Blood Cancers & Disorders Support Group

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Comments (898)

diagnosed with cll in april 2016- age 62- began immediate green tea extract supplement of 5,000...

https://connect.mayoclinic.org/comment/719405/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2022

I know taking medication is very risky. I carry my card with me all the time....

https://connect.mayoclinic.org/comment/647851/

Discussion: Chronic lymphocytic leukemia and Hereditary Nerve Pressure Palsey

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2021

I was diagnosed with CLL years ago because my white cell count kept going up. I...

https://connect.mayoclinic.org/comment/1189532/

Discussion: Chronic lymphocytic leukemia (CLL)

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2024

Definitely get a good hematologist! My PCP referred me after an annual check up showed an...

https://connect.mayoclinic.org/comment/1233613/

Discussion: Anyone else experiencing these symptoms with CLL diagnosis....?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2025

Hi @vero210, mom’s are notorious for ‘I’m fine, nothing’s wrong’… She’s lucky to have an attentive...

https://connect.mayoclinic.org/comment/828374/

Discussion: What are Smudge Cells? Do they indicate CLL?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

Hey ! That is awesome ! I can understand why your sister refuses! It could change...

https://connect.mayoclinic.org/comment/1081432/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

Hi @dringge, I know that first appointment clipped you off at the knees. Anytime we get...

https://connect.mayoclinic.org/comment/798310/

Discussion: Lymphoma or Not? Watch and wait?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Hi @joeeduffy, I know you’re desperately seeking advice about your husband’s potential diagnosis of CLL. What...

https://connect.mayoclinic.org/comment/1020570/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2024

Hello @jm53, first, sorry to hear that you've joined the CLL club. I was dx'd at...

https://connect.mayoclinic.org/comment/1311501/

Discussion: Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2025

Hello @mena2020. Colleen shared some links with you with more information on CAR-T cell therapy. FDA...

https://connect.mayoclinic.org/comment/164154/

Discussion: Did anyone undergo Car-T therapy for B cell lymphoma?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jan 22, 2020

@joeeduffy I want to reach through this computer and give you a hug… My goal is...

https://connect.mayoclinic.org/comment/1011309/

Discussion: CLL - Blood work Completed IGVA Mutation Analysis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

@whatshallido59 Quite frankly, I really think you should be contacting a doctor soon to get some...

https://connect.mayoclinic.org/comment/1407391/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2025

You might want to discuss with your oncologist what to be alert to with regard to...

https://connect.mayoclinic.org/comment/1279184/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 11, 2025

Hi @kayabbott. I’m going nudge you over to this discussion in the Osteoporosis Support group to...

https://connect.mayoclinic.org/comment/1025953/

Discussion: CLL: How do you evaluate well-meaning tips from friends?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Thanks so much. Yes, I’m in active surveillance with my local hemo/onc, with a standing invitation...

https://connect.mayoclinic.org/comment/914124/

Discussion: Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Hello & Happy Friday. I just got off the call with my doctor and will start...

https://connect.mayoclinic.org/comment/785611/

Discussion: Pending testing to confirm type of lymphoma

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2022

Hello, I have been diagnosed in 2016 with MBL and after a Lymph nodes biopsy in...

https://connect.mayoclinic.org/comment/113638/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2020

I was diagnosed with pv and put on hu plus baby asprin. Had a few phlebotomy...

https://connect.mayoclinic.org/comment/952262/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Oct 22, 2023

My husband had CLL for many years with no symptoms, it was just watch and wait...

https://connect.mayoclinic.org/comment/1102116/

Discussion: Might have CLL: Does it come on fast?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Gerry You may never feel poorly. I would not trade my health with most 70 year...

https://connect.mayoclinic.org/comment/113588/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Sep 6, 2016