Blood Cancers & Disorders Support Group

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Comments (1,035)

I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every...

https://connect.mayoclinic.org/comment/1302372/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

Hi @cindyem, I’m just double checking your reference to PMDS. Do you possibly mean myelofibrosis (MF)...

https://connect.mayoclinic.org/comment/1043541/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2024

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

All I can say is that I was never treated for CLL, My CLL turned into...

https://connect.mayoclinic.org/comment/101825/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 7, 2016

Welcome to Connect, @smetzing I can surely understand the anxiety you and your husband are experiencing...

https://connect.mayoclinic.org/comment/933074/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2023

Have not heard of hearing loss after Vidaza shots . We have a problem here with...

https://connect.mayoclinic.org/comment/1419804/

Discussion: Has anyone had hearing loss after Azacitidine injections?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

My little sister (age 63) was diagnosed with MDS a little over 3 years ago. She...

https://connect.mayoclinic.org/comment/1111831/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2024

Kathy I am so very sorry for your terrible loss. My husband was diagnosed with MDS...

https://connect.mayoclinic.org/comment/1103818/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...

https://connect.mayoclinic.org/comment/1079339/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jun 2, 2024

kva111, I agree is not deep diving. The doctor i first say sent me for a...

https://connect.mayoclinic.org/comment/1064008/

Discussion: Anyone dealing MDS and how are you doing?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2024

Welcome, @madhornet. I'm tagging a few other members who have experience with chronic myelomonocytic leukemia (CMML)...

https://connect.mayoclinic.org/comment/1040274/

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

Hi Bonnie, The Koch procedure looks for viruses and/or microorganisms in your blood. The results were...

https://connect.mayoclinic.org/comment/982877/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023

Hi @rockitman Well, I guess some good news is that your results are negative for any...

https://connect.mayoclinic.org/comment/777921/

Discussion: Low Platelets: Diagnosis to be confirmed

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Good Morning. My platelets bounce from 55000 to 72000. At 55 did bone marrow and diagnosed...

https://connect.mayoclinic.org/comment/1232876/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 9, 2025

I, too, have MDS and have 2 bags of blood every 4 weeks by transfusion. The...

https://connect.mayoclinic.org/comment/1211510/

Discussion: Anemia and exercise

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2025

Lori, my MDS treatment was watch and wait from April 2022 from a local private oncologist....

https://connect.mayoclinic.org/comment/1155888/

Discussion: Venetoclax plus decitabine not working?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2024

My apologies @jzier. Here's info specific to chronic myelomonocytic leukemia (CMML) from Cancer Research UK http://www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/chronic-myelomonocytic-leukaemia-cmml...

https://connect.mayoclinic.org/comment/101838/

Discussion: CLL treatment that concentrates in shrinking the spleen without undergoing chemo

Support Group: Blood Cancers & Disorders

Posted: May 23, 2016

My hemotologist has me on the Hydro and Anagrelide plus a low dose aspirin. I tell...

https://connect.mayoclinic.org/comment/800332/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 22, 2023

Good morning, @atsfmojj. There are different subtypes of MDS. Each have their own characteristics with varying...

https://connect.mayoclinic.org/comment/1248573/

Discussion: Curcumin and Turmeric causing anemia?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2025

Please get you a good hematologist and then if any unusual symptoms come up you should...

https://connect.mayoclinic.org/comment/888019/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jun 30, 2023