Bone Marrow Transplant: Need help with place to stay in Rochester, Mn

Posted by william1970 @william1970, Nov 21, 2023

We have to be in Rochester, Mn from December 14th 2023 to about January 26, 2024. We have an emotional support cat & need a cheap place to stay. Any suggestions?
We can't leave Rochester during to having a Bone Marrow Transplant the 15th if December.

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

A lot of big hospitals have private hotels they use for long term patients. We used the one in Yale fr my daughter's surgery in Feb.
It was great, kitchen, living room, private bathroom (of course). And it was cheap.
Like $100 per night.

You should call the concierge or your coordinator and find out

REPLY

Hello @william1970 and welcome to Mayo Connect. As @christine5 mentioned, Mayo Clinic does have a concierge service to answer questions just like yours. I would suggest that you start there first. Here is a link with an email and phone number so that you can contact them directly for suggestions:

Mayo Clinic Concierge Services: https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services

On Connect, there is also a support group titled, Visiting Mayo Clinic, where you will meet others who have prolonged stays at Mayo Clinic for surgery or treatments. Here is a link to those conversations:

Visiting Mayo Clinic support group https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

While you did not mention the specific reason for the bone marrow transplant, Connect does have a discussion group on the topic of Blood Cancers, which you may find helpful. Here is the link, https://connect.mayoclinic.org/group/blood-cancers-disorders/

I would also like to invite @loribmt who has had a bone marrow transplant at Mayo Clinic to this discussion. @jenniferhunter and @naturegirl5 have also visited Mayo Clinic and have had extended stays for surgery and treatments.

I look forward to hearing from you again as you post in the Blood Cancers support group or in the Visiting Mayo Clinic support group. I hope that this will direct you to where you can get more answers.

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Hi @william1970. You’ve come to the right place to get your questions answered. As @hopeful33250 mentioned, I also had a bone marrow transplant that required me to stay in Rochester from June into October. You’re in great hands with the transplant team and hematology department at Mayo Rochester. They became my new family. My husband and I feel like Rochester/Mayo is a home away from home. 4+ years later, I feel like nothing ever happened and my team still has followup appts with me.

I’m away from my computer for the day but I have a lot of information for you along with other members in our forum who have had long term stays at Mayo for bone marrow, other transplants or medical procedures.

I’d like to introduce you to a few of the Allogenic Stem Cell transplant members. Please meet, @alive @edb1123 @kt2013 @jenmkr63 and @timt347 We’re all at various post transplant years from 10 years down to 3. We’re all here to answer any questions you might have.

We can give you information on where to stay, what you might expect with the transplant and ways to keep safe from illness and infection. You’ll also be having quite a few informational sessions while at the clinic. The transplant team does an exceptional job in preparing you for this second chance at life and also will do everything they can to keep you safe and healthy.

Besides finding lodging, are there any specific questions you might have? If you don’t mind my asking, what type of blood cancer do you have?

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Hi, William: I had to live in Rochester for 3 months post-transplant and we had a great place to stay! It’s called The Grove, and it is an 8-unit condo complex with individual entrances from the outside (no common spaces). It’s less than a mile from the Charlton building and Cascade Creek walking trails are 1/2 block away. After my transplant, we walked the trails as much as I could to regain strength. If you want address and contact information, let me know. I’m 3-1/2 years out from transplant for AML and living a normal, active life! Best wishes for you during and after your transplant!

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@hopeful33250

Hello @william1970 and welcome to Mayo Connect. As @christine5 mentioned, Mayo Clinic does have a concierge service to answer questions just like yours. I would suggest that you start there first. Here is a link with an email and phone number so that you can contact them directly for suggestions:

Mayo Clinic Concierge Services: https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services

On Connect, there is also a support group titled, Visiting Mayo Clinic, where you will meet others who have prolonged stays at Mayo Clinic for surgery or treatments. Here is a link to those conversations:

Visiting Mayo Clinic support group https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

While you did not mention the specific reason for the bone marrow transplant, Connect does have a discussion group on the topic of Blood Cancers, which you may find helpful. Here is the link, https://connect.mayoclinic.org/group/blood-cancers-disorders/

I would also like to invite @loribmt who has had a bone marrow transplant at Mayo Clinic to this discussion. @jenniferhunter and @naturegirl5 have also visited Mayo Clinic and have had extended stays for surgery and treatments.

I look forward to hearing from you again as you post in the Blood Cancers support group or in the Visiting Mayo Clinic support group. I hope that this will direct you to where you can get more answers.

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Thank you!
He has Bone Marrow & Blood Cancer

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@william1970

Thank you!
He has Bone Marrow & Blood Cancer

Jump to this post

@william1970
I'm wishing him all the best. I would love to hear from you again with updates as it's convenient for you.

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Thank you.
William has Bone Marrow & Blood Cancer.
We're hopeful he can go into remission.

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@edb1123

Hi, William: I had to live in Rochester for 3 months post-transplant and we had a great place to stay! It’s called The Grove, and it is an 8-unit condo complex with individual entrances from the outside (no common spaces). It’s less than a mile from the Charlton building and Cascade Creek walking trails are 1/2 block away. After my transplant, we walked the trails as much as I could to regain strength. If you want address and contact information, let me know. I’m 3-1/2 years out from transplant for AML and living a normal, active life! Best wishes for you during and after your transplant!

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Yes please!
We're hopeful we can find a place that will allow Bear, our emotional support Cat.
We live on under $2,000 a month on disability & still have to pay bills at home too.
Thank you for the info.

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@loribmt

Hi @william1970. You’ve come to the right place to get your questions answered. As @hopeful33250 mentioned, I also had a bone marrow transplant that required me to stay in Rochester from June into October. You’re in great hands with the transplant team and hematology department at Mayo Rochester. They became my new family. My husband and I feel like Rochester/Mayo is a home away from home. 4+ years later, I feel like nothing ever happened and my team still has followup appts with me.

I’m away from my computer for the day but I have a lot of information for you along with other members in our forum who have had long term stays at Mayo for bone marrow, other transplants or medical procedures.

I’d like to introduce you to a few of the Allogenic Stem Cell transplant members. Please meet, @alive @edb1123 @kt2013 @jenmkr63 and @timt347 We’re all at various post transplant years from 10 years down to 3. We’re all here to answer any questions you might have.

We can give you information on where to stay, what you might expect with the transplant and ways to keep safe from illness and infection. You’ll also be having quite a few informational sessions while at the clinic. The transplant team does an exceptional job in preparing you for this second chance at life and also will do everything they can to keep you safe and healthy.

Besides finding lodging, are there any specific questions you might have? If you don’t mind my asking, what type of blood cancer do you have?

Jump to this post

William has Bone Marrow & Blood Cancer.
We are looking for a very cheap place to stay that will allow us to bring Bear our emotional support Cat.

REPLY
@loribmt

Hi @william1970. You’ve come to the right place to get your questions answered. As @hopeful33250 mentioned, I also had a bone marrow transplant that required me to stay in Rochester from June into October. You’re in great hands with the transplant team and hematology department at Mayo Rochester. They became my new family. My husband and I feel like Rochester/Mayo is a home away from home. 4+ years later, I feel like nothing ever happened and my team still has followup appts with me.

I’m away from my computer for the day but I have a lot of information for you along with other members in our forum who have had long term stays at Mayo for bone marrow, other transplants or medical procedures.

I’d like to introduce you to a few of the Allogenic Stem Cell transplant members. Please meet, @alive @edb1123 @kt2013 @jenmkr63 and @timt347 We’re all at various post transplant years from 10 years down to 3. We’re all here to answer any questions you might have.

We can give you information on where to stay, what you might expect with the transplant and ways to keep safe from illness and infection. You’ll also be having quite a few informational sessions while at the clinic. The transplant team does an exceptional job in preparing you for this second chance at life and also will do everything they can to keep you safe and healthy.

Besides finding lodging, are there any specific questions you might have? If you don’t mind my asking, what type of blood cancer do you have?

Jump to this post

Nothing that I can think of at the moment.
Thank you for your help! You've given us a lot of information.
Lisa

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