Blood Cancers & Disorders: Discussions | Page 30

I have ET with JAK2 mutation. It took 22 weeks taking 500mg HU once daily to...

https://connect.mayoclinic.org/comment/1036856/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2024

I have ET/Jak2. Low iron but I am not anemic. The fatigue did not start until...

https://connect.mayoclinic.org/comment/1017214/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2024

Hi @jewelfaux. The JAK2 mutation can be discovered/diagnosed with blood work. It isn’t necessary to have...

https://connect.mayoclinic.org/comment/975772/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

I had platelets up to 600 and hemocrit top level to where they would take off...

https://connect.mayoclinic.org/comment/943780/

Discussion: Pros and Cons of JAK2 testing

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

I was diagnosed with MDS in 2021. In March 2023 my platelets shot up to over...

https://connect.mayoclinic.org/comment/846781/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Your hemo's dosing strategy is interesting, and I might ask mine about that. How often do...

https://connect.mayoclinic.org/comment/779191/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2022

My platelets numbers were similar to yours in January, plus blood work identified a Jak2 mutation....

https://connect.mayoclinic.org/comment/988747/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2023

I am 71 yo female, reasonably active, recently diagnosed with Jak2, with platelets rising to 750...

https://connect.mayoclinic.org/comment/887265/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

My Polycythemia Vera and JAK2 positive test and diagnosis was on Nov. 25, 2022. After starting...

https://connect.mayoclinic.org/comment/803537/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 29, 2023

You may find that despite having the JAK2 mutation, your life may not be any noticeably...

https://connect.mayoclinic.org/comment/194269/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

You must have so many questions! You might want to use the search bar at the...

https://connect.mayoclinic.org/comment/1244801/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24 4:20pm

Hi @winmil99, Many medications have a rebound effect if stopped abruptly. The same goes for HU...

https://connect.mayoclinic.org/comment/1038999/

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2024

I was originally diagnosed with ET based on a positive JAK2 bloid test. I asked the...

https://connect.mayoclinic.org/comment/194320/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2019

I have JAK2 and take 1000mg of HU and it has affected my hair. It grows...

https://connect.mayoclinic.org/comment/1317294/

Discussion: Regrowing hair

Support Group: Blood Cancers & Disorders

Posted: May 31 12:21pm

Hi @nyjean. Hopefully I can answer your question about PV and ET. Those two conditions, along...

https://connect.mayoclinic.org/comment/1066510/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2024

Hi Kevin -- Recently diagnosed with ET with numbers close to yours. Have you had genetic...

https://connect.mayoclinic.org/comment/1039634/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2024

I’m 57 Jak2+ with PV and no other risks factors for clotting thus far so that’s...

https://connect.mayoclinic.org/comment/1025967/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Hi @tokyolin, I am following up on Lori’s comments to you. I was diagnosed a year...

https://connect.mayoclinic.org/comment/882028/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I was diagnosed PV in April ‘22, with JAK2 gene. Bloodlettings and Hydroxurea were prescribed. The...

https://connect.mayoclinic.org/comment/793807/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

Hi lyd0218, Please share what you find out about if they can tell if you are...

https://connect.mayoclinic.org/comment/1314907/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 28 12:25pm

Blood Cancers & Disorders Support Group