Blood Cancers & Disorders Support Group

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Comments (2,234)

@silversun egad! What twists and turns you have endured on your path. I see what you...

https://connect.mayoclinic.org/comment/1264211/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

Hi! I agree with checking for an autoimmune disease. I’ve had 4 different drs, including one...

https://connect.mayoclinic.org/comment/1197555/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2024

@muse1 If you are only seeing a GenPrac for your MGUS I would go see a...

https://connect.mayoclinic.org/comment/1499246/

Discussion: People diagnosed with MGUS under 45

Support Group: Blood Cancers & Disorders

Posted: Feb 6 7:54am

Hello @rayofhope I love your @name. It’s important to always have hope. Believe me I understand...

https://connect.mayoclinic.org/comment/839405/

Discussion: MGUS to myeloma: How can it be detected sooner?

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2023

Good morning. I was diagnosed with MGUS IgM Kappa with a small fiber neuropathy in 2012....

https://connect.mayoclinic.org/comment/943970/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2023

Hello. I’m newly diagnosed with MGUS. I would like to know more about the disease and...

https://connect.mayoclinic.org/comment/1370019/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2025

My sister had this disease from 1988-1991. My niece has just be diagnosed with multiple myeloma...

https://connect.mayoclinic.org/comment/1357557/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 27, 2025

I was just diagnosed with MGUS. Does anyone know if there is any treatment to help...

https://connect.mayoclinic.org/comment/1111936/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2024

I have MGUS, diagnosed about 4 years ago, now I have also been diagnosed with Amyloidosis....

https://connect.mayoclinic.org/comment/1100049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2024

Greetings Omemee. I was dx’d with MGUS over a year ago. I had a “lesion” on...

https://connect.mayoclinic.org/comment/720539/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2022

I read several studies on BCMA levels and MGUS progression. sBCMA levels were noticed to increase...

https://connect.mayoclinic.org/comment/672449/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2022

I too have MGUS diagnosed about 7 years ago. Canker sore started about 1 year ago....

https://connect.mayoclinic.org/comment/1144136/

Discussion: Recurring severe mouth ulcers and MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2024

@hlwd7 hello, I am still categorized as MGUS and have no experience with Darzalex, but I...

https://connect.mayoclinic.org/comment/1502718/

Discussion: Smoldering Multiple Myeloma (SMM). Questions and Answers

Support Group: Blood Cancers & Disorders

Posted: Feb 10 6:36pm

My primary was the doc who sent me to a hematologist oncologist for follow up to...

https://connect.mayoclinic.org/comment/930981/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 16, 2023

MGUS needs to be watched and monitored. If you get labs drawn yearly and they tweak...

https://connect.mayoclinic.org/comment/1251632/

Discussion: Kappa chain and K/L ratio keeps increasing

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2025

Hello Nick, welcome to the MGUS forum. I think you perfectly describe the reaction we all...

https://connect.mayoclinic.org/comment/939342/

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2023

I’m totally in the dark with this mgus and kappa light chain stuff. It was picked...

https://connect.mayoclinic.org/comment/929893/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

@orla. Hello, I am also new here! I just got diagnosed with MGUS. How has your...

https://connect.mayoclinic.org/comment/1489235/

Discussion: Starting MGUS journey: It feels like the "in limbo" disease

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:44am

EVUSHELD QUESTION WHETHER TO KEEP GETTING INJECTIONS: Not certain where I should jump in to the...

https://connect.mayoclinic.org/comment/782506/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

@gingerw Thanks for your quick response to my post. Very informative. Of all the symptoms on...

https://connect.mayoclinic.org/comment/754494/

Discussion: possible Myeloma ? big shocking surprise !!

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022