Blood Cancers & Disorders Support Group

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Comments (99)

I have posted before. Mine showed up on labs as platelets were low. Platelets started dropping,...

https://connect.mayoclinic.org/comment/865742/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

I do not spend a lot of time on this site but my own experience with...

https://connect.mayoclinic.org/comment/1050451/

Discussion: Follicular Lymphoma: looking to connect with others

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

I have looked at the sharing on this site and appreciate the comments. I myself have...

https://connect.mayoclinic.org/comment/966820/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Hello cdwilm27 I am sure the diagnosis is a surprise and am wishing the best possible...

https://connect.mayoclinic.org/comment/642839/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2021

Finally :-) :-( I have a diagnosis from a Mayo CLL doc. He said I have...

https://connect.mayoclinic.org/comment/1044933/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Brukinsa is also known as Zanubrutinib. There are few members in the forum who have experience...

https://connect.mayoclinic.org/comment/845063/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

Hi @dbamos1945, From my understanding, gastric malt Non-Hodgkin’s lymphoma (marginal zone lymphoma of Mucosa-Associated Lymphoid Tissue~MALT)...

https://connect.mayoclinic.org/comment/1105868/

Discussion: Recent diagnosis of Gastric Malt Non-Hodgkins Lymphoma: Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

Elaine. You have probably read through the previous many pages of comments in this discussion. There...

https://connect.mayoclinic.org/comment/825517/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Mar 13, 2023

Good morning, Scottie! @steiner Sometimes it just takes a little nudge from someone ‘who’s been there’...

https://connect.mayoclinic.org/comment/1475001/

Discussion: How do I tell if increase in illnesses is due to lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jan 5 10:23am

@lila1 Hi Lila, I have SMZL (and WM and CLL) and just started treatment (after being...

https://connect.mayoclinic.org/comment/1099116/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

A recommendation to get the measles shot popped up in my medical system's app. In July...

https://connect.mayoclinic.org/comment/1377688/

Discussion: Does anyone have lymphoma and no measles immunity?

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2025

@waynepowell Hi, I got diagnosed in April 2025 with marginal zone lymphoma. My symptoms were swollen...

https://connect.mayoclinic.org/comment/1501331/

Discussion: Does anyone have splenic marginal zone lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 8 10:41pm

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

Hi and welcome to Connect. You didn’t actually ask a question but my guess is that...

https://connect.mayoclinic.org/comment/642435/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2021

Hi Jackie. I just found this discussion about watch and wait. I was diagnosed with extra...

https://connect.mayoclinic.org/comment/1034018/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2024

Hi, I am 68 years old and was diagnosed with SMZL in November of 2019. I...

https://connect.mayoclinic.org/comment/692639/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2022

My husband has been diagnosed with cardiac WTTR amyloidosis and AL confirmed by myocardium biopsies,which is...

https://connect.mayoclinic.org/comment/624591/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2021

@jonyb I’m glad to meet everyone who has joined this group, as it’s so hard to...

https://connect.mayoclinic.org/comment/1496854/

Discussion: Lymphoplasmacytic Lymphoma that is not WM?

Support Group: Blood Cancers & Disorders

Posted: Feb 2 10:23pm

Hi @elainejarrett I thought a good place to learn a little more about your diagnosis would...

https://connect.mayoclinic.org/comment/809414/

Discussion: Lymphoproliferative Disorder: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2023

Hi Barbara - I am on healthunlocked under name 81ue and posted a little bit when...

https://connect.mayoclinic.org/comment/211071/

Discussion: Does anyone have B-cell prolymphocytic leukemia (B-PLL)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2019

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