Blood Cancers & Disorders Support Group

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Comments (59)

Hi @arbutus, while we’re waiting for other members to reply about their experiences with Mantle Cell...

https://connect.mayoclinic.org/comment/894020/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2023

My oncologist report says "She does not have palpable lymphadenopathy, and the results of the CT...

https://connect.mayoclinic.org/comment/706892/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2022

Hi - I'm 61 and was diagnosed with Mantle Cell Lymphoma a little over two weeks...

https://connect.mayoclinic.org/comment/706226/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2022

Hi @kabue9, I moved your question about WM and treatment with zanubrutinib (Brukinsa) to this relevant...

https://connect.mayoclinic.org/comment/1347391/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2025

In 2015 I was diagnosed with aggressive blastoid mantle cell lymphoma (MCL). Prognosis was bleak but...

https://connect.mayoclinic.org/comment/1230805/

Discussion: Mantle cell lymphoma: How long do I have? What's next?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025

Hi @sofaramnotdead, CAR-T cell therapy is one of the most promising areas of cancer treatment, especially...

https://connect.mayoclinic.org/comment/622500/

Discussion: What are the best treatment for CLL? Is CAR T cell therapy an option?

Support Group: Blood Cancers & Disorders

Posted: Aug 2, 2021

I'm new here but not new to blood disease/cancer. I was diagnosed with Mantle Cell Lymphoma...

https://connect.mayoclinic.org/comment/109727/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2019

Hi @wileywright From my understanding MCL isn’t considered a curable form of cancer but it can...

https://connect.mayoclinic.org/comment/1445344/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

Hi Lori - thank you so much for the reply and links. I just received the...

https://connect.mayoclinic.org/comment/704954/

Discussion: Just diagnosed with Mantle Cell Lymphoma 23+ and looking for input

Support Group: Blood Cancers & Disorders

Posted: May 3, 2022

Hi @ingridcork11 - I am so sorry to hear of your CNS Lymphoma diagnosis after your...

https://connect.mayoclinic.org/comment/1401068/

Discussion: Anyone diagnosed with Primary Central Nervous System (CNS) Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2025

Started Rituxan treatment for four weeks in January. My IgM went from 5490 to 3900, and...

https://connect.mayoclinic.org/comment/866503/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2023

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Congrats on your 6 year anniversary, that's tremendous! My oncologist did mention the possibility of harvesting...

https://connect.mayoclinic.org/comment/1251394/

Discussion: Stage IIIB Mantle Cell lymphoma with skin involvement just diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 5, 2025

Good Morning and thanks for reaching out to my post. I did not have a donor...

https://connect.mayoclinic.org/comment/1104836/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 13, 2024

I am an87year old male. I was just diagnosed with Mantel Cell Lymphoma and Chronic Leukemia...

https://connect.mayoclinic.org/comment/748176/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Sep 11, 2022

noticed a lump on my shin. Got a biopsy and was diagnosed with b cell mantle....

https://connect.mayoclinic.org/comment/630109/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 26, 2021

Hi @paulhite and welcome to Connect. With the last line of your reply: “ I hope...

https://connect.mayoclinic.org/comment/1371970/

Discussion: Anyone else have Mantle Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2025

With mantel cell. P53. I was in remission for 6 months with rituxan and bendemustin. Now...

https://connect.mayoclinic.org/comment/912897/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023

Hi @elainejarrett, If you could help me narrow down your diagnosis a little more it will...

https://connect.mayoclinic.org/comment/809132/

Discussion: Lymphoproliferative Disorder: Anyone dealing with this?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2023