Blood Cancers & Disorders Support Group

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Comments (905)

@raye There is an active discussion in the Transplants group, about Evusheld, that you will no...

https://connect.mayoclinic.org/comment/782513/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@marco88 Lee, my kidney disease is separate from the Revlimid issue. I was tested and found...

https://connect.mayoclinic.org/comment/1199568/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

@omemee That darned patient portal. I am always snagging a glance at it way before my...

https://connect.mayoclinic.org/comment/1056969/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 25, 2024

Hi! I’m new to the site! I was diagnosed with MULTIPLE MYELOMA in 2018. I was...

https://connect.mayoclinic.org/comment/1479001/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 10 2:05pm

Welcome to Connect @jstpeachey! I know I shouldn’t but I just have to use your @name...

https://connect.mayoclinic.org/comment/889456/

Discussion: One-week pre Autogolous BMT: I'm afraid I'm not prepared

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 3, 2023

I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...

https://connect.mayoclinic.org/comment/1232582/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

@bocky “Getting old is no fun.” Indeed! I feel that! One of the things that has...

https://connect.mayoclinic.org/comment/1155901/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

Wow, so much to go through. I was primary care giver for my parents. Dad had...

https://connect.mayoclinic.org/comment/1534356/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Mar 24 11:41am

Hello Marie, @honeybeemarie It is confusing. At least it was for me. I’m so glad you...

https://connect.mayoclinic.org/comment/977233/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2023

@amber199 Amber I'm really sorry that you had that experience with your hem/onc doc. Some of...

https://connect.mayoclinic.org/comment/1253233/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Mar 8, 2025

Some comments I found. I have taken tumeric capsules for general inflammation. Here are some interesting...

https://connect.mayoclinic.org/comment/1124648/

Discussion: Finding the best Curcumin

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2024

Hi Ginger, I had a total knee done in 2016 and in 2019 it got infected...

https://connect.mayoclinic.org/comment/662727/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2021

@pmm Patty, your words are without a doubt, calming for many to read. @steffiney and @milo3986...

https://connect.mayoclinic.org/comment/891288/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

@roseyd As @colleenyoung mentioned, I have CKD [Chronic Kidney Disease], now Stsge 5 and am on...

https://connect.mayoclinic.org/comment/793741/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

Hi @agent007 (love the name and I’m sure there’s a story!) It’s very good news that...

https://connect.mayoclinic.org/comment/747379/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

@omemee There can be several causes of foamy urine. If you have a full bladder, and...

https://connect.mayoclinic.org/comment/725241/

Discussion: Question to ask about MGUS Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2022

MGUS is a condition that involves an abnormal protein produced in the bone marrow by plasma...

https://connect.mayoclinic.org/comment/1135835/

Discussion: How high has anyone seen Lambda free light chain go with Mgus?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2024

@freespirit60 Let's start with the diagnosis of osteoporosis. Has your primary doctor referred you to an...

https://connect.mayoclinic.org/comment/1468646/

Discussion: Seeking advice: MGUS and osteoporosis with severe bone pain?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2025

Good morning, @thenester, I’d like to officially welcome you to Mayo Clinic Connect. You can already...

https://connect.mayoclinic.org/comment/1460583/

Discussion: Neutropenia and thrombocytopenia 100+ days after autologous Stem cell

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 14, 2025

Unresponsiveness from a medical team is very concerning. I don't know how invested you are in...

https://connect.mayoclinic.org/comment/1288831/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 24, 2025