Blood Cancers & Disorders: Discussions | Page 35

I was diagnosed with JAK2 in early 2021. Taking the drug hydrea has put everything (RBC,...

https://connect.mayoclinic.org/comment/765304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

https://connect.mayoclinic.org/comment/746554/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Hi Jackt00, Welcome to the site, Given the fact you are taking another chemo med, I...

https://connect.mayoclinic.org/comment/830017/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Lourdene, I'm in an almost identical position to you, having had high platelets for decades but...

https://connect.mayoclinic.org/comment/788501/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25 3:28pm

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792682/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11 5:22pm

My comment is an opinion based on conversations I had with hematologists whose credentials I respect...

https://connect.mayoclinic.org/comment/990628/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 3 6:56am

Hello all! I am new to this forum and I am so glad I happened upon...

https://connect.mayoclinic.org/comment/1002607/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:39pm

Yes it was positive medium Deterioration. Joe my husband was on Hydrea but his legs started...

https://connect.mayoclinic.org/comment/1051576/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16 7:05am

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15 5:05pm

Hello @cgpak, I can understand your wanting to know about the experience of others with ET....

https://connect.mayoclinic.org/comment/337139/

Discussion: Spleen involvement in ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2021

Hi...I have a condition called Myeloid/lymphoid neoplasms with PCM1-JAK2. My first indication of something wrong was...

https://connect.mayoclinic.org/comment/132623/

Discussion: Myelofibrosis*

Support Group: Blood Cancers & Disorders

Posted: May 7, 2020

I think I may be one of the people with the Jak2 mutation that lay dormant...

https://connect.mayoclinic.org/comment/978261/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2023

Hi, i was diagnosed with primary polycythaemia 2 weeks back, dr has said that my Jak2...

https://connect.mayoclinic.org/comment/822183/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2023

I was recently diagnosed with this as well, at age 69. The chemo I'm taking is...

https://connect.mayoclinic.org/comment/983162/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

Hello @kanaazpereira , The article you shared (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562533/ ) answers alot of my inquiry. Just wondering...

https://connect.mayoclinic.org/comment/194287/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Yes, I am CALR-ET for at least 15 years, and I'm sure I come off like...

https://connect.mayoclinic.org/comment/816179/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023

I am now 65 and have been taking Hydroxyurea for 10 years to keep my platelets...

https://connect.mayoclinic.org/comment/910025/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

Blood Cancers & Disorders Support Group