Blood Cancers & Disorders Support Group

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Comments (1,035)

Hi @statmatics, If Rachel’s CBC numbers have been consistently false for 18 months, one would expect...

https://connect.mayoclinic.org/comment/1350684/

Discussion: Can Blood Counting Machines Be Wrong?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025

I was diagnosed in July with MDS, but low Neutrophils counts and high blood cells volume...

https://connect.mayoclinic.org/comment/996239/

Discussion: Long awaited Drug for myelofibrosis (MF) has been released

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

I am on Hydro 500 mg, twice a day. Also Anagrelide HCL at 0.5 mg. These...

https://connect.mayoclinic.org/comment/798411/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

I'm sorry to hear that you haven't shared this diagnosis with your children. I think perhaps...

https://connect.mayoclinic.org/comment/755895/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Thank you everyone. I have CCUS or MDS. I am not entirely sure, but we are...

https://connect.mayoclinic.org/comment/1086927/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Brenda, I moved your recent post to your existing discussion about living with MDS (myelodysplastic syndromes)....

https://connect.mayoclinic.org/comment/953178/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2023

The visit went kindof as he alluded to on the phone during the week. I have...

https://connect.mayoclinic.org/comment/1368928/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

I was diagnosed with MDS IB2 March 2024 age 76. I was told by my hematologist...

https://connect.mayoclinic.org/comment/1265906/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2025

Hello @bdglass, @marco88, @kgerbitz and @dabls6 I did a little research online to see if there...

https://connect.mayoclinic.org/comment/871680/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

Hi @nbadry, I'm tagging fellow members like @jrsav @gingerw @tristram @coynelane @darlaburley @janetlen @5qdeletion @marco88, who...

https://connect.mayoclinic.org/comment/1159672/

Discussion: What are your experiences with lenalidomide (Revlimid) for MDS?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2024

Hi @deemcrae Welcome to Connect. You’re doing everything just right and in the perfect support group...

https://connect.mayoclinic.org/comment/829704/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2023

Hello, I've been dealing with Low-risk MDS for over 5 years, and at almost 70, feel...

https://connect.mayoclinic.org/comment/1027777/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 5, 2024

Hello, I am new to Mayo and transferred from City of Hope (long story). I am...

https://connect.mayoclinic.org/comment/946326/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 12, 2023

I was diagnosed with MDS in 2021. In March 2023 my platelets shot up to over...

https://connect.mayoclinic.org/comment/846781/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Hi renee12345 I went from normal platelets and high monocytes to low platelets in a couple...

https://connect.mayoclinic.org/comment/778948/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Good evening I was diagnosed with primary myelofibrosis about a month ago. The bone marrow biopsy...

https://connect.mayoclinic.org/comment/1338019/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

osm- Did you read the 2 links Lori posted above? I know Mayo has many published...

https://connect.mayoclinic.org/comment/1201820/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: Jan 1, 2025

Hello @jrwilli1 and welcome to Mayo Clinic Connect. It sounds like your husband has been through...

https://connect.mayoclinic.org/comment/764542/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

Welcome to Connect @afieldcrow…Alison. I love crows so I can’t help but admire your @name! Just...

https://connect.mayoclinic.org/comment/1346758/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

Hello, this is dde83. I have a mild case of MDS and have had success with...

https://connect.mayoclinic.org/comment/1307896/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 19, 2025