Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,180 total results

Comments (1,105)

I myself noticed that my red red and white cells were increasing over time..When I brought...

https://connect.mayoclinic.org/comment/1086304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Good morning, @onthejoedock ( and Mrs Joe!) I’m a bit chagrinned that I’d forgotten about our...

https://connect.mayoclinic.org/comment/1083472/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Hi @judyar I am 79, have ET JAK2 mutation. I have been taking 500 mg Hydroxyurea...

https://connect.mayoclinic.org/comment/973207/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023

I also had hair thinning and nail splintering. My hair is straighter, but not falling out....

https://connect.mayoclinic.org/comment/818157/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

I am 79 and was also diagnosed with ET JAK2 in June 2022. I was already...

https://connect.mayoclinic.org/comment/967863/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

1. Thank you for your service. I, too, was in the Navy a long time ago!...

https://connect.mayoclinic.org/comment/890649/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Hi there, Yes, this diagnosis does seem to be extremely rare! I don't qualify for RARS-T...

https://connect.mayoclinic.org/comment/865772/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Get on the email list for the MPN Foundation and watch their excellent programs and videos....

https://connect.mayoclinic.org/comment/946029/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

Colleen, thank you for asking. Very fortunate that all my other blood work is within acceptable...

https://connect.mayoclinic.org/comment/693590/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2022

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

My doctor has taken time to figure out the problem with my raised platelets. I have...

https://connect.mayoclinic.org/comment/1064569/

Discussion: Essential Thrombocythemia and relationship to stroke

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

Hello All, Here is a wonderful booklet for you to read. It may look too complicated...

https://connect.mayoclinic.org/comment/1048088/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

Hi cdurbin, Thanks for posting. I guess I just really would like to have it determined...

https://connect.mayoclinic.org/comment/1219910/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 3:35pm

My 68 year old friend had a pulmonary embolism on 5/18/22. This was two weeks after...

https://connect.mayoclinic.org/comment/1122553/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

Hi Kelly, I too am Jak2 positive with PV diagnosed at 55 on Hydroxyurea now for...

https://connect.mayoclinic.org/comment/1127238/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

hey carlavan. i am soo sorry to here about you but i can feel you because...

https://connect.mayoclinic.org/comment/758124/

Discussion: Anyone have CALR mutation with constitutional symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2022