Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

268 total results

Comments (233)

Anyone have experience with recurring waldenstroms? And treatment?

https://connect.mayoclinic.org/comment/284539/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2021

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

Additional symptoms I'm experiencing include: swollen lymph nodes on sides of neck and sore throat over...

https://connect.mayoclinic.org/comment/284522/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2019

Since everyone responds differently, I highly recommend joining the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) - either...

https://connect.mayoclinic.org/comment/1074361/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...

https://connect.mayoclinic.org/comment/1026606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

@careysuzi Welcome to Mayo Clinic Connect! To get more information about your new diagnosis, I recommend...

https://connect.mayoclinic.org/comment/996792/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2024

I am an active 75 year old and I was diagnosed with anemia, than MGUS 6...

https://connect.mayoclinic.org/comment/996268/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Hi Colleen, I see that you referenced me as “Watch & See” for Waldenstrom disease. I...

https://connect.mayoclinic.org/comment/964298/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Nov 13, 2023

Hi @laurinea, I understand what you are going through. My neuropathy started 18 months ago and...

https://connect.mayoclinic.org/comment/945494/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2023

Are there any Waldenstroms patients on an immunotherapy first line inhibitor (e.g. Ibrutinib) who have experienced...

https://connect.mayoclinic.org/comment/936360/

Discussion: With Waldenstrom, what side effects did you have with ibrutinib?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2023

Hi, I have had Waldenstroms for 19 years and have always had flu shots. I was...

https://connect.mayoclinic.org/comment/924119/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Hello @mike02041950 @barbdk @lesliemont. Because WM is a type of blood cancer where your bone marrow...

https://connect.mayoclinic.org/comment/922967/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

My Dad had Waldenstroms Macroglobulinemia (rarer than amyloidosis) for 10 years from age 63 to 73....

https://connect.mayoclinic.org/comment/879943/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

My knee has a dent in it if I kneel on it are my bones soft...

https://connect.mayoclinic.org/comment/840192/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

My mother-in-law was diagnosed with Waldenstrom's in 1981. She was living here in Arizona and Toledo,...

https://connect.mayoclinic.org/comment/829063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

My husband age 64 diagnosed last April 2018 with Waldenstrom with bone marrow biopsy, his main...

https://connect.mayoclinic.org/comment/256247/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I was diagnosed originally with a blood test that looked suspicious. Then I had a bone...

https://connect.mayoclinic.org/comment/169957/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I was recently diagnosed with Waldenstrom Macroglobulinemia. My hematologist/oncologist will see me every 6 months for...

https://connect.mayoclinic.org/comment/70606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2017