Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,015 total results

Comments (947)

Hello All, Here is a wonderful booklet for you to read. It may look too complicated...

https://connect.mayoclinic.org/comment/1048088/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2024

My doctor has taken time to figure out the problem with my raised platelets. I have...

https://connect.mayoclinic.org/comment/1064569/

Discussion: Essential Thrombocythemia and stroke: Do you have TIAs?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

hey carlavan. i am soo sorry to here about you but i can feel you because...

https://connect.mayoclinic.org/comment/758124/

Discussion: CalR mutation ET and constitutional symptoms

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2022

Hi @pennyhedgecoth and welcome to the Blood Cancers & Disorders group. I'm glad you found us....

https://connect.mayoclinic.org/comment/329372/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Dec 9, 2020

My 68 year old friend had a pulmonary embolism on 5/18/22. This was two weeks after...

https://connect.mayoclinic.org/comment/1122553/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2024

Hi Kelly, I too am Jak2 positive with PV diagnosed at 55 on Hydroxyurea now for...

https://connect.mayoclinic.org/comment/1127238/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2024

Hello, I am 1.5 years into taking it. My platelets were 950 as well and I...

https://connect.mayoclinic.org/comment/950065/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2023

My JAK2 Mutation was discovered 11 years ago, quite by accident. I never had any symptoms....

https://connect.mayoclinic.org/comment/194343/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2019

My hematologist said it's in the MPN cancer family but it doesn't work like a cancer....

https://connect.mayoclinic.org/comment/995692/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2024

I also had my platelets jump from 400 to 600 to 700 after 5 COVID shots....

https://connect.mayoclinic.org/comment/934091/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2023

I was diagnoses with ET Jak2 in jaune 2024, I am 70, jog and exercise daily,...

https://connect.mayoclinic.org/comment/1025941/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

You are absolutely correct on doctors taking time before they can figure out the problem with...

https://connect.mayoclinic.org/comment/1064567/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024

Hi Wiggins32....My nurse practitioner was the person who found the causative factor of my high platelet...

https://connect.mayoclinic.org/comment/782402/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Hi Terry @terese7 Essential Thrombocythemia is a blood condition where your bone marrow is producing too...

https://connect.mayoclinic.org/comment/1091025/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024

Hi winmil99, Welcome to the site. I was diagnosed in June 2022 with platelets at 735....

https://connect.mayoclinic.org/comment/887358/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2023

Your story sounds just like mine. My platelets started rising slowly over four years. It hit...

https://connect.mayoclinic.org/comment/778218/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2022

I started HU once a week for a month, then 2x week for 8 months. This...

https://connect.mayoclinic.org/comment/1006501/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 30, 2024

Hi there, I have MDS/MPN overlap. I have the JAK2 mutation and have been on 500...

https://connect.mayoclinic.org/comment/1027326/

Discussion: Pain in Upper Left Abdomen

Support Group: Blood Cancers & Disorders

Posted: Mar 4, 2024

I was really interested in what your MPN Specialist had to say. I also have had...

https://connect.mayoclinic.org/comment/792671/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Hi I have ET and Jak2 mutation. I have been on HU for 3 weeks. My...

https://connect.mayoclinic.org/comment/1120672/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2024