Blood Cancers & Disorders Support Group

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Comments (867)

Dear mgusPixi25, I have heard a little bit about your health care system over there. Ours...

https://connect.mayoclinic.org/comment/884013/

Discussion: Anyone else have Symptomatic MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2023

@kappaking Starting treatment may need to be coordinated with other health concerns. My experience is this,...

https://connect.mayoclinic.org/comment/1045754/

Discussion: Blood Test: Numbers are up, will doctor not start me on treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2024

Hi Oregongirl, Looks like you have not a definite diagnosis of Multiple Myeloma. It is important...

https://connect.mayoclinic.org/comment/209502/

Discussion: Multiple Myeloma

Support Group: Blood Cancers & Disorders

Posted: Oct 17, 2018

@4kleo Here is a link to the page that speaks about MGUS, from myeloma.org: https://www.myeloma.org/what-are-mgus-smm-mm As...

https://connect.mayoclinic.org/comment/1246905/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

It's been a process for me. First comes lab results for tests done for a totally...

https://connect.mayoclinic.org/comment/811292/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2023

@pmm You took the words right out of my mouth! Absolutely right, a small percentage of...

https://connect.mayoclinic.org/comment/732393/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Jul 30, 2022

Hi Lori, I’m so thankful to have found your post and uplifting words. My father was...

https://connect.mayoclinic.org/comment/731483/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 27, 2022

Thank you so much for your reply. I had elevated kappa light chains, and was diagnosed...

https://connect.mayoclinic.org/comment/720463/

Discussion: Multiple myeloma lytic lesions pelvic area. What treatments?

Support Group: Blood Cancers & Disorders

Posted: Jun 23, 2022

I am on Original Medicare and have an excellent Medigap policy. At least for Myelofibrosis, a...

https://connect.mayoclinic.org/comment/1328486/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2025

I have had MGUS since about 2009, with no conversion to Multiple Myeloma. I had high...

https://connect.mayoclinic.org/comment/770102/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2022

It does make one so anxious to be in diagnostic Limbo. When I first heard Multiple...

https://connect.mayoclinic.org/comment/722918/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 2, 2022

Unfortunately my sister died of multiple myeloma 5 years ago and protein was found in my...

https://connect.mayoclinic.org/comment/708987/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: May 17, 2022

@dazlin For now, we are just doing lab work every 3 months. Because I have kidney...

https://connect.mayoclinic.org/comment/292609/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

@dazlin My MGUS advanced into smoldering multiple myeloma officially in Nov 2019, so I am on...

https://connect.mayoclinic.org/comment/292603/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2020

Read and study all you can before deciding to do a bone marrow transplant. The deciding...

https://connect.mayoclinic.org/comment/1120978/

Discussion: Should all multiple myeloma patients look into stem cell transplant?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

I just received some very alarming lab results, as was expected. I have given HealthTree, a...

https://connect.mayoclinic.org/comment/986399/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023

@dianegrant Welcome to Mayo Clinic Connect. I'm glad to see you reach out to our great...

https://connect.mayoclinic.org/comment/842885/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

@jlh1 Greetings, and welcome to Connect. How frustrating when you get so many opinions about blood...

https://connect.mayoclinic.org/comment/1027869/

Discussion: Waldenstrom's, CLL or MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2024

Good morning, @thenester, I’d like to officially welcome you to Mayo Clinic Connect. You can already...

https://connect.mayoclinic.org/comment/1460583/

Discussion: Neutropenia and thrombocytopenia 100+ days after autologous Stem cell

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Dec 14, 2025

Greetings. So sorry you are having trouble finding a clinical home. I don’t know Scottsdale but...

https://connect.mayoclinic.org/comment/821204/

Discussion: Monoclonal Gammopathy & Granulatomus Disease + new ANA+ in AZ

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2023