Blood Cancers & Disorders Support Group

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Comments (897)

Hi benkeane, I was diagnosed with CLL in 2017. I’m at stage 0 and doing wait...

https://connect.mayoclinic.org/comment/967158/

Discussion: CLL diagnosis now having soft tissue pain

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Hi Ron, it’s really great to hear from you again! I know the first time you...

https://connect.mayoclinic.org/comment/622983/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2021

Hello @panevills I take it with 8oz of water at around 7:30am and 5:30pm each day....

https://connect.mayoclinic.org/comment/1433207/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

I just read her survival story and want to thank her for sharing. Readers can tell...

https://connect.mayoclinic.org/comment/946579/

Discussion: Diagnosed with chronic lymphocytic leukemia: What can I do?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

hi-i,too,have CLL-have had it for 7 years with no treatment-i am 69 and have been taking...

https://connect.mayoclinic.org/comment/789939/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Dec 29, 2022

I too have CLL. Yoga helps also if you can walk even 10 minutes. Keep moving....

https://connect.mayoclinic.org/comment/667618/

Discussion: Chronic lymphocytic leukemia (CLL): How do you manage side effects?

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2022

Thank you, your comments are very helpful. My oncologist indicated CLL is no big deal and...

https://connect.mayoclinic.org/comment/1430755/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2025

Thanks so much for the update, @nellieblue. It always helps to hear from people who have...

https://connect.mayoclinic.org/comment/113624/

Discussion: CLL: Have you had chemo, ummunotherapy or other treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2018

My blood counts, in particular the increase rate of my lymphocytes and declining RBC counts, indicated...

https://connect.mayoclinic.org/comment/1474900/

Discussion: CLL Treatment side effects are wearing me down: Anything I can do?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 8:34am

@sveta25. I have found Brukinsa to be amazingly helpful, as I was recovering also from radiation...

https://connect.mayoclinic.org/comment/1491309/

Discussion: Is anyone dealing with CLL, Chronic Lymphoma Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Jan 26 3:46pm

Surry I was so long getting back. My 2week blood infusion ran into 3,and it was...

https://connect.mayoclinic.org/comment/211089/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2019

My wife has been getting Procrit injections since Sept 2013, twice switch to Aranesp briefly, but...

https://connect.mayoclinic.org/comment/235269/

Discussion: MDS and Neupogen

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2019

Three of my former coworkers, all male, have/had multiple myeloma while I, a female, have cll....

https://connect.mayoclinic.org/comment/846281/

Discussion: CLL leukemia: Just diagnosed, what can be done?

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2023

There must be 2 different units for these analytes. My recent values are below and no...

https://connect.mayoclinic.org/comment/1062415/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Good morning. Well maybe a coincidence but both of my grandfathers had leukemia and died from...

https://connect.mayoclinic.org/comment/1323510/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2025

Hi Marynoelle, I have also recently been diagnosed with CLL and have been having the upper...

https://connect.mayoclinic.org/comment/993671/

Discussion: Chronic Lymphocytic Leukaemia: New symptom of burning sensation

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2024

Hi I have suffered with itching now for a number of years caused by my CLL....

https://connect.mayoclinic.org/comment/906166/

Discussion: PV Itching Not After Bathing

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2023

Could it have been caused by the anesthesia? I had half my thyroid removed. Before surgery...

https://connect.mayoclinic.org/comment/841939/

Discussion: Low blood counts and low oxygen after a medical procedure: Why?

Support Group: Blood Cancers & Disorders

Posted: Apr 12, 2023

I was diagnosed on Monday with CLL. It is Stage 0 and detected during blood test...

https://connect.mayoclinic.org/comment/1283260/

Discussion: Anyone have chronic lymphocytic leukemia (CLL)?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2025

Hello @katerose, thank you for sharing your diagnosis of CLL. Although the following conversation is about...

https://connect.mayoclinic.org/comment/165753/

Discussion: Chronic Lymphocytic Leukemia: Anyone else in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2018