Blood Cancers & Disorders Support Group

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Comments (1,895)

I was diagnosed with Mgus about 20 years ago and told there was a small chance...

https://connect.mayoclinic.org/comment/884432/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2023

I have had MGUS for 20 years, I was diagnosed at the age of around 45...

https://connect.mayoclinic.org/comment/1198099/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

My MGUS was diagnosed 8 years ago. I also have celiac and collagenous colitis that are...

https://connect.mayoclinic.org/comment/1037541/

Discussion: MGUS, SMM or MM With Chronic Diarrhea Or Other GI Maladie?

Support Group: Blood Cancers & Disorders

Posted: Mar 21, 2024

As I have posted before, I have had MGUS since 2002 - maybe longer - I...

https://connect.mayoclinic.org/comment/1184145/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024

@lasfarolas Welcome to Mayo Clinic Connect. Your experience with MGUS seems to follow what many people...

https://connect.mayoclinic.org/comment/781571/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

I was diagnosed with MGUS a year ago. I had insisted on a new nephrologist due...

https://connect.mayoclinic.org/comment/74579/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2018

Hello @dazlin. Welcome to Mayo Clinic Connect! You will notice that I merged your question into...

https://connect.mayoclinic.org/comment/106665/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2018

@pmm...i wasn't going to bother after so many tries. Mainly because my blood work has improved...

https://connect.mayoclinic.org/comment/1289175/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 24 6:24pm

I’m so sorry about your kidney involvement and other symptoms. Waiting for information is stressful. When...

https://connect.mayoclinic.org/comment/915349/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2023

Does anyone have neuropathy (numbness only) from MGUS (monoclonal gammopathy of undetermined or unspecified significance)? If...

https://connect.mayoclinic.org/comment/836305/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2023

I am also jak 2 positive as of 2019 and mgus since 201 3, now smouldering...

https://connect.mayoclinic.org/comment/755881/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Oct 1, 2022

Yes. Dealing with lame drs now as I search for a new specialist (care follow ups-no...

https://connect.mayoclinic.org/comment/1036755/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

@eulo Thank you for your kind words! Something your wife might try, is to use a...

https://connect.mayoclinic.org/comment/795490/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2023

My oncologist called me yesterday and said that I still have MGUS and it won't have...

https://connect.mayoclinic.org/comment/1161336/

Discussion: Newly diagnosed CLL How to interpret FISH results?

Support Group: Blood Cancers & Disorders

Posted: Oct 23, 2024

MGUS can have all sorts of associated translocations and mutations. I also have gains on chromosomes...

https://connect.mayoclinic.org/comment/1206817/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 12:25pm

### **Risk Stratification in MGUS: Low, Intermediate, and High Risk** MGUS (Monoclonal Gammopathy of Undetermined Significance)...

https://connect.mayoclinic.org/comment/1179995/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

@chawkins Welcome to Mayo Clinic Connect. It looks like you have a great regimen set up...

https://connect.mayoclinic.org/comment/1089236/

Discussion: Anyone have MGUS and being treated for osteoporosis?

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Steffiney, I was diagnosed with MGUS via a blood test for another medical issue. I was...

https://connect.mayoclinic.org/comment/889695/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2023

Just got diagnosed with MGUS. Found it doing blood work for liver biopsy since I have...

https://connect.mayoclinic.org/comment/804923/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Feb 1, 2023

Also... I dont understand why s.s. deducts hundreds of dollars each month for Medicare, then my...

https://connect.mayoclinic.org/comment/233250/

Discussion: Tests for blood cancer ...the bills!!

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2018