Blood Cancers & Disorders Support Group

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Comments (1,104)

Hi winmil99, Welcome to the site. I was diagnosed in June 2022 with platelets at 735....

https://connect.mayoclinic.org/comment/887358/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

I was really interested in what your MPN Specialist had to say. I also have had...

https://connect.mayoclinic.org/comment/792671/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Your story sounds just like mine. My platelets started rising slowly over four years. It hit...

https://connect.mayoclinic.org/comment/778218/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2022

The more research I do regarding my wife (Becky’s) ET diagnosis the more I’m wondering about...

https://connect.mayoclinic.org/comment/1154205/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hi Vicky58, There’s a large network of members in Connect who also have ET and share...

https://connect.mayoclinic.org/comment/1102781/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2024

Welcome to Connect, @johngrudnowski. I’m a little envious to see you’re in Costa Rica…sunshine and warmth!...

https://connect.mayoclinic.org/comment/999949/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2024

My husband was dx with Jak2 about 10 months go when his WBC was high on...

https://connect.mayoclinic.org/comment/599791/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 6, 2021

I traveled as usual and flew places in 2020 and enjoyed many wonderful experiences with family...

https://connect.mayoclinic.org/comment/194376/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

A GP is not going to have any answers for you. They do not specialize in...

https://connect.mayoclinic.org/comment/328574/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2020

I've been on HU for 2 years, 500 mg, 4x week, baby aspirin 2x day, and...

https://connect.mayoclinic.org/comment/1210567/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jan 13 11:03am

Hi, Thanks for your input. I have JAK2 mutation too, just found out in April. How...

https://connect.mayoclinic.org/comment/987914/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2023

My father passed away from a battle of myelofibrosis (MF), over 10 years after being diagnosed...

https://connect.mayoclinic.org/comment/646343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2021

Hi Steve, Welcome to Connect. ET, or essential thrombocythemia is one of a group of blood...

https://connect.mayoclinic.org/comment/1145659/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2024

my plt also started increasing with covid vaccines . I have had bone marrow biopsy, JAK2...

https://connect.mayoclinic.org/comment/1170559/

Discussion: Do vaccines like MMR or TB tests affect Bone Marrow Biopsy findings?

Support Group: Blood Cancers & Disorders

Posted: Nov 9, 2024

What dosage have you been prescibed? ET patients usually only need very low dosages of hydrea....

https://connect.mayoclinic.org/comment/1172215/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

I am 72, have ET with JAK2, and been on Droxia for 10 years. My dosage...

https://connect.mayoclinic.org/comment/1119845/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Well, I’m 77 so pregnancy isn’t an option! But, it made me chuckle. I was diagnosed...

https://connect.mayoclinic.org/comment/1348048/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

My mother had polycythemia Vera in the 1990's. She had it for about 10 years and...

https://connect.mayoclinic.org/comment/1301191/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: May 10 1:41pm