Blood Cancers & Disorders Support Group

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Comments (2,234)

@amyboylan1 There is a lot of information on the web, and you can easily find your...

https://connect.mayoclinic.org/comment/1141646/

Discussion: Resources for MGUS: What reading is helpful for the newly diagnosed?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2024

@harley22 and @coug42 It's not unusual to have a protocol of watch-and-wait when it comes to...

https://connect.mayoclinic.org/comment/1101202/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2024

I had a fractured hip and replacement. That seems to be the start of the MGUS...

https://connect.mayoclinic.org/comment/1454395/

Discussion: Does anyone have MGUS (which is a blood disorder) with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2025

@sunsetchris As @pmm Patty mentioned, MGUS usually is asymptomatic, so our doctors take a more laid...

https://connect.mayoclinic.org/comment/1224083/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2025

Thank you Ginger! It is definitely a weight lifted when you know you have people to...

https://connect.mayoclinic.org/comment/891649/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 7, 2023

@award, I moved your posts about being recently diagnosed with MGUS only 2 years after your...

https://connect.mayoclinic.org/comment/958986/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

You do not have cancer. MGUS is not cancer. Now if it progresses that’s a different...

https://connect.mayoclinic.org/comment/794425/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Jan 9, 2023

My 80 mi rides were before I got covid and long covid last year; now mostly...

https://connect.mayoclinic.org/comment/1125897/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2024

I have both MGUS and so much joint pain I could share it with 10 people....

https://connect.mayoclinic.org/comment/965876/

Discussion: Anyone with MGUS, do you have joint pain?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2023

I have MGUS and found this worth sharing: MMRF Patient Webinar Series – Multiple Myeloma Precursor...

https://connect.mayoclinic.org/comment/843209/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Regarding MAGUS, a person on this string of comments has posted a few times about "MAGUS"...

https://connect.mayoclinic.org/comment/1234695/

Discussion: MGUS progression and excess weight

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

It’s common for the FLC to fluctuate and the difference you describe is small. I have...

https://connect.mayoclinic.org/comment/1052810/

Discussion: Is it normal for free light chains to fluctuate?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

@franciscomacias Welcome to Mayo Clinic Connect. Many of us have no overt symptoms. How I dealt...

https://connect.mayoclinic.org/comment/1248386/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2025

@jlh1 Greetings, and welcome to Connect. How frustrating when you get so many opinions about blood...

https://connect.mayoclinic.org/comment/1027869/

Discussion: Waldenstrom's, CLL or MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2024

I had a bone marrow biopsy 8 years ago, soon after diagnosis of MGUS through 24...

https://connect.mayoclinic.org/comment/1047239/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2024

Dear Ones, Two thoughts come to mind: my IgM kappa MGUS was first diagnosed seven years...

https://connect.mayoclinic.org/comment/707277/

Discussion: MGUS diet: Any tips on food to enjoy or prevent progression?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2022

@dmdinapoli81 thanks so much for jumping in. It's true that most of the research involves older...

https://connect.mayoclinic.org/comment/1281699/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2025

I was diagnosed with IgA Kappa MGUS 9 years ago (I'm 70). So far, still asymptomatic...

https://connect.mayoclinic.org/comment/1256047/

Discussion: Newly diagnosed with MGUS and so anxious

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2025

I'm 70 and have had MGUS for 8 years. I have minor polyneuropathy (mostly can't feel...

https://connect.mayoclinic.org/comment/1217101/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 20, 2025

Most MGUS' do not progress any further. Some, of course, do to Smoldering (Asymetric) Myeloma (SM)...

https://connect.mayoclinic.org/comment/1170956/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2024