Blood Cancers & Disorders Support Group

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Comments (436)

@baygirl80 I was on Jakafi for 8-9 years before my ET converted to secondary myelofibrosis. In...

https://connect.mayoclinic.org/comment/1445447/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2025

Hi @jerrlin. While you’re waiting for others on Jakafi to respond, I read through the information...

https://connect.mayoclinic.org/comment/1200917/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

I hope your doctor will be able to come up with a treatment plan! I have...

https://connect.mayoclinic.org/comment/640974/

Discussion: Chronic GVHD ~ Let’s talk about it!

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Oct 1, 2021

@dl69, a diagnosis does blindside you, doesn't it? How are doing on Jakafi?

https://connect.mayoclinic.org/comment/1272870/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2025

I was recently diagnosed. I am 55 and starting Jakafi. I'm feeling ok just blindsided by...

https://connect.mayoclinic.org/comment/1264002/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2025

I am 83 and have been taking Jakafi for five years

https://connect.mayoclinic.org/comment/1124167/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2024

I have no side effects using Jakafi BUT do not know if is effective

https://connect.mayoclinic.org/comment/854657/

Discussion: Does Acupuncture help low back pain caused by multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 4, 2023

Is Jakafi covered by Medicare? What is the cost for a monthly dosage? Thanks.

https://connect.mayoclinic.org/comment/1013450/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

I have been on Jakafi since late August. I had GVHD after a bone marrow transplant...

https://connect.mayoclinic.org/comment/775797/

Discussion: Sprycel/Jakafi/living with CML

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2022

I've been on Jakafi for about a year. It has kept my platelets under control but...

https://connect.mayoclinic.org/comment/1300838/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 10, 2025

There are also anagrelide, Pegasys, and Jakafi. Anagrelide has been around a long time, but causes...

https://connect.mayoclinic.org/comment/1119915/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

I’m on my third year with PV. Took HU for six months before developing an allergy...

https://connect.mayoclinic.org/comment/828409/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2023

I also read that Jakafi increases chances of blood clots in PV patients.

https://connect.mayoclinic.org/comment/751786/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Sep 20, 2022

Hi that's great if the Jakafi med is working for combined with the Hair supplement. I...

https://connect.mayoclinic.org/comment/889942/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023

I have been on Jakafi for several years now. My hemoglobin dropped when I started the...

https://connect.mayoclinic.org/comment/1271441/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2025

Jakafi stopped the itching for me as well as many other PV side effects.

https://connect.mayoclinic.org/comment/943008/

Discussion: PV: terrible itching after shower or bath

Support Group: Blood Cancers & Disorders

Posted: Oct 6, 2023

I have been on Jakafi for 3 years for GVHD (I had AML and a stem...

https://connect.mayoclinic.org/comment/1174228/

Discussion: Anyone had adverse effects from Jakafi (ruxolitinib) for PV?

Support Group: Blood Cancers & Disorders

Posted: Nov 16, 2024

Joe is starting jakafi tomorrow. He had bad reaction to Hydrea so stopped it and he's...

https://connect.mayoclinic.org/comment/1053840/

Discussion: How bad is a diagnosis of Polycythemia Vera? What to expect?

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2024

Have been on Jakafi since Fall last year and the only side effect is continuous sensation...

https://connect.mayoclinic.org/comment/908479/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

I was on Jakafi for GVHD and I had no side effects I can remember, and...

https://connect.mayoclinic.org/comment/913727/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2023