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Comments (2,268)

There are also anagrelide, Pegasys, and Jakafi. Anagrelide has been around a long time, but causes...

https://connect.mayoclinic.org/comment/1119915/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

When I was diagnosed with ET in 2018 I saw on the MPNRF website that our...

https://connect.mayoclinic.org/comment/194351/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Hi - I was recently diagnosis with ET and PV. I am currently taking Hydrea and...

https://connect.mayoclinic.org/comment/971187/

Discussion: Lightheaded with ET

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2023

I haven't had a stroke. I was diagnosed 8 months ago with ET and was put...

https://connect.mayoclinic.org/comment/903346/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2023

Hi, I have ET/JAK2 & Dr wants me to start Hydroxyurea 1 per day. I’m concerned...

https://connect.mayoclinic.org/comment/789840/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 28, 2022

I too have ET and take Hydrea.......it is not as scary as it might seem. I...

https://connect.mayoclinic.org/comment/764770/

Discussion: Essential Thrombocytosis - what's your experience with Jakifi?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2022

lynnebgraham, am I remembering correctly that you are triple negative? It would be interesting to hear...

https://connect.mayoclinic.org/comment/1356659/

Discussion: What is the most effective way to take hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2025

I'm 76 and was diagnosed last year with ET JAK2. So far I'm only on 1...

https://connect.mayoclinic.org/comment/1513671/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Feb 24 12:55pm

If you have ET, genetic tests help determine your clot risk. I am 70. I have...

https://connect.mayoclinic.org/comment/1040439/

Discussion: Im 64 and my blood platelets have been in the low 530-550 range for yr

Support Group: Blood Cancers & Disorders

Posted: Mar 26, 2024

@jp2000 Errivedge is for advanced Basel cell carcinoma not for ET. I ended up using an...

https://connect.mayoclinic.org/comment/1429623/

Discussion: Hydroxyurea vs Agrilyn: Anyone switched from HU to Agrilyn?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2025

Yes, that tallies with what I hear. Because of my age (70), I am not much...

https://connect.mayoclinic.org/comment/1222190/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 26, 2025

@mdterp76 Hi Karla, I have never had a bone density issue. My last one said to...

https://connect.mayoclinic.org/comment/1558014/

Discussion: Side effects of hydroxyurea

Support Group: Blood Cancers & Disorders

Posted: 3 days ago

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2025

Most doctors follow the WHO classification. I get that there is some debate. But it is...

https://connect.mayoclinic.org/comment/877897/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2023

I’ve had ET for over 30 years now and have done quite well just on hydroxyurea....

https://connect.mayoclinic.org/comment/1321109/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

Hi again Lori or anyone else that has input. My wife, Becky, who has recently been...

https://connect.mayoclinic.org/comment/1150006/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 30, 2024

My platelets were rising starting in 2017, finally I was diagnosed with ET Jak2 in 2020....

https://connect.mayoclinic.org/comment/1141953/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Sep 15, 2024

Not applicable to your situation, which might be a broken blood vessel in the eye. But...

https://connect.mayoclinic.org/comment/1459063/

Discussion: CALR exon 9 mutation w/translocation of chromosomes 10 &13

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2025

Hi @rch552320 Your mom was recently diagnosed with thrombocytosis which is an excess of platelets in...

https://connect.mayoclinic.org/comment/1067044/

Discussion: 70 + year women with Thrombosis

Support Group: Blood Cancers & Disorders

Posted: May 13, 2024

@nisi I just posted this to someone asking about Jakafi and ET: “ I was placed...

https://connect.mayoclinic.org/comment/1527366/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Mar 15 10:17am