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Comments (1,382)
I met with new oncologist/hema this week. I will be getting a bone marrow biopsy, as...
https://connect.mayoclinic.org/comment/651545/
HU is short for hydroxyurea or Hydrea. It is in pill form and suppresses blood cells,...
https://connect.mayoclinic.org/comment/252000/
Two years ago, at age 78, I noticed severe itching after bathing. A physicians assistant noticed...
https://connect.mayoclinic.org/comment/872059/
Dear PinkFlamingo. So sorry you’re going through all of this at such a young age. I...
https://connect.mayoclinic.org/comment/836046/
Great post. I'm 67 and recently diagnosed with ET and Jak2 mutation. My Hemo Dr started...
https://connect.mayoclinic.org/comment/787622/
I have had ET and taken hydrea for nearly 30 years now. I am currently 66...
https://connect.mayoclinic.org/comment/194374/
@1995victoria I think I mentioned I have ET Jak2 and the shingrix second shot dropped my...
https://connect.mayoclinic.org/comment/1421262/
No travel problems here. We fly extensively every year, even since I was diagnosed, ET w/JAK2....
https://connect.mayoclinic.org/comment/1089517/
I am Jak2 and this was diagnosed after 2 mild strokes in which I experienced numbness...
https://connect.mayoclinic.org/comment/194334/
Thank you for your quick response. Can you help me understand a bit more?--he said the...
https://connect.mayoclinic.org/comment/194309/
You may never find the underlying cause for when and why the mutation happened. It may...
https://connect.mayoclinic.org/comment/1272702/
Have you been diagnosed with PV? Your platelets are just slightly high and not dangerous. I...
https://connect.mayoclinic.org/comment/846633/
My husband had Lymes and Erlichiosis (another tick-borne disease) 12-15 years ago. In 2021 he was...
https://connect.mayoclinic.org/comment/764388/
Please do not be scared. Improvements in care and medications are happening. Important to know that...
https://connect.mayoclinic.org/comment/1469996/
A blood smear is normally used by a Hematologist to check for several suspected mutations. The...
https://connect.mayoclinic.org/comment/194324/
Hi, I was recently diagnosed with Essential Thrombocytoss (ET) and Jak2 mutation, after elevated platelets over...
https://connect.mayoclinic.org/comment/252011/
78 year old woman Recently diagnosed with ET and JAK2 , Last week I experienced uncomfortable...
https://connect.mayoclinic.org/comment/1524662/
I am so grateful for all the information I have received from the members of this...
https://connect.mayoclinic.org/comment/1097432/
Do you know if you have any acquired gene mutations that have caused you to have...
https://connect.mayoclinic.org/comment/1091461/
There are foods which can help raise platelets. But when you have a JAK2 mutation, that...
https://connect.mayoclinic.org/comment/1083483/
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