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Comments (1,382)

Hello. You made me look up Chuvash. Interesting. I have PV/JAK2. So, you write you’ve had...

https://connect.mayoclinic.org/comment/1479523/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 10:12am

Hi mdterp76, Thank you for posting. I do have high platelet but less than one million....

https://connect.mayoclinic.org/comment/1221787/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

Dear PinkFlamingo, Wow!! Sorry for what you are going through. I had the JAK2 blood work...

https://connect.mayoclinic.org/comment/836159/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Hello themyth, I have been able to work a very physical job. I did and do...

https://connect.mayoclinic.org/comment/821972/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Thank you for your response. Since JAK2 test was negative, I chose to go with phlebotomy....

https://connect.mayoclinic.org/comment/1370131/

Discussion: What hematocrit (HCT) targets indicate phlebotomy needed for PVC?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

I do have a question. I was just diagnosed with JAK2 ET. Platelets at 790 and...

https://connect.mayoclinic.org/comment/1298528/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 6, 2025

Hey Lisa! I have pretty Much all The same Symptoms and am JAK2 pos. My platelets...

https://connect.mayoclinic.org/comment/1162393/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I...

https://connect.mayoclinic.org/comment/928250/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Hi @cindyem I just read another comment you posted about having PV and anemia. From information...

https://connect.mayoclinic.org/comment/884148/

Discussion: Does anyone have information on PV with a low hemoglobin/ red count

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

Good morning, @pinkflamingo. Your @name made me smile and think fondly of Florida this spring morning....

https://connect.mayoclinic.org/comment/836087/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

I have not been total diagnosed yet. See my hematologist 3-5-26. I have a normal spleen...

https://connect.mayoclinic.org/comment/1515252/

Discussion: What vitamins to avoid when taking Hydrea (hydroxyurea) for ET JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 26 4:37pm

I am 71 yo female, reasonably active, recently diagnosed with Jak2, with platelets rising to 750...

https://connect.mayoclinic.org/comment/887265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

My Polycythemia Vera and JAK2 positive test and diagnosis was on Nov. 25, 2022. After starting...

https://connect.mayoclinic.org/comment/803537/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

You may find that despite having the JAK2 mutation, your life may not be any noticeably...

https://connect.mayoclinic.org/comment/194269/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

@nypara66 Hi! Thank you for your advice. Unfortunately I did not test positive for Jak2 so...

https://connect.mayoclinic.org/comment/1466273/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2025

My brother and I both have the mutation courtesy of the JAK2 which resulted in no...

https://connect.mayoclinic.org/comment/1047855/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

I have ET with JAK2 mutation. It took 22 weeks taking 500mg HU once daily to...

https://connect.mayoclinic.org/comment/1036856/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

I have ET/Jak2. Low iron but I am not anemic. The fatigue did not start until...

https://connect.mayoclinic.org/comment/1017214/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

My platelets numbers were similar to yours in January, plus blood work identified a Jak2 mutation....

https://connect.mayoclinic.org/comment/988747/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

Hi @jewelfaux. The JAK2 mutation can be discovered/diagnosed with blood work. It isn’t necessary to have...

https://connect.mayoclinic.org/comment/975772/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023