Blood Cancers & Disorders Support Group

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Hi, My PCP is sending me to a hematologist because of M- protein in my labs...

https://connect.mayoclinic.org/comment/1276158/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 7 7:29am

I was suffering fatigue a lot. Not sure I could completely link it to my MGUS...

https://connect.mayoclinic.org/comment/878309/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

I have now been diagnosed with Stage 4 Marginal Zone Lymphoma Cancer. I have had MGUS...

https://connect.mayoclinic.org/comment/1275604/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 6 12:00pm

@dazlin, for the MGUS labs, were they using serum electrophoresis with immunofixation (SPEP/IFE), 24-hour urine electrophoresis...

https://connect.mayoclinic.org/comment/981778/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

@Tallyteresa, you are an inspiration! I appreciate your in depth research and following your hunches on...

https://connect.mayoclinic.org/comment/793620/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 7, 2023

Hi @mjlandin I was diagnosed with MGUS last July via standard tests related to Neuropathy. M-Spike...

https://connect.mayoclinic.org/comment/714661/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2022

@rhody89 welcome to the forum. I can certainly echo the recommendations that have been voiced here....

https://connect.mayoclinic.org/comment/976317/

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2023

It helps to know the levels of immunoglobulins in the blood and urine, and free light...

https://connect.mayoclinic.org/comment/985335/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2023

My doctor just told me I have MGUS at 61.5 years old. My mind is spinning...

https://connect.mayoclinic.org/comment/904319/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Jul 29, 2023

I was diagnosed with MGUS, a plasma cell neoplasm, in 2017. Earlier this year, my blood...

https://connect.mayoclinic.org/comment/719891/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

If you don't have one, it would be good to get a oncologist/hematologist with good MGUS...

https://connect.mayoclinic.org/comment/1199327/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2024

ABSOLUTELY get a second opinion from a specialist familiar with MGUS/SMM/MM. My story is long, but...

https://connect.mayoclinic.org/comment/932455/

Discussion: Kappa light ratio and beta 2 microglobin

Support Group: Blood Cancers & Disorders

Posted: Sep 19, 2023

I have to seriously guard my energy expenditure. Along with recently being diagnosed with MGUS, I’ve...

https://connect.mayoclinic.org/comment/1285579/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 19 4:07pm

Thank you Ill look into it yes I'll ask my Dr because I have MGUS and...

https://connect.mayoclinic.org/comment/1132124/

Discussion: MGUS Bloodwork Frequency

Support Group: Blood Cancers & Disorders

Posted: Aug 28, 2024

Hi all. Could anyone recommend a hematologist/oncologist in the Washington DC/Northern Virginia area who specializes in...

https://connect.mayoclinic.org/comment/980171/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 14, 2023

I am so glad you have no sign of it turning. That is a hopeful reminder...

https://connect.mayoclinic.org/comment/626231/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2021

Please tell me what NETs are. I also have had CLL and MGUS for several years...

https://connect.mayoclinic.org/comment/908564/

Discussion: Had CLL since 1996 & Now NETs-Anyone Else?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

I am having my second test done also and an xray for bone imaging and also...

https://connect.mayoclinic.org/comment/830619/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

@4kleo Welcome to the Mayo Clinic Connect blood disorders group. I was diagnosed, like most are,...

https://connect.mayoclinic.org/comment/1245322/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 1:44pm

Like me, you had a parent with MM, making us more high risk. (My dad was...

https://connect.mayoclinic.org/comment/1147939/

Discussion: Does MGUS cause red blood cells (RBCs) to drop?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2024