Blood Cancers & Disorders Support Group

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Comments (696)

Hi Kat, Thank you so much for the encouragement and your prayers - so very appreciated....

https://connect.mayoclinic.org/comment/1168900/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 6, 2024

Hi @sjjs. I have had stable and asymptomatic CCUS for many years with DNMT3a and TET2...

https://connect.mayoclinic.org/comment/1138645/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2024

I started my journey when my Family Dr. had a CBC done as part of my...

https://connect.mayoclinic.org/comment/996517/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

Hi Lori! All is going well for me. Life truly is an an adventure and never...

https://connect.mayoclinic.org/comment/335095/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 31, 2021

This is a follow-up to my first post here about my 80 year old husband. He...

https://connect.mayoclinic.org/comment/955890/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Oct 29, 2023

Hi @nylechojnacki. Welcome to Connect! Goodness, a hemoglobin of 3.1. You were running on empty! I’m...

https://connect.mayoclinic.org/comment/1172526/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Going back a few bits in this thread, I guess when I said I didn't know...

https://connect.mayoclinic.org/comment/1138808/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2024

My story continues. I had my usual Monday visit, and my 30-day bone marrow biopsy came...

https://connect.mayoclinic.org/comment/1072456/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: May 21, 2024

Hi Sheila Hi Martin: Sheila if you wrote at Halloween time I sure did not get...

https://connect.mayoclinic.org/comment/52462/

Discussion: Livedoid vasculopathy

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2014

Hello Cindy; It sounds like you have a doctor that is doing a good job for...

https://connect.mayoclinic.org/comment/1167522/

Discussion: Primary Myelofibrosis with JAK2: Anyone have Ojjaara (momelotinib)?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

Good morning, @pixiesusan. I think we’re all pretty much natural worriers…especially when it comes to medical...

https://connect.mayoclinic.org/comment/1136024/

Discussion: Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2024

Hi @jps01, I have to admit one of the most difficult things for me is to...

https://connect.mayoclinic.org/comment/928548/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2023

Yep... I'm in there with both of you. MDS and MF. There are a couple of...

https://connect.mayoclinic.org/comment/900672/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2023

Updating, I am day 17 after transplant. I must say I do not dig into treatments...

https://connect.mayoclinic.org/comment/1058025/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Apr 26, 2024

Slow posting. I need to check in and say on Monday i found my CMV levels...

https://connect.mayoclinic.org/comment/1231477/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 7 10:24am

Good morning, and Welcome to Connect, @mary612 First, take a deep breath, hold it for 4...

https://connect.mayoclinic.org/comment/1033851/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 15, 2024

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

It has been a while on this thread. I had my 1-month appointment follow-up Friday the...

https://connect.mayoclinic.org/comment/1210207/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 12 9:29pm

Howard, it’s really positive that your doctors now feel you might qualify for a stem cell...

https://connect.mayoclinic.org/comment/842806/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

I also was part of a research study to lessen the chance of GVHD. Tacrolimus was...

https://connect.mayoclinic.org/comment/1087079/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 15, 2024