcome. You mention the Mayo Clinic study conducted for CLL. You may be interested in...

https://connect.mayoclinic.org/comment/708538/

Discussion: Diagnosed with small lymphocytic lymphoma (SLL)

Support Group: Blood Cancers & Disorders

Posted: May 15, 2022

You're incorrect, some of us do have it spontaneously regress. I'm one of the 2%. I...

https://connect.mayoclinic.org/comment/1026763/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Thank you for your information njhornung. It is sometimes hard to ask the right questions from...

https://connect.mayoclinic.org/comment/951756/

Discussion: Possible upcoming lymphoma or leukemia diagnosis. What to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

I was also given a diagnosis of MGUS. This was about nine months ago shortly before...

https://connect.mayoclinic.org/comment/763611/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Hi @carl50 Welcome to Mayo Clinic Connect. Members aren’t medical professionals so we can’t diagnose health...

https://connect.mayoclinic.org/comment/623208/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021

Hi @prayerful4ever You’re in absolutely the right place. We have your back here! ☺️ There are...

https://connect.mayoclinic.org/comment/1318193/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 1 8:29pm

@fonseca, do you have a first name .. makes it more personal! I can only speak...

https://connect.mayoclinic.org/comment/113591/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 10, 2017

I too have leukemia, mine is CLL. It was quite a shock, when I complained of...

https://connect.mayoclinic.org/comment/1009457/

Discussion: I just discovered I have leukemia

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

My mother had CLL at 50, and my niece was diagnosed with ET at 15….then I...

https://connect.mayoclinic.org/comment/658776/

Discussion: Primary Myelofibrosis diagnosis in 40’s

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2021

Oh my goodness, @jerrysgirl3, you’re dealing with so much right now. I’m such a hugger and...

https://connect.mayoclinic.org/comment/927527/

Discussion: Haptoglobin RBC major issues

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2023

Hi @eam32 Hopefully I can help clear that up for you. In my understanding, Leukemia in...

https://connect.mayoclinic.org/comment/700861/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2022

I have been dealing with fluid in my left ear and muffled hearing since July...tried everything...

https://connect.mayoclinic.org/comment/113608/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2017

I was diagnosed in November 2023 and had a fall in December 2023. Broke my humerus...

https://connect.mayoclinic.org/comment/1326647/

Discussion: CLL, Spontaneous Regression

Support Group: Blood Cancers & Disorders

Posted: Jun 13 6:58pm

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13 2:31pm

This is an interesting article and wow, would that pill have been great for me 30...

https://connect.mayoclinic.org/comment/1129430/

Discussion: Hot Flashes with CLL

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2024

Hello Lori, Thank you so much. I have been anemic for a very long time and...

https://connect.mayoclinic.org/comment/1070977/

Discussion: Myelodysplastic Syndrome and Sjogren's

Support Group: Blood Cancers & Disorders

Posted: May 19, 2024

Well, now I’m all misty-eyed, thank you. ☺️ And I have an earworm for the day…you...

https://connect.mayoclinic.org/comment/634003/

Discussion: CLL - newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2021

Good morning. Yes, I have occasional bouts of chills. Night before last, could not get warm...

https://connect.mayoclinic.org/comment/1009436/

Discussion: CLL - Symptoms at Stage 0

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Hello everyone. I was recently diagnosed with cll. I also have thyroid cancer and renal cell...

https://connect.mayoclinic.org/comment/847682/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 22, 2023