Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

294 total results

Comments (254)

I have edema in my legs and burning in my ankles. My peripheral neuropathy is getting...

https://connect.mayoclinic.org/comment/1478301/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 2:12pm

@allessio77 I’ve had PN for several years with pain increasing. Diagnosed with myelofibrosis, I began Hydrea...

https://connect.mayoclinic.org/comment/1459116/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

I also have MGus. I have had this for at least 15 years, but was just...

https://connect.mayoclinic.org/comment/1427189/

Discussion: Want to talk about Multiple Myeloma: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Oct 30, 2025

I am so sorry to hear that you are dealing with all of this. You did...

https://connect.mayoclinic.org/comment/1391566/

Discussion: WM / MZL

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2025

Sorry I also see a cardiologist and dermatologist because of possible side effects of Waldenstroms. Also...

https://connect.mayoclinic.org/comment/1375341/

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: Aug 20, 2025

@breathernow Hi Michael and welcome to Connect. Shoulder shrugging sure isn’t much of an answer when...

https://connect.mayoclinic.org/comment/1346952/

Discussion: Lymphoma doc at Mayo Rochester

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Waldenstroms for goin on two years Imbruvica and prednisone with rituxin stripped working. Bad numbers up...

https://connect.mayoclinic.org/comment/1293434/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2025

I'm new to the world of Waldenström's Macroglobulinemia - having been diagnosed last month. I'm on...

https://connect.mayoclinic.org/comment/1246861/

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2025

I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...

https://connect.mayoclinic.org/comment/1232582/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2025

Oncologist sent me to cardiologist for a ton of tests to make sure my heart wasn’t...

https://connect.mayoclinic.org/comment/1216467/

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2025

Hi @lynnstefanik89, Welcome to the community! (and sorry you need to be here) I started my...

https://connect.mayoclinic.org/comment/1203242/

Discussion: Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

Additional symptoms I'm experiencing include: swollen lymph nodes on sides of neck and sore throat over...

https://connect.mayoclinic.org/comment/284522/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2019

My husband age 64 diagnosed last April 2018 with Waldenstrom with bone marrow biopsy, his main...

https://connect.mayoclinic.org/comment/256247/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I was diagnosed originally with a blood test that looked suspicious. Then I had a bone...

https://connect.mayoclinic.org/comment/169957/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

I was recently diagnosed with Waldenstrom Macroglobulinemia. My hematologist/oncologist will see me every 6 months for...

https://connect.mayoclinic.org/comment/70606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Sep 26, 2017

My understanding of Waldenstroms and amyloidosis is that it is a genetic disease that strikes primarily...

https://connect.mayoclinic.org/comment/113909/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 22, 2016

Finally :-) :-( I have a diagnosis from a Mayo CLL doc. He said I have...

https://connect.mayoclinic.org/comment/1044933/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024