Blood Cancers & Disorders: Discussions | Page 36

Hi Lynne, I am also triple negative ET. You’re the first person that I’ve “met” on...

https://connect.mayoclinic.org/comment/1246167/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 26 6:40pm

Hi @rosereb. Hemoglobin and hematocrit are based on whole blood numbers and are dependent on plasma...

https://connect.mayoclinic.org/comment/1131371/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2024

Hi Tessa My mum was diagnosed with ET when she went to routinely donate blood. She...

https://connect.mayoclinic.org/comment/1069140/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

I think we all have to do our own research and listen to our own doctors....

https://connect.mayoclinic.org/comment/994348/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2024

I was diagnosed with ET with Jak2 by accident 2005. My 1st. Hematologist started me on...

https://connect.mayoclinic.org/comment/966728/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Good question! I have been going over this in my mind for a couple of weeks....

https://connect.mayoclinic.org/comment/788217/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Hello! So I was recently diagnosed with ET as my platelets rose from 300-to 650 in...

https://connect.mayoclinic.org/comment/781132/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

I am 65 JAK2 positive ET. My hematologist has me on low dose aspirin (1 per...

https://connect.mayoclinic.org/comment/778819/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs...

https://connect.mayoclinic.org/comment/788294/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

My decision to take HU….. I am 78, My platelets were slowly rising, In June 2022...

https://connect.mayoclinic.org/comment/778663/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Hi, welcome to the “scary” club. I’ve had ET for a few months now, but was...

https://connect.mayoclinic.org/comment/834119/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout...

https://connect.mayoclinic.org/comment/1245157/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 9:49am

My platelets were over 600 and approached 1000 before being diagnosed with ET /JAK2. Initial dosing...

https://connect.mayoclinic.org/comment/1221139/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 25 8:45am

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

I have been prescribed Inegra, which is a combo of Iron and Vitamin C and is...

https://connect.mayoclinic.org/comment/1239853/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 18 11:20am

My platelets were normal until I started the Covid vaccines. I have talked with my oncologist...

https://connect.mayoclinic.org/comment/1035227/

Discussion: Do vaccines like MMR or TB tests affect Bone Marrow Biopsy findings?

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2024

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There...

https://connect.mayoclinic.org/comment/1086347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

I have ET Jak2 and I understand that we all react differently to medications....I have seen...

https://connect.mayoclinic.org/comment/966274/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

My platelets have increased over the past few months, now seeing a hematologist who just confirmed...

https://connect.mayoclinic.org/comment/833990/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Blood Cancers & Disorders Support Group