Blood Cancers & Disorders Support Group

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Comments (1,045)

Hi Teresa, Thanks for the link to the article from NIH on Vit. D deficiency and...

https://connect.mayoclinic.org/comment/664163/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2021

Thank you Lori! I will review the recent link on Jak2 mutation and check back in.

https://connect.mayoclinic.org/comment/968716/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 21, 2023

Was informed today from Incyte that Jakafi is for all myelofibrosis patients, with and without JAK2...

https://connect.mayoclinic.org/comment/50503/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2011

Hi, so What were you complaining about? High Hemoglobin,wbcs, platelets.I also had genetic tests done Jak2...

https://connect.mayoclinic.org/comment/1024375/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

Hi @arti4, as it happens, @tkp22 asked a very similar question a little while ago. Hence...

https://connect.mayoclinic.org/comment/729873/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 23, 2022

Good question. Jak2 might be the first sign that you might have MPN. Curious why did...

https://connect.mayoclinic.org/comment/1142832/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Sep 17, 2024

My husband has the JAK2 but was diagnosed with both ITP and MDS all at the...

https://connect.mayoclinic.org/comment/194329/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2019

Have recently been diagnosed with JAK2 V617F. I would like to know about it.

https://connect.mayoclinic.org/comment/969664/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 23, 2023

@eoconner are you home now? Did you get the results from the JAK2 test?

https://connect.mayoclinic.org/comment/298978/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2020

Same here… found Jak2 they routine physicals AFTER two years of Covid vaccines…

https://connect.mayoclinic.org/comment/1021449/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2024

I wrote a correction today regarding my lab results that I misunderstood . I incorrectly wrote...

https://connect.mayoclinic.org/comment/1281213/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: 5 days ago

I was diagnosed with MGUS, a plasma cell neoplasm, in 2017. Earlier this year, my blood...

https://connect.mayoclinic.org/comment/719891/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2022

Welcome @lindamarie63. I hope you saw the helpful replies from several members living with ET with...

https://connect.mayoclinic.org/comment/1191118/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 15, 2024

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene...

https://connect.mayoclinic.org/comment/969785/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Nov 24, 2023

Hi @artymarty, welcome to Connect. It’s not as cool as the old treehouse club when we...

https://connect.mayoclinic.org/comment/909989/

Discussion: Had CLL for about 2 years, Dr is now thinking of treatment

Support Group: Blood Cancers & Disorders

Posted: Aug 9, 2023

I think your Hemo should check WHO and CDC. ET with Jak2 is considered a chronic...

https://connect.mayoclinic.org/comment/917609/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 23, 2023

I came back negative for jak2 v617f, CALR and MPL. I’m waiting for directions on next...

https://connect.mayoclinic.org/comment/231800/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2019

Welcome, @sregiani. I moved your message to this existing discussion about essential thrombocythemia - I have...

https://connect.mayoclinic.org/comment/834410/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2023

Hi @gigi05 You’re getting some great question suggestions from our helpful members! I can toss in...

https://connect.mayoclinic.org/comment/1272546/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Apr 2 11:09am

I also have the JAK2 mutation as does my brother. My brother could not tolerate the...

https://connect.mayoclinic.org/comment/1064864/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: May 9, 2024