Blood Cancers & Disorders: Discussions | Page 34

Hi - One thing I learned early on is that there is no "normal" for MDS....

https://connect.mayoclinic.org/comment/924698/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 5, 2023

I thought I would share my experience which I am grateful that my only symptoms at...

https://connect.mayoclinic.org/comment/756572/

Discussion: Low Platelets with Myelodysplastic Syndrome (MDS)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2022

Good afternoon, I am recently new to this support group as of today. I happened to...

https://connect.mayoclinic.org/comment/1254805/

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:45pm

I am in the early stages of MDS and and looking for any help I can...

https://connect.mayoclinic.org/comment/1250678/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 4 11:18pm

This is so encouraging for me. I have been diagnosed with CMML however they are going...

https://connect.mayoclinic.org/comment/1096471/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2024

Hi @jelilien, I think right now your dad seems to be in good hands. Often oncologists...

https://connect.mayoclinic.org/comment/888310/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Welcome to Connect, @grat1963. Oh my gosh, it’s so sad to hear about your sister and...

https://connect.mayoclinic.org/comment/1342943/

Discussion: MDS now progressing to AML and need to decide if time to start Vidaza

Support Group: Blood Cancers & Disorders

Posted: Jul 7 10:21am

First time post here. We live on the Sunshine Coast an hour north of Brisbane in...

https://connect.mayoclinic.org/comment/1265364/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Mar 24 4:40am

Hi Jacklyn, my husband was first diagnosed with MDS last Oct and recently progressed to AML....

https://connect.mayoclinic.org/comment/1337905/

Discussion: AML, age 78, taking Decetabine/ Venetoclax, no transplant

Support Group: Blood Cancers & Disorders

Posted: Jun 29 2:48pm

My husband has been seen by an oncology since 2017 where they had been watching his...

https://connect.mayoclinic.org/comment/940926/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

My husband will also receive a bone marrow transplant in Feb. for MDS. We are very...

https://connect.mayoclinic.org/comment/798478/

Discussion: Will soon have a Bone Marrow Transplant: What can I expect?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 18, 2023

This - and others who have posted similar - is quite helpful as it seems am...

https://connect.mayoclinic.org/comment/1335057/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 25 2:33pm

I've had a low platelet count for over a decade. I switched to an alkaline diet...

https://connect.mayoclinic.org/comment/1310233/

Discussion: How can I raise my platelet count? (With food)

Support Group: Blood Cancers & Disorders

Posted: May 22 10:23am

My wife Nancy was diagnosed with MDS in June of 2023 at age 78. She was...

https://connect.mayoclinic.org/comment/1271616/

Discussion: AML successful treatment

Support Group: Blood Cancers & Disorders

Posted: Apr 1 9:42am

thank you so much for your response, more than that, the inspiring message of how long...

https://connect.mayoclinic.org/comment/163811/

Discussion: Acute myeloid leukemia (AML): What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Aug 22, 2017

I had my 4th BMB done today. I requested the same PA- She ROCKS! 1% lidocaine...

https://connect.mayoclinic.org/comment/1151479/

Discussion: What was your experience with bone marrow biopsy?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2024

Hello @rrivory Welcome to Mayo Clinic Connect. We’re an online community forum where members come together...

https://connect.mayoclinic.org/comment/621728/

Discussion: Use of Neupogen (or similar) prior to minor surgery

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2021

Hi @momz I wasn’t diagnosed with MDS prior having AML. I’d had a complete physical including...

https://connect.mayoclinic.org/comment/925974/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2023

@gg17 Here is an article from Mayo Clinic about cyclosporine and nephrotoxicity https://www.mayoclinic.org/drugs-supplements/cyclosporine-oral-route/description/drg-20075815 How long has...

https://connect.mayoclinic.org/comment/326820/

Discussion: Cyclosporine and kidney issues

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2020

I’m not sure about that, but I don’t get tired or have fatigue. I do work...

https://connect.mayoclinic.org/comment/1259061/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16 12:55am

Blood Cancers & Disorders Support Group