Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,015 total results

Comments (947)

Hi Eileen, I have been on Pegasus for 7 weeks, at a dosage of 45 mcg...

https://connect.mayoclinic.org/comment/807552/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2023

I was diagnosed with ET at 37 with platelets at 890. I started on aspirin only...

https://connect.mayoclinic.org/comment/792965/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 6, 2023

Welcome to this "new planet" @cmcj. To help you connect with others, I moved your post...

https://connect.mayoclinic.org/comment/891068/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2023

I'm also CALR. Started on 500 mg HU daily when platelets approached 800. Took a year...

https://connect.mayoclinic.org/comment/881192/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 19, 2023

Hi @amyb52. Welcome to Connect. This is a great forum for meeting other members who share...

https://connect.mayoclinic.org/comment/882031/

Discussion: Essential thrombocytosis with MPL mutation

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2023

I myself noticed that my red red and white cells were increasing over time..When I brought...

https://connect.mayoclinic.org/comment/1086304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Good morning, @onthejoedock ( and Mrs Joe!) I’m a bit chagrinned that I’d forgotten about our...

https://connect.mayoclinic.org/comment/1083472/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024

Hi there, Yes, this diagnosis does seem to be extremely rare! I don't qualify for RARS-T...

https://connect.mayoclinic.org/comment/865772/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

1. Thank you for your service. I, too, was in the Navy a long time ago!...

https://connect.mayoclinic.org/comment/890649/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

I am 79 and was also diagnosed with ET JAK2 in June 2022. I was already...

https://connect.mayoclinic.org/comment/967863/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Nov 20, 2023

Thanks for the question. I was diagnosed with Thrombocytosis, Essential Thrombocythemia and JAK2 gene mutation over...

https://connect.mayoclinic.org/comment/328592/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

I have essential thrombocythemia, with JAK2 gene. Diagnosed in 2022 after a emergency gall bladder operation....

https://connect.mayoclinic.org/comment/1020141/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

I had the same issue. My platelet count started at 400 and started rising after I...

https://connect.mayoclinic.org/comment/1019562/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Feb 21, 2024

Colleen, thank you for asking. Very fortunate that all my other blood work is within acceptable...

https://connect.mayoclinic.org/comment/693590/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2022

Allow me to be the acronym buster (self-proclaimed :) MPN = Myeloproliferative neoplasms, a group of...

https://connect.mayoclinic.org/comment/328563/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2020

Get on the email list for the MPN Foundation and watch their excellent programs and videos....

https://connect.mayoclinic.org/comment/946029/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Oct 11, 2023

@momz I was diagnosed with MDS with Refractory Anemia and multi lineage dysplasia in February 2021....

https://connect.mayoclinic.org/comment/926928/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2023

I also had hair thinning and nail splintering. My hair is straighter, but not falling out....

https://connect.mayoclinic.org/comment/818157/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2023

Hi @judyar I am 79, have ET JAK2 mutation. I have been taking 500 mg Hydroxyurea...

https://connect.mayoclinic.org/comment/973207/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

ET - prefibrotic myelofibrosis JAK2 - Chronic Myeloproliferative disease on 26th day HU 500mg per day...

https://connect.mayoclinic.org/comment/901889/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2023