Connect
Public Support Group 2,408 total results
Comments (2,270)
Hi again Lori or anyone else that has input. My wife, Becky, who has recently been...
https://connect.mayoclinic.org/comment/1150006/
My platelets were rising starting in 2017, finally I was diagnosed with ET Jak2 in 2020....
https://connect.mayoclinic.org/comment/1141953/
Not applicable to your situation, which might be a broken blood vessel in the eye. But...
https://connect.mayoclinic.org/comment/1459063/
Sounds like Becky has been through quite a lot. I am looking at mitral valve repair,...
https://connect.mayoclinic.org/comment/1154916/
The only patients I've whose docs allowed them to run platelet levels up to 1,000 were...
https://connect.mayoclinic.org/comment/1010586/
Not all mutations are cancer, though some cancers are caused by detectable mutations. The reason the...
https://connect.mayoclinic.org/comment/891204/
Most seem to start taking Hydroxyurea and low dose aspirin when first diagnosed with ET JAK2....
https://connect.mayoclinic.org/comment/787993/
Kudos for rising above ET AND what I'd call the incompetence of your doctors . ....
https://connect.mayoclinic.org/comment/1117940/
Hi Jewelfaux, I think the answer about "does it make a difference to have diagnosis done...
https://connect.mayoclinic.org/comment/878241/
ET itself gives us headaches and fatigue. We are using tons of energy over-producing platelets. HU...
https://connect.mayoclinic.org/comment/1005109/
From what I remember, low-impact regular exercise helps lower cortisol levels. I’ve got a somewhat stressful...
https://connect.mayoclinic.org/comment/870089/
You might try Aveeno lotion for the itching. I'm ET and was switching meds a few...
https://connect.mayoclinic.org/comment/857280/
After two weeks on one pill of HU my eGFR went from 82 to 52. Has...
https://connect.mayoclinic.org/comment/826035/
@luvs2dance My oncologist/hemo says he prefers to call them blood disorders rather than blood cancers. I...
https://connect.mayoclinic.org/comment/1412098/
I am a 74-year-old widow. In 4/21/21, I was diagnosed with ET. My platelets at the...
https://connect.mayoclinic.org/comment/1548791/
It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2...
https://connect.mayoclinic.org/comment/1048208/
Hi Remo, I also have ET w/Jak2. There are a lot of different opinions on this...
https://connect.mayoclinic.org/comment/919583/
I have a diagnosis of ET strictly on (slightly) elevated platelets and a positive JAK 2...
https://connect.mayoclinic.org/comment/728817/
I just realized what I said in the other post. What I should have said is...
https://connect.mayoclinic.org/comment/1399540/
@maine Thank you. I will have an echocardiogramin a few days. My primary Care Dr. does...
https://connect.mayoclinic.org/comment/1522998/
- First
- Previous
- ...
- 27
- 28
- 29
- 30
- 31
- 32
- 33
- ...
- Next
- Last
Connect