Blood Cancers & Disorders Support Group

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Comments (72)

@mrb2491 Oh gosh, that itching is so horrible and truly, I’m sorry you’re not finding much...

https://connect.mayoclinic.org/comment/1524134/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 4:06pm

Welcome @josettecedo, as you probably already read or been told, mycosis fungoides is a type of...

https://connect.mayoclinic.org/comment/1072742/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: May 22, 2024

I was diagnosed with CTCL in November of 2022. I have been told I am in...

https://connect.mayoclinic.org/comment/1029483/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2024

I have been diagnosed with CTCL about two years ago. I have been keeping it under...

https://connect.mayoclinic.org/comment/1111267/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2024

My sister has CTCL and I’m looking for ways to help her. She has been having...

https://connect.mayoclinic.org/comment/1340602/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: Jul 3, 2025

My understanding is that CTCL is a blood disorder that is typically treated on the inside...

https://connect.mayoclinic.org/comment/958804/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 4, 2023

This what I found Many researchers believe it is caused cytokines; chemicals released into the blood...

https://connect.mayoclinic.org/comment/959412/

Discussion: Has anyone else experienced frequent infections and itching with CLL?

Support Group: Blood Cancers & Disorders

Posted: Nov 5, 2023

Hi. My husband is 58 and we noticed some rashly looking patches on his skin and...

https://connect.mayoclinic.org/comment/807317/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2023

Hi. Well I am really sorry you are waiting for a diagnosis. I am “pleased” to...

https://connect.mayoclinic.org/comment/1535432/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 25 9:46pm

I am new to this forum, saw your post & will share my experience. I have...

https://connect.mayoclinic.org/comment/1307203/

Discussion: Cutaneous T-cell lymphoma consistent with mycosis fungoides

Support Group: Blood Cancers & Disorders

Posted: May 18, 2025

Hi @lav3, @mll and @josettecedo, I've moved your messages to this existing discussion group on mycosis...

https://connect.mayoclinic.org/comment/1163147/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Hi @topeydane. Well, darn it. It must feel like a gut punch after so many years...

https://connect.mayoclinic.org/comment/1026976/

Discussion: Post stem cell transplant (SCT) relapse after 12 years

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Mar 3, 2024

I am not sure about the diagnosis because it is made by cell type. It seems...

https://connect.mayoclinic.org/comment/1013043/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Feb 10, 2024

Hi Josette. I have had CTCL - MF. Treatment depends on the stage of your disease....

https://connect.mayoclinic.org/comment/1163170/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Nice reply, norseman44, and thanks for contributing so quickly. Pual, please see: "...What is the prognosis...

https://connect.mayoclinic.org/comment/1108408/

Discussion: Is Cutaneous T-Cell Lymphoma a Death Sentence?

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2024

Hi @mrb2491 While you’re waiting for a reply from @cindylb I just wanted to welcome you...

https://connect.mayoclinic.org/comment/1523965/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 10 12:05pm

I am a 58yr old male that was diagnosed wit CTCL last June. This after many...

https://connect.mayoclinic.org/comment/1078425/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: May 31, 2024

Hey, we recently got a home lite box thru our insurance company with the help of...

https://connect.mayoclinic.org/comment/1295325/

Discussion: Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Support Group: Blood Cancers & Disorders

Posted: May 2, 2025

@shari715 do you use a chemo cream with your light box? My son is seeing his...

https://connect.mayoclinic.org/comment/958376/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2023

I was diagnosed with Cutaneous T-Cell lymphoma by my dermatologist. My excellent dermatologist noticed an area...

https://connect.mayoclinic.org/comment/850787/

Discussion: Anyone have Cutaneous T Cell Lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2023