Blood Cancers & Disorders Support Group

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Comments (899)

Re: connection between PAD and PV....I have been diagnosed recently with both PAD and PV. I...

https://connect.mayoclinic.org/comment/928250/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

@nellieblue I have had cll for 71/2 years. In Nov 2014 I started in a clinical...

https://connect.mayoclinic.org/comment/101834/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 21, 2016

@sirbob Hi Bob, it’s my pleasure to meet you. I’m Lori, one of the mentors for...

https://connect.mayoclinic.org/comment/603891/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2021

Hi @prayerful4ever I agree with @suetex, ‘predictions aren’t reality’. If I paid attention to my ‘odds...

https://connect.mayoclinic.org/comment/1318804/

Discussion: Latest blood draw

Support Group: Blood Cancers & Disorders

Posted: Jun 2, 2025

Hi jlh1, In my case, after 6 months and many tests, I ended up being diagnosed...

https://connect.mayoclinic.org/comment/1166662/

Discussion: Waldenstrom's, CLL or MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 2, 2024

Thank you for sharing the video. The drugs you mentioned are a great advancement for treating...

https://connect.mayoclinic.org/comment/846018/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2023

My blood counts, in particular the increase rate of my lymphocytes and declining RBC counts, indicated...

https://connect.mayoclinic.org/comment/1474900/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 8:34am

I was diagnosed with cll in Feb of this year. I thought I was going through...

https://connect.mayoclinic.org/comment/1398430/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Hi. I was diagnosed B-PLL at the end of 2017. I didn't find any discussion groups...

https://connect.mayoclinic.org/comment/211065/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2019

lancaster1963: A few suggestions: 1. Don’t be in a hurry to get treatment. Seek a second...

https://connect.mayoclinic.org/comment/1080851/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

@dougmann I'm an Australian male aged 69 and live in Queensland Australia. I was diagnosed with...

https://connect.mayoclinic.org/comment/113616/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2017

Welcome to Connect, @answerseeker. You know you body better than anyone and when something feels ‘off’...

https://connect.mayoclinic.org/comment/900669/

Discussion: Test Results and Prone to CLL based on DNA test

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

I've been on IVIG since 2010. Developed Pyoderma Gangrenosum in about 2015 as a result of...

https://connect.mayoclinic.org/comment/1094487/

Discussion: Anybody on Treatment for CLL? What kind of treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 26, 2024

Following a case series publication by Dr. Shanafelt, the National Cancer Institute sponsored clinical trials through...

https://connect.mayoclinic.org/comment/803555/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

@gmack, do you have a first name, more personal. I am NOT an expert in this...

https://connect.mayoclinic.org/comment/113594/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2017

Melvin is correct. My Oncologist/Hematologist told me that if you have to get leukemia, CLL is...

https://connect.mayoclinic.org/comment/1190473/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2024

My husband has just been notified by his primary physician that he has CLL. This showed...

https://connect.mayoclinic.org/comment/739000/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

I too had CLL/SLL since 2013. Had Merkel cell in 2017, had surgery, chemo and radiation....

https://connect.mayoclinic.org/comment/895239/

Discussion: Richter's Syndrome: Is anyone else dealing with this disease?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Hi Carl, those are sage words, “live my life”. It’s really the best choice for any...

https://connect.mayoclinic.org/comment/623245/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 4, 2021