Blood Cancers & Disorders Support Group

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Comments (304)

@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...

https://connect.mayoclinic.org/comment/88325/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

I have edema in my legs and burning in my ankles. My peripheral neuropathy is getting...

https://connect.mayoclinic.org/comment/1478301/

Discussion: Does anyone have Amyloidosis as their primary condition?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 2:12pm

Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...

https://connect.mayoclinic.org/comment/104698/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 24, 2017

@tayleebuzz Hello and welcome to Mayo Clinic Connect. This is a caring community where members share...

https://connect.mayoclinic.org/comment/593973/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2021

Hi @flcrakr1, welcome. You'll notice that I moved your message to this existing discussion about amyloidosis....

https://connect.mayoclinic.org/comment/623980/

Discussion: AL Amyloidosis: Where were you treated?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2021

I would like to discuss your condition with you if you'd like. Have peripheral neuropathy as...

https://connect.mayoclinic.org/comment/104723/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2018

Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...

https://connect.mayoclinic.org/comment/738758/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2022

Hello @carolynaune. Here is a discussion I think you may enjoy looking at, https://connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa/. It has...

https://connect.mayoclinic.org/comment/196640/

Discussion: Support groups for lymphoma patients

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2018

individuals can also have TTR and AL amyloidosis

https://connect.mayoclinic.org/comment/1278358/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 10, 2025

@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...

https://connect.mayoclinic.org/comment/842868/

Discussion: Amyloidosis symptoms, negative fat pad biopsy?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2023

Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate

https://connect.mayoclinic.org/comment/754346/

Discussion: What’s the science on diet and MGUS/SMM?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2022

An "easy" test for amyloidosis is a fat pad biopsy in which the doctor removes a...

https://connect.mayoclinic.org/comment/1450003/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 30, 2025

Columbia-Pres in NYC and Boston Mass. are two Amyloidosis centers in the NE

https://connect.mayoclinic.org/comment/1062374/

Discussion: Amyloidosis: What kind of specialist to see for a second opinion?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2024

Our experience with gi amyloidosis was different. That said you may want to suggest that a...

https://connect.mayoclinic.org/comment/1174177/

Discussion: Could my Stomach Pain be related to Waldenstrom’s or amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2024

luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...

https://connect.mayoclinic.org/comment/88312/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2019

@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...

https://connect.mayoclinic.org/comment/1041672/

Discussion: Positive test results for amyloids

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024

@kayabbott I had the abdomen biopsy that came back negative. However, I had a spinal biopsy...

https://connect.mayoclinic.org/comment/1456295/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

@sigman I hope your amyloidosis treatment is effective. Amyloidosis is a hard. My bone marrow (MGUS),...

https://connect.mayoclinic.org/comment/1456324/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2025

My sister had amyloidosis. She had a lump in her leg which was biopsied. The doctor...

https://connect.mayoclinic.org/comment/1474419/

Discussion: Could this be Amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 4 1:57pm

I hope they can treat the amyloidosis for you, and you can improve 🌺

https://connect.mayoclinic.org/comment/963531/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023