Blood Cancers & Disorders Support Group

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Comments (905)

@kaurashima Ah, he is leaving. Boy, that seems to be a common theme in health care....

https://connect.mayoclinic.org/comment/1044153/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Good morning, @heathermcfarland Thank you for sharing these great ideas for what worked for you post...

https://connect.mayoclinic.org/comment/903498/

Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2023

Hi Michey, Yes due to “Margaret’s “ blog I started taking 8 curcumin capsules. Lab work...

https://connect.mayoclinic.org/comment/835634/

Discussion: MGUS and Curcumin/Tumeric

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2023

@cytogirl Welcome to Mayo Clinic Connect. Sometimes we need to consider our co-morbidities when dealing with...

https://connect.mayoclinic.org/comment/1252578/

Discussion: Myeloma newly diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2025

I was tested for polyneuropathy (PN) 8 years ago because I fell a lot that year....

https://connect.mayoclinic.org/comment/1188384/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2024

I am a caregiver to my husband who was diagnosed with Multiple Myeloma 10 years ago....

https://connect.mayoclinic.org/comment/109629/

Discussion: Multiple Myeloma: Come introduce yourself and let's talk

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2016

I have multiple myeloma and amyloidosis. My treatment for this was 4 drugs - Daratumumab, Dexamethasone,...

https://connect.mayoclinic.org/comment/1511568/

Discussion: Al amyloidosis treatment after 6 years of remission

Support Group: Blood Cancers & Disorders

Posted: Feb 21 8:31pm

Good morning and thanks for your reply. Yes, he has Multiple Myeloma. His first treatment was...

https://connect.mayoclinic.org/comment/1036482/

Discussion: Anyone experience failed stem cell collection after D-PACE chemo?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2024

I thought you might be interested, I have run a red cell count of 3.75-4.00 most...

https://connect.mayoclinic.org/comment/849921/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2023

@gmichelle There is no clearcut evidence that it is always linked, but some people do experience...

https://connect.mayoclinic.org/comment/796157/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Jan 13, 2023

Hi @lmkmom, I know this post is meant for @itlooksunny but thought I would pop into...

https://connect.mayoclinic.org/comment/1373370/

Discussion: Is anyone else suffering from bone pain due to multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: Aug 18, 2025

In March of 2023, my blood work had a M protein spike of .6. I had...

https://connect.mayoclinic.org/comment/1337875/

Discussion: Lower leg blood clot. Occlusion DVT thrombotic

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2025

@anneschanck https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362 That will give you a bit of information about MGUS. Typically, if you are...

https://connect.mayoclinic.org/comment/1198661/

Discussion: Is there anything to help stop or slow progression of MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2024

Hi Lori, no treatments yet, doctors not convinced of the need yet as other analyses, while...

https://connect.mayoclinic.org/comment/1163584/

Discussion: Is A Repeat Bone Marrow Biopsy Called for

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...

https://connect.mayoclinic.org/comment/88325/

Discussion: Diagnosed with AL Amyloidosis. What can I expect?

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Welcome to Connect, @nathangolden. I’m going to echo @deborahjb by encouraging you to advocate for yourself....

https://connect.mayoclinic.org/comment/875309/

Discussion: MGUS with bone pain?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2023

You and your sister have a lot on your plates right now with your dad’s illness...

https://connect.mayoclinic.org/comment/1218304/

Discussion: Anyone with Plasma Cell Leukemia or family?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2025

Hi Lisa, @colleenyoung provided you with some great informational links for what will transpire during an...

https://connect.mayoclinic.org/comment/971395/

Discussion: Bone Marrow Transplant: Need help with place to stay in Rochester, Mn

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Nov 27, 2023

@cat1952, I found this information on the International Myeloma Foundation's website - What Is Relapse in...

https://connect.mayoclinic.org/comment/923701/

Discussion: Relapsing myeloma when did your oncologist change your meds?

Support Group: Blood Cancers & Disorders

Posted: Sep 3, 2023

@rustypenny Welcome to the Mayo Clinic connect. It’s quite an emotional roller coaster ride when you...

https://connect.mayoclinic.org/comment/1184488/

Discussion: Diagnosed: MGUS

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2024