Blood Cancers & Disorders Support Group | Page 3

@exon9 Statistically speaking, patients with the CALR mutation tend to have fewer blood clots than patients...

https://connect.mayoclinic.org/comment/1481645/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 13 6:16pm

Hi I'm 78 with ET , JAK2 and on Hydra since December2025. So far only slight...

https://connect.mayoclinic.org/comment/1508241/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 17 2:58pm

They will need the Jak2 test to confirm but usually with all of those labs high...

https://connect.mayoclinic.org/comment/872648/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2023

Please share your research paper on the Jak2 mutation

https://connect.mayoclinic.org/comment/1419735/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

Hi pj -how long have your platelets stayed at that level? Do you have the JAK2...

https://connect.mayoclinic.org/comment/1066167/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

@maine here's the procedure code that was on my EOB when I had the Jak 2...

https://connect.mayoclinic.org/comment/1530266/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Mar 18 9:21pm

@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing...

https://connect.mayoclinic.org/comment/231794/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 18, 2019

I do not have JAK2. I am a triple negative.

https://connect.mayoclinic.org/comment/1215899/

Discussion: Teriparatide and ET are there associated risks with this treatment?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2025

Why did they test u for jak2? What is your diagnosis?

https://connect.mayoclinic.org/comment/974126/

Discussion: Jak 2 mutations

Support Group: Blood Cancers & Disorders

Posted: Dec 2, 2023

Didn’t need to at this point. Blood tests confirmed JAK2 positive.

https://connect.mayoclinic.org/comment/834983/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2023

Hi @milestogo Then it’s best not to mess with success… Do you recall, when you were...

https://connect.mayoclinic.org/comment/1524640/

Discussion: ET under 50: I’m always the baby in these groups.

Support Group: Blood Cancers & Disorders

Posted: Mar 11 11:42am

There is a research study which implicated Jak2 mutation to endometrial cancer, If you're interest in...

https://connect.mayoclinic.org/comment/1500875/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 8 11:38am

That paper Colleen cited doesn't have anything to do with ET or PV and does not...

https://connect.mayoclinic.org/comment/1419335/

Discussion: Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

Support Group: Gynecologic Cancers

Posted: Oct 20, 2025

I had a blood test that included genetic testing that was positive for JAK2.

https://connect.mayoclinic.org/comment/1054131/

Discussion: JAK2 detection accuracy

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2024

Basic diagnostic criteria: CBC, EPO, and JAK2. All blood tests.

https://connect.mayoclinic.org/comment/986788/

Discussion: Polycythemia diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2023

I also have jak2 and ET. Good luck with your treatment

https://connect.mayoclinic.org/comment/146298/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2020

@ina2022 My hematologist told me I had a high platelets count (675) in Nov 2024 with...

https://connect.mayoclinic.org/comment/1558250/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

Hi I have JAK2 mutation and take 500 mg of hydroxyurea

https://connect.mayoclinic.org/comment/1316290/

Discussion: Regrowing hair

Support Group: Blood Cancers & Disorders

Posted: May 30, 2025

@nypara66 yes I am JAK2 and other mutation gene negative.

https://connect.mayoclinic.org/comment/898905/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2023

How does life's stress/situations affect our JAK2 and ET?

https://connect.mayoclinic.org/comment/982853/

Discussion: JAK2 V617F positive, now what?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2023