Blood Cancers & Disorders Support Group

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Comments (2,234)

I have IgA kappa light chain MGUS (8 years). My GI problems are mostly celiac and...

https://connect.mayoclinic.org/comment/1030339/

Discussion: M-Spike, High Kappa and Kappa/Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2024

Just for comparison: I’ve had IGA Kappa MGUS for at least 11 years.. My last results...

https://connect.mayoclinic.org/comment/1551891/

Discussion: Smoldering Multiple Myeloma SMM Bloodwork numbers

Support Group: Blood Cancers & Disorders

Posted: Apr 16 9:49am

Hi @mitten, I wanted you to be able to connect with others so they could help...

https://connect.mayoclinic.org/comment/728017/

Discussion: Always run down with MGUS

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2022

I have MGUS was diagnosed last October as well by a bone marrow biopsy. Before diagnosis...

https://connect.mayoclinic.org/comment/1514061/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 6:37am

I was diagnosed with MGUS over ten years ago. I meet with a hematologist and oncologist...

https://connect.mayoclinic.org/comment/830721/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

I to have MGUS and very unsteady on my feet due to my neuropathy. None of...

https://connect.mayoclinic.org/comment/899749/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2023

@mjlandin Welcome to Mayo Clinic Connect. There are several discussions here in the Blood Cancer &...

https://connect.mayoclinic.org/comment/714381/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2022

Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself....

https://connect.mayoclinic.org/comment/875309/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

My Hematologist informed me that it is possible that I have had MGUS for many year....

https://connect.mayoclinic.org/comment/775018/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Hi @jt123, some people with MGUS can have M protein (M spikes) in their blood. Has...

https://connect.mayoclinic.org/comment/1150818/

Discussion: New to kappa light chain testing

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2024

Hi @sissypuss Welcome to Mayo Connect. It can be pretty startling when we discover something on...

https://connect.mayoclinic.org/comment/862085/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

@msh466 Referencing the who and when to tell.... Although MGUS is not cancer, your MGUS disclosure...

https://connect.mayoclinic.org/comment/1303821/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: May 14, 2025

I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...

https://connect.mayoclinic.org/comment/1101928/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2024

I've read that 1 percent of MGUS patients per year progress to MM.

https://connect.mayoclinic.org/comment/1498683/

Discussion: What are my chances that MGUS turns into multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 5 11:30am

I too was diagnosed with OP in 2022. My endocrinologist order SPEP and I was diagnosed...

https://connect.mayoclinic.org/comment/1247866/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 1, 2025

There are many who share on MGUS. Go up into the search bar and put MGUS...

https://connect.mayoclinic.org/comment/1228968/

Discussion: Could we talk about anxiety with MGUS

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

My brand of MGUS doesn't have much of an M spike. It took about 5 years...

https://connect.mayoclinic.org/comment/1192782/

Discussion: I have polycythemia: Your thoughts on new test results?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

It is mind-boggling, to figure out this MGUS. I have IgE Mgus which is rare. I...

https://connect.mayoclinic.org/comment/1017873/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2024

They say there is no symptoms with MGUS but I totally disagree as it was my...

https://connect.mayoclinic.org/comment/947825/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 15, 2023

@positivethinking, I combined your discussion with an existing discussion titled: "Does anyone have neuropathy related to...

https://connect.mayoclinic.org/comment/1452737/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025