Blood Cancers & Disorders Support Group

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Comments (1,382)

Hello, many people choose not to have the bone marrow test. PV can be diagnosed solely...

https://connect.mayoclinic.org/comment/1156731/

Discussion: After 3 months on hydroxyurea, I am going to ask to switch to Besremi

Support Group: Blood Cancers & Disorders

Posted: Oct 14, 2024

HU is short for hydroxyurea or Hydrea. It is in pill form and suppresses blood cells,...

https://connect.mayoclinic.org/comment/252000/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2019

Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...

https://connect.mayoclinic.org/comment/872059/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2023

Dear PinkFlamingo. So sorry you’re going through all of this at such a young age. I...

https://connect.mayoclinic.org/comment/836046/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

Great post. I'm 67 and recently diagnosed with ET and Jak2 mutation. My Hemo Dr started...

https://connect.mayoclinic.org/comment/787622/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

I have had ET and taken hydrea for nearly 30 years now. I am currently 66...

https://connect.mayoclinic.org/comment/194374/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2021

@1995victoria I think I mentioned I have ET Jak2 and the shingrix second shot dropped my...

https://connect.mayoclinic.org/comment/1421262/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2025

No travel problems here. We fly extensively every year, even since I was diagnosed, ET w/JAK2....

https://connect.mayoclinic.org/comment/1089517/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2024

I am Jak2 and this was diagnosed after 2 mild strokes in which I experienced numbness...

https://connect.mayoclinic.org/comment/194334/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2019

Thank you for your quick response. Can you help me understand a bit more?--he said the...

https://connect.mayoclinic.org/comment/194309/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

You may never find the underlying cause for when and why the mutation happened. It may...

https://connect.mayoclinic.org/comment/1272702/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

Please do not be scared. Improvements in care and medications are happening. Important to know that...

https://connect.mayoclinic.org/comment/1469996/

Discussion: Diagnosed polycythemia vera at 26: Any young PV patients out there?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2025

Have you been diagnosed with PV? Your platelets are just slightly high and not dangerous. I...

https://connect.mayoclinic.org/comment/846633/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...

https://connect.mayoclinic.org/comment/764388/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2022

A blood smear is normally used by a Hematologist to check for several suspected mutations. The...

https://connect.mayoclinic.org/comment/194324/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2019

Hi, I was recently diagnosed with Essential Thrombocytoss (ET) and Jak2 mutation, after elevated platelets over...

https://connect.mayoclinic.org/comment/252011/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2019

The meds will work but takes a while to get the dosage correct. My platelets were...

https://connect.mayoclinic.org/comment/1064057/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 8, 2024

I was diagnosed low risk MDS two years ago. My platelets have been steadily rising since...

https://connect.mayoclinic.org/comment/827434/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Hi Mortysdad… I am very interested in your progress with Pegasys for ET JAK2. I was...

https://connect.mayoclinic.org/comment/807054/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

My husband was diagnosed at 69, a year ago, with Primary Myelofibrosis including Jak2 mutation. A...

https://connect.mayoclinic.org/comment/693147/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2022