Blood Cancers & Disorders Support Group

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Comments (697)

I am so very grateful for both of your comments. So, thank you! Yet, I remain...

https://connect.mayoclinic.org/comment/901337/

Discussion: MDS: How to improve my condition in watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2023

Thank you Lori, Have had the bursitis pain for a while and my PCP did an...

https://connect.mayoclinic.org/comment/1172498/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

I have skin only Langerhans cell histiocytosis (LCH), a rare blood disease, chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/942040/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 4, 2023

To you both! My days following the transplant included 2 more rounds of a chemo for...

https://connect.mayoclinic.org/comment/1085799/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 12, 2024

My platelets have ranged from 50 to 80 for the last 2.5 years. We check blood...

https://connect.mayoclinic.org/comment/1233715/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 10 11:52am

Ooops @kippi1950 and @loki525, I forgot to actually post links to the information on causes of...

https://connect.mayoclinic.org/comment/1071458/

Discussion: Lymphoma fatigue

Support Group: Blood Cancers & Disorders

Posted: May 20, 2024

I am a 79 year old male who was exposed to agent orange having bolunteered for...

https://connect.mayoclinic.org/comment/1176756/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2024

I just found out yesterday that I have melody spastic syndrome. I am in the slow...

https://connect.mayoclinic.org/comment/1015856/

Discussion: Bone marrow transplants for CMML

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 14, 2024

Good morning, @jps01 I think we’re getting to be old friends here…I’m always popping up with...

https://connect.mayoclinic.org/comment/929726/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2023

Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...

https://connect.mayoclinic.org/comment/146305/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2020

deb13, Lori and all This page has been quiet!! I need to say once again that...

https://connect.mayoclinic.org/comment/1165813/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 31, 2024

My husband was diagnosed with MDS 5q deletion in 2018. He is age 83 now and...

https://connect.mayoclinic.org/comment/1227456/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 8:05am

Mom has well controlled hypertension (but recently her meds were doubled). I have read that increased...

https://connect.mayoclinic.org/comment/1185598/

Discussion: Newly diagnosed MDS-IB2 and vidaza

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

I have been in hydroxy for 6 weeks now. I take 2(500mg) a day. I was...

https://connect.mayoclinic.org/comment/1119123/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2024

rayj- I had a TP53 gene mutation. It is amazing to learn about new drug therapies....

https://connect.mayoclinic.org/comment/1087389/

Discussion: Husband with AML facing a stem cell transplant

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 15, 2024

Good morning, @marnix! I remember about 25? years ago, a close friend’s mother was diagnosed with...

https://connect.mayoclinic.org/comment/1072120/

Discussion: Why are there no discussions about cancer of the blood?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2024

Brenda, indeed I have (had) a very full life, and continue to be busy. But (there...

https://connect.mayoclinic.org/comment/963920/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2023

Hi @sap21981, from my research and understanding, a stem cell transplant for PV is rarely used....

https://connect.mayoclinic.org/comment/893527/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 10, 2023

Hi Howard, I’d been wondering how you’re doing on the chemo. You asked me in another...

https://connect.mayoclinic.org/comment/879927/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Hi Janet. I understand your desire for quality of life over quantity. There were days I...

https://connect.mayoclinic.org/comment/986383/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 25, 2023